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Possibility I Have Celiac Or Not?...


Clobro

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Clobro Newbie

Hi,.. I'm new to this forum and havea few questions... I'm 21 years old and for the past 6-7 Months I started feeling very odd.. well actually how I noticed this all was when I started trying to lose weight.. I wanted to be fit.. I'm currently 6'1'' 190 pounds.. and I was originaly 225 pounds.. I started working out ... jogging.. eating healthier.. (Cutting beer out to a minimum of 1-2 a week oppossed to having a couple almost every day and partying and drinking a crap load of beer on the weekends) I also started eating alot of whole wheat bread and cereal instead of white... ate quite abit of pasta aswell especially before I would play Hockey.. I started getting concerned once i was losing quite abit of weight.. It was never this easy in the past for me to do this.. I seemed to just be shedding weight left and right.. to date I would say I've lost about 30-35 pounds in a 6-7 month time frame.. anyway to keep things short.. here's the symptoms ive experianced..

Rash- Mainly on my scalp and chest.. Inner thighs back.. arms and butt (The rah on my scalp I thought was just pimples or something.. i would kinda scratch at the mand they would be liquidy.. my hairdresser even mentioned they looked like an allergic reaction... the ones on my butt were the same.. and the ones on my inner thighs and arms were more of a itchy red rash which i thought was just caused by sweating and being irritated.

Depression and Nervousness- My grandma was recently diagnosed with colon cancer and my mom was very sick for awhile <-- Could be caused from that

Edgy- I've been edgy and very snappy for no apparent reason when people say things or ask me something..

Constipation- I've experianced consipation a few time in the past 6 or so months

Diarhea- Same thing as constipation

Fatigue- I've experianced some fatigue.. but the same could be said about feeling energetic.. Since i've lost this weight I do feel alot more energetic.. but from time to time i get random bouts of Fatigue

Palpitations- Ectopic heartbeats and the feeling of my heart pumping

Dizziness- Pretty says it

Fuzzy thoughts


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hannahp57 Contributor
Hi,.. I'm new to this forum and havea few questions... I'm 21 years old and for the past 6-7 Months I started feeling very odd.. well actually how I noticed this all was when I started trying to lose weight.. I wanted to be fit.. I'm currently 6'1'' 190 pounds.. and I was originaly 225 pounds.. I started working out ... jogging.. eating healthier.. (Cutting beer out to a minimum of 1-2 a week oppossed to having a couple almost every day and partying and drinking a crap load of beer on the weekends) I also started eating alot of whole wheat bread and cereal instead of white... ate quite abit of pasta aswell especially before I would play Hockey.. I started getting concerned once i was losing quite abit of weight.. It was never this easy in the past for me to do this.. I seemed to just be shedding weight left and right.. to date I would say I've lost about 30-35 pounds in a 6-7 month time frame.. anyway to keep things short.. here's the symptoms ive experianced..

Rash- Mainly on my scalp and chest.. Inner thighs back.. arms and butt (The rah on my scalp I thought was just pimples or something.. i would kinda scratch at the mand they would be liquidy.. my hairdresser even mentioned they looked like an allergic reaction... the ones on my butt were the same.. and the ones on my inner thighs and arms were more of a itchy red rash which i thought was just caused by sweating and being irritated.

Depression and Nervousness- My grandma was recently diagnosed with colon cancer and my mom was very sick for awhile <-- Could be caused from that

Edgy- I've been edgy and very snappy for no apparent reason when people say things or ask me something..

Constipation- I've experianced consipation a few time in the past 6 or so months

Diarhea- Same thing as constipation

Fatigue- I've experianced some fatigue.. but the same could be said about feeling energetic.. Since i've lost this weight I do feel alot more energetic.. but from time to time i get random bouts of Fatigue

Palpitations- Ectopic heartbeats and the feeling of my heart pumping

Dizziness- Pretty says it

Fuzzy thoughts

hannahp57 Contributor

I would say get tested. You have more symptoms than I ever did. Mine were limited to stomach problems mainly.

bloating

diahrrea

constipation

fatigue

naseu

loss of appetite

pain in my stomach

even the fuzzy thoughts

and the rash is probably dh (look up dh and celiac disease and find pictures, see if there are similarities) but I have never experienced that. I also found that even when I touch bread a lot (like working in a bakery) I would be sick the next day. I recommend at least the blood test because you have nothing to lose in doing that.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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