Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Good News Regarding My Plight

UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

Hello! If anyone remembers this thread:

https://www.celiac.com/gluten-free/index.ph...mp;#entry519602

I was not only Unhappycoeliac but angry one to. Anyone after reaching my wits end of the 'am i doing good' and im i doing bad scenario I vowed to get a blood test. Which I did and I got the results just now and basically everything is healed on well on the way

B12.VitD, folate, thyroid function,calcium, other stuff I have no idea about

Where all basically stuffed as of July last year when I was diagnosed.

I can happily report these are all now normal and I am pumped. My doctor was quite happy and mentioned it shows I had been making an effort I am effectively nutritionally healed of this disease and continuation of the gluten free diet will see the anti bodies go down.

That is the bad the anti bodies where both over 130 at diagnosis and now one is

40 and is 53. They both however need to be under 20.

I am very happy I am healed and most definitely continuing a gluten free diet.

For the battlers out there I have struggled immensely i love food, i suck at controlling temptation and in social situations and other situations I have simply given in. The important thing is getting back on the horse though.

I have maybe had gluten up to 5-8 times (minuscule amounts) in the last 3 months but have managed to recover nutritionally. Once the belt is tightened I will also get the anti bodies down.

Anyone I also coined up my new motto while passing time in the doctors surgery and that is

"if Nutritionally sound coeliac represents just a diet, if not it is a disease"

Anyway all of my 70 or so posts have been mostly getting help and being angry so im glad to post some good news. I think everyone here is really tolerant and i appreciate the mods always moving around my threads and stuff :)

My doctors words on my stuff ups where 'the blood test represent mostly an adheral to the gluten free diet over a long period of time.

And it hasn't been that long even 3 mths ago I was still in shambles not even knowing lollies etc had gluten and actively eating them. Done ranting now I am really pleased. In 3 mths i go back for another test.

I ironically two of my liver enzymes are above what they should be and I have to get a cholesterol test that is the bad news to much fatty diet the doctor suspects

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Good for you! You *sound* ever so much better. We will always be here to keep you on track :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted

This is great news!!!!!! I am so glad things are looking up for you and that you have been able to get a good amount of healing in a short time. Don't go dropping those supplements yet though. :)

flourgirl Apprentice
flourgirl
Posted

This is good news!!! So glad you have something positive to feel good about, a reward for you efforts. It makes it easier to do what you need to do when you can see some results. There is always someone here for you.....which I'm sure you've discovered. Some of us read along, answer sometimes, but not always. Wish you great luck in your continuing efforts.... :)

ang1e0251 Contributor
ang1e0251
Posted

That is great news! You might not know but I think about those who are struggling. I'm always sending prayers your way and hoping that you are working your way toward good health. I'm so glad to hear of your improvement. Kudos!

RiceGuy Collaborator
RiceGuy
Posted

So glad you're doing better! That is wonderful news, and your encouraging words will help others who also struggle.

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

Yeh i am getting the hang of it need to get more fruit and vegs in my diet though.

If i understand right alot of the probs with coeliac is due to nutritional deficiency which I no longer have so I am good about this.

Positive I only had celiac for 2-5 mths before diagnosis too at 21. So im in good set if I am still kicing at 80 this will be easier to managae i guess.

There is a vaccine in stage 3 process at the Melbourne hospital atm things will get better in 20 yrs or so i hope

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

That is wonderful news...thanks for sharing!

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Good for you! Keep up the good work! I think it's normal to be angry for a time about this. I mean, it's not fair, is it? And it's all up to us to eat right but the world makes it so hard to do a good job at staying gluten-free. I used to get angry at myself for accidental glutenings, but I think I'm starting to accept that I'll have no control over it sometimes and, despite my best efforts, it's still going to happen on occasion.

DakotaRN Newbie
DakotaRN
Posted

I'm happy for you. Good job!!! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,382
    • Most Online (within 30 mins)
      7,748
    victimm
    Newest Member
    victimm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lauramac
      COVID19 and getting glutened

      By lauramac · Posted

      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...