Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Deficiency


diannalynn0711

Recommended Posts

diannalynn0711 Rookie

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I take Nature Made Liqiud softgel Vitamin D. Says gluten free right on the bottle. I too am super low in vitamin D, as I never go outside, and all the food that is fortified with it is cereals and bread and gluten things I don't eat.

diannalynn0711 Rookie

That's the same situation that I am in. With being lactose intolerant, I can not have milk to get a lot of vitamin D like everyone else. It has been so long since I have looked for them that I am not sure which ones to look at and all I have around here is a walmart. I am willing to drive to get any supplements since I know that I need them.

Where did you buy your supplement at?

Thanks :)

Bosque Rookie

I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

elonwy Enthusiast

I bought my vitamins at Walgreens. Taking the vitamin D has caused a drastic improvement in my health.

chatycady Explorer
I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Freeda vitamins - online is where I purchase mine. It is gluten free, lactose free, starch free, etc. etc. etc.! Shouldn't cause you any trouble. I didn't any any luck with purchasing them locally. THey all have something in them that I react too. Good luck!

diannalynn0711 Rookie

Thank you so much for all your information! This really helps! I decided to not go back to the doctor that did the tests because he wasnt at all familiar with the disease. So I'm on my own with finding the supplements. Thankfully I have a wal-greens where I moved to recently!!! That is a relief.

Thanks again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daveray Newbie

Hi

I have had both low levels of both vitamin D and Folic Acid. I bought supplements at Trader Joe's. They were very helpful and have a large list of gluten free products.

Good Luck

l

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

pele Rookie
I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

mushroom Proficient
Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

pele Rookie
This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

mushroom Proficient
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

ang1e0251 Contributor

I also take fish oil for Vit D. We buy it at Walmart or Sam's.

SimSabalim Newbie

I take two Carlson Solar D Gems 4000 Iu daily. I've had really good results with taking high doses of vitamin D; approaching 10,000 Iu.

pele Rookie
My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

  • 1 month later...
Roda Rising Star
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

I do understand that the D3 is a more bioavailable form of vitamin D. I have been taking the prescription which is classified I believe as the D2 ergocalciferol. I have been taking one 50,000 iu capsule a week since mid January. I just had my levels checked again in April. My levels went from around 17 to mid 40's. So yes for me it has worked. I am going to finish out the rest of the script and then probably maintain on an over the counter D3 supplement of about 1,000-2,000 iu daily.

mushroom Proficient

I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Roda Rising Star
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Amen to that! :P

Roda Rising Star
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

I googled this and found the article. Here is the link. It tells you at the end which journal it was published in.

Open Original Shared Link

mushroom Proficient

Thanks for doing the leg work on that Roda. I guess I was too tired (or too lazy!)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,765
    • Most Online (within 30 mins)
      7,748

    girgade
    Newest Member
    girgade
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • stephaniekl
      She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue.  Her primary care team has been suggesting liquid supplements rather than pill form to help.  They just drew a lot of blood Friday and we are slowly getting all that work back.  I will definitely check into thiamine!  Thanks!
    • stephaniekl
      They have not done that yet.   We are looking at some other treatments to help. And you are correct.  The tickborne illness has been a wild ride.  Our whole family has been battling different tickborne illnesses.  Its expensive and exhausting.  
    • cristiana
      I cannot tolerate it at all - triggers burning and nausea, ditto aspirin.  Here in the UK I take Paracetamol.
    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.