Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Deficiency

diannalynn0711

Recommended Posts

diannalynn0711 Rookie
diannalynn0711
Posted

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elonwy Enthusiast
elonwy
Posted

I take Nature Made Liqiud softgel Vitamin D. Says gluten free right on the bottle. I too am super low in vitamin D, as I never go outside, and all the food that is fortified with it is cereals and bread and gluten things I don't eat.

diannalynn0711 Rookie
diannalynn0711
Posted
  • Author

That's the same situation that I am in. With being lactose intolerant, I can not have milk to get a lot of vitamin D like everyone else. It has been so long since I have looked for them that I am not sure which ones to look at and all I have around here is a walmart. I am willing to drive to get any supplements since I know that I need them.

Where did you buy your supplement at?

Thanks :)

Bosque Rookie
Bosque
Posted

I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

elonwy Enthusiast
elonwy
Posted

I bought my vitamins at Walgreens. Taking the vitamin D has caused a drastic improvement in my health.

chatycady Explorer
chatycady
Posted
I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Freeda vitamins - online is where I purchase mine. It is gluten free, lactose free, starch free, etc. etc. etc.! Shouldn't cause you any trouble. I didn't any any luck with purchasing them locally. THey all have something in them that I react too. Good luck!

diannalynn0711 Rookie
diannalynn0711
Posted
  • Author

Thank you so much for all your information! This really helps! I decided to not go back to the doctor that did the tests because he wasnt at all familiar with the disease. So I'm on my own with finding the supplements. Thankfully I have a wal-greens where I moved to recently!!! That is a relief.

Thanks again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daveray Newbie
daveray
Posted

Hi

I have had both low levels of both vitamin D and Folic Acid. I bought supplements at Trader Joe's. They were very helpful and have a large list of gluten free products.

Good Luck

l

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

pele Rookie
pele
Posted
I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

mushroom Proficient
mushroom
Posted
Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

pele Rookie
pele
Posted
This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

mushroom Proficient
mushroom
Posted
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

ang1e0251 Contributor
ang1e0251
Posted

I also take fish oil for Vit D. We buy it at Walmart or Sam's.

SimSabalim Newbie
SimSabalim
Posted

I take two Carlson Solar D Gems 4000 Iu daily. I've had really good results with taking high doses of vitamin D; approaching 10,000 Iu.

pele Rookie
pele
Posted
My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

  • 1 month later...
Roda Rising Star
Roda
Posted
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

I do understand that the D3 is a more bioavailable form of vitamin D. I have been taking the prescription which is classified I believe as the D2 ergocalciferol. I have been taking one 50,000 iu capsule a week since mid January. I just had my levels checked again in April. My levels went from around 17 to mid 40's. So yes for me it has worked. I am going to finish out the rest of the script and then probably maintain on an over the counter D3 supplement of about 1,000-2,000 iu daily.

mushroom Proficient
mushroom
Posted

I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Roda Rising Star
Roda
Posted
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Amen to that! :P

Roda Rising Star
Roda
Posted
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

I googled this and found the article. Here is the link. It tells you at the end which journal it was published in.

Open Original Shared Link

mushroom Proficient
mushroom
Posted

Thanks for doing the leg work on that Roda. I guess I was too tired (or too lazy!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,605
    • Most Online (within 30 mins)
      7,748
    Horslvr123
    Newest Member
    Horslvr123
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      almost a year in recovery - so many questions about to give up

      By kopiq · Posted

      also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless.
    • kopiq
      almost a year in recovery - so many questions about to give up

      By kopiq · Posted

      thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken.  i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do?   ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing.  https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu  
    • Scott Adams
      Trader Joe's strikes again

      By Scott Adams · Posted

      The Trader Joe's GF hamburger buns are the best!
    • StuartJ
      Trader Joe's strikes again

      By StuartJ · Posted

      Just ate some for lunch!  A really superb alternative to gluten-free bread and burger buns that all have the taste and consistency of compacted sawdust.  I bought two packs and now I'm down to one remaining muffin so need to get some more; the only thing is it's their own brand - they don't do mail or on line ordering and the nearest TJ's is in Charlottesville (a real nightmare to drive around) an hour away from me over the mountain.  😒
    • somethinglikeolivia
      Question about biopsy

      By somethinglikeolivia · Posted

      When I underwent a scope three years ago, the GI told me I was negative for celiac because there was no intestinal damage (in spite of multiple strong positive labs). I went back to look at my biopsy report out of curiosity, and found this note: “Localized mild nodular mucosa was found in the duodenal bulb. Duodenum otherwise normal.” The pathology from this scope was negative. Does anyone have any insight into mild modular mucosa and what that could indicate or be a precursor to? I’ve read it can be a sign of celiac or other gut issues like h. Pylori, etc.  Thanks in advance! 
×
×
  • Create New...