Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency


elonwy

Recommended Posts

elonwy Enthusiast

So I've been feeling kinda blah lately, tired a lot, cranky, gained some weight out of no where, having some trouble with C and some random muscle pains. The doctor did a full blood panel, including checking my thyroid, and for good measure threw in a vitamin D check. Turns out I am severely vitamin D deficient, which basically explains all of that. She also said that Celiacs tend to not absord D well, for whatever reason. She has me on 2,000 IU a day until I start feeling better.

So if you're feeling kinda icky, and there is no good reason why, might be worth checking out with your doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Thanks for the tip. It sound like me. I take D but probably not nearly enough. I'll have him run all my levels next time in.

eringopaint Newbie

When I saw my Dr last summer I was telling her about the daily bone pain I was dealing with. Terrible pain within the bones of mostly my upper body and pelvis, concentrated in my collar bone and ribs. She said it sounded like Osteomalacia so checked my Vitamin D level and it was very deficient. Due to malabsorption.

I started taking vitamin D supplements but it wasn't until I got all the traces of gluten out of my diet and my intestines started to return to some kind of normal that I felt a difference.

I am now due for a blood test to see where it is now.

Definitely get your Vitamin D level checked.

Bosque Rookie

My doctor checked me for Vit. D and mine was low too. He is giving me 50000IU of D once per week for 12 weeks and then check it again. If you have Celiac's and your D is really low, the 2000 IU may not be enough as we (Celiac's) have issues absorbing.

mushroom Proficient

My D level has been low normal for ages. Finally talked my PCP into a prescription, but it was onlly 50,000iu once a month. My rheumatologist and another of my docs (who believes low vitamin D is behind lots of stuff) said that is just a maintenance dose, you have to fill the tank up first and then keep it topped up. Rheumatologist prescribed once a week for four weeks, my other doc said once a week for three months. I will have my level checked next month. Check your folate levels too! since these are also often low in celiacs. Mine was way below the line and dropping and, together, and in combination with the methotrexate I took for a year, these gave me macrocytosis, about which there is another thread running here, meaning my blood cells were too large, and therefore I did not have enough of them, which is probably accounting for my increased breathlessness which I attributed to my COPD which I've had since I quit smoking. Gosh, it's hard to keep up with this stuff :lol: , especially when you have to do the work of your docs. If I had no medical background it would be almost impossible.

chatycady Explorer
So I've been feeling kinda blah lately, tired a lot, cranky, gained some weight out of no where, having some trouble with C and some random muscle pains. The doctor did a full blood panel, including checking my thyroid, and for good measure threw in a vitamin D check. Turns out I am severely vitamin D deficient, which basically explains all of that. She also said that Celiacs tend to not absord D well, for whatever reason. She has me on 2,000 IU a day until I start feeling better.

So if you're feeling kinda icky, and there is no good reason why, might be worth checking out with your doctor.

I would probably also ask for a bone scan too. Just to be sure you don't need more calcium etc.

NicoleAJ Enthusiast

I was also vitamin D deficient last year, and my doctor recommended the 50,000iu prescription as well, but then I spoke to my gyno, and she said that there have been mixed reviews about what those levels of vit D can do if you get pregnant while you're on them. I've been taking decent levels of vit D and calcium daily but not doing the super doses since we're going to TTC soon. I've been feeling MUCH better since bulking up on my vitamin D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,533
    • Most Online (within 30 mins)
      7,748

    Crystallynn
    Newest Member
    Crystallynn
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.