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Did Anyone Get A Negative Blood Test, But Positive Endoscopy?

HelpinOhio

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HelpinOhio Explorer
HelpinOhio
Posted

Did anyone here get a negative blood test for Celiac Disease, but a positive Upper Endoscopy/biopsy?

My blood tests came back a few days ago, and they were negative for Celiac Disease.

I have an upper endoscopy scheduled about a week from now.

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Gfresh404 Enthusiast
Gfresh404
Posted
Did anyone here get a negative blood test for Celiac Disease, but a positive Upper Endoscopy/biopsy?

My blood tests came back a few days ago, and they were negative for Celiac Disease.

I have an upper endoscopy scheduled about a week from now.

Not that I know of, but I had negative blood work and a negative biopsy. The real "Gold Standard" is the dietary response. It is the only truly reliable test in my opinion.

happygirl Collaborator
happygirl
Posted

Yes - a good amount of people.

See this recent post about her child: https://www.celiac.com/gluten-free/index.ph...mp;#entry523863

Which blood tests did you have run for Celiac?

K-Dawg Explorer
K-Dawg
Posted
Did anyone here get a negative blood test for Celiac Disease, but a positive Upper Endoscopy/biopsy?

My blood tests came back a few days ago, and they were negative for Celiac Disease.

I have an upper endoscopy scheduled about a week from now.

Hey -- this is exactly what happened to me.

My blood work was negative. My liver specialist wanted to do an biopsy/upper GI endo so I had it done. I got a call from my specialist last Thursday telling me that the biopsy results indicate that celiac disease is very likely. She told me that the biopsy is the "gold standard" for diagnosis and that it is possible to have negative blood work.

Caveat: I'm very new to all this though.

And I have not even had my follow-up appointment with the specialist yet. I see her on May 1st and she is going to provide me with some more information. In the interim, she provided me with the link for this site and told me to immediately go on a gluten-free diet. I"ll let you know what I find out from her on May 1st -- she has indicated that she wants to do some more tests?! Not sure what.

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