Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cooking With 'whine'

mimommy

By mimommy
in Coping with Celiac Disease

Recommended Posts

mimommy Contributor
mimommy
Posted

Hi all. Not feeling good, need to unload. My little one was officially diagnosed in January, but we've been at this for a lot longer than that. I started her on gluten free in August '08 and never looked back--results miraculous. But recently (about 2 months ago), I made the decision to make our entire household gluten free. I had made too many cc mistakes with dd and also wanted to see if the diet would help my own symptoms of inflammation, D, C, skin irritations, neuro, and so on (too many to list :( ).

We've been doing great with it. I cook a lot, learn new recipes every week, buy many organic items--a regular gluten-free gourmet. I have to say, my 'itis' has been far, far less painful, frequent, and of shorter duration, but can't exclusively contribute it to the diet--just not sure. BUT, today I feel like I went on a bender last night (and I assure you, I didn't.) I had a small glass of red wine on Saturday, the first drink I've had in months. I also accidentally ate some gluten on Easter, and again last night--didn't realize there was wheat starch in the Honey Baked ham glaze. I looked into HB Ham this am and their website says it's in the glaze, even though I've read that it was removed from the ingredients.

The weird thing is, my daughter--the actual celiac in the family--did not react to it. However, she only ate a few bites? I am having the same old D, with some lovely stomach pain, and I feel like rats are gnawing at my connective tissues and joints and muscles. My knees HURT, darn-it!! My eyes are bothering me (the blurred vision and vertigo is getting worse and worse), my face is hot, and I have zero energy. But, I don't feel sick, not like a cold or flu.

Anyway, I was tested for celiac last month and the TtG was .6 on a reference range of >3.4 or something. And, my RA test was negative. Soy is definitely a culprit for me, but I've been sooo careful. I did indulge in a "fun-sized" Mounds Bar last night which has soy lecithin in it, but by the way I'm feeling it might as well have had a fifth of whiskey in it.

So (whoa is me, wowsy-wowsy-boo-hoo) I don't want to feel bad anymore and really don't want to discourage anyone, but for G's sake I work 2 jobs to pay for my groceries and I STILL feel this bad?

I'm going to drag myself off to do some laundry and try to give my little girl a decent birthday (she's 9 years old today :) ). As always, thanks for listening. You are my "Village".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ranger Enthusiast
ranger
Posted

Sorry you feel so bad. It is frustrating to put so much effort into the diet and still feel bad. But, it does work and you'll feel better. Happy B-day to your little one!

mommida Enthusiast
mommida
Posted

Happy birthday to your 9 year-old!

Have you been keeping a food journal?

Look back over the labels to see if it is a different food allergy.

Since we live so close, I know a lot of bugs are going around too.

Hang in there! :rolleyes: I know how frustrating some days can be.

With the weather today, I feel chilled to the bone. I actually can't wait to fold the warm laundry!

DingoGirl Enthusiast
DingoGirl
Posted

Mimms,

Sorry you're feeling so rotten. :(

the symptoms you're describing sound like things from which sooooooo many people suffer here, that are sometimes beyond the reach of a gluten-free diet. I had no idea you had this joint pain, vision problems, etc.

First, I'm concerned that your post will not be read by many due to its (admittedly quite funny) title, which sounds like it would be a thread about cooking only.....you might want to write another post with a title that FULLY captures your misery! (you could copy and paste the same post, just re-name it)

Was your blood work done after you'd been on the gluten-free diet? for - about a month, I'm guessing? That WILL change your results....body has a chance to heal, antibodies subside, and readings change once gluten is removed.

It's hard to say why your daughter didn't react to the ham....people all have different reactions to things. I once, in a very angry and fed-up period of time (had been gluten-free for about eight months) intentionally cheated two days in a row. (let me back up by saying that at that time, if I ingested a SPECK of gluten, I became quite ill about 12 hours later and for nearly half the day.) So - I ate three donuts one day.....absolutely NOTHING happened the next day. I waited. So taht day I ate an entire (small) loaf of banana bread. Still nothing. But - the pain began building.....and building......to the point that four days later on a Saturday night, I was jack-knifed in pain adn weeping. I won't even bother going into details about the poop :ph34r:

and the misery and fog in my brain.

All of my joint pain subsided after a few months on the gluten-free diet.......but sometimes there are other causes.....one must look into removing oxalates (sp?) or salicylates (I can't spell either of those), or dairy, you've already mentioned a problem with soy.

I'm sorry I can't offer more help....but many of your friends on the silly thread have been through this, and I think they will have more to say. :)

Keep reading here, hang tight, and happy b-day to your daughter. :)

SalmonNationWoman Newbie
SalmonNationWoman
Posted

Red wine could be a culprit; alcohol effects intestinal permeability which could make you more sensitive to other things. As others mentioned, you could be sensitive to sulfates, salicylates, oxylates and have a different gluten threshold than your daughter.

Did you know that what most people call "stomach flu" is usually mild food posioning?

Take care of yourself and stay well hydrated.

Jestgar Rising Star
Jestgar
Posted
Did you know that what most people call "stomach flu" is usually mild food posioning?

Based on what?

tarnalberry Community Regular
tarnalberry
Posted
Based on what?

My docs have told me the same thing, IF the "stomach flu" lasts approximately 24-72 hours and tends to be fairly intense, and is confined to *just* the intestinal symptoms and fever. (The symptoms of the actual flu are fairly different.)

What gets tricky is that viral gastroenteritis and bacterial infections with similar symptoms are - well, similar. But both of them, and even parasites, can be considered types of food poisoning (norwalk - virus, e.coli - bacteria, giardia - parasite), but you can get them other ways too.

Some references found quickly online:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Thanks for posting those, Tiffany. It wasn't something I'd ever wondered about and it was nice to get some education.

mimommy Contributor
mimommy
Posted
  • Author

Thanks for your advice and well wishes, everybody.

Definitely NOT the flu (happens way too often). Not food poisoning either, unless I've been eating the same rotten food every few weeks for years. I'm pretty sure it wasn't the wine I had 3 days ago; I only had about 3 or 4 ounces--half a normal sized wine glass.

I know I ate one bite of some scalloped potatos my mil made on Easter, then thought better of it. Had a Coke the same day--the first glass of pop I've had in months. I really have no idea if there was soy in any of the food my mil prepared, but I avoided most of it anyway.

I think that to keep a food diary is the next step for me. That, and some reading glasses. Maybe some celebrex (ugh!).

By the way--Thanks for the b-day wishes for my daughter. I did what any self-respecting, joint aching, head spinning parent should do, I took her and her friend stomping through the mall and watched them spin around on the carousel :rolleyes:

Mommida, pm me some time. I'd love to know where in Michigan ("The 12% Unemployment Rate State!") you are. Take care--R

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748
    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.