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Is Chronic Rhinitus A Symptom Of Celieac

dolphin

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dolphin Newbie
dolphin
Posted

Thank you to those who still visit this forum to help those of us trying to make sense of our symptoms. My daughter who is 18 has had every symptom that I have seen on this website, but one she has that I have not seen mentioned on the forum pages is chronic rhinitus. She has had chronic rhinitus for 13 years with constant post nasal drip. I have seen this mentioned on one other site but would like to know if anyone else has experienced this. She has chronic fatique, terrible allergies, headaches, joint pain, can't sleep, brain fog and craves carbs. She is in college but will be home for the summer so I am going prepare all gluten free meals for her to see if it helps.

Does anyone have any great book suggestions to help get me started with meals.

Thank you

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one more mile Contributor
one more mile
Posted
Thank you to those who still visit this forum to help those of us trying to make sense of our symptoms. My daughter who is 18 has had every symptom that I have seen on this website, but one she has that I have not seen mentioned on the forum pages is chronic rhinitus. She has had chronic rhinitus for 13 years with constant post nasal drip. I have seen this mentioned on one other site but would like to know if anyone else has experienced this. She has chronic fatique, terrible allergies, headaches, joint pain, can't sleep, brain fog and craves carbs. She is in college but will be home for the summer so I am going prepare all gluten free meals for her to see if it helps.

Does anyone have any great book suggestions to help get me started with meals.

Thank you

I just checked the definition

"It is caused by chronic or acute inflammation of the mucous membrane of the nose due to viruses, bacteria or irritants."

Six weeks after being gluten free I woke up with the oddest sensation. The inside of my nose actually felt bigger, it felt like a cavern had opened up in my face. I think my nose was swollen for so long I did not know it was. I did not list it because I did not know it had a name. Nose feels shut most of the time sounds odd. I feel like I could stick a matchbox truck in my nose now.

Why not talk to her now about being gluten free? I did not preach to my 19 year old. She saw the difference in me and i pointed her to this site. After she read a bit she figured it out on her own and really seems to be sticking to it. We talk from time to time. I did send her a list of the alcohol that is gluten free figuring that most college kids drink. Now her hang overs are much less and her urge to get drunk is less.

With my college kid needing to be gluten free she also needs her own kitchen. Some schools can help but they just do not really understand cross contamination. You two may want to think about this soon since I know that drawings for rooms are soon. I have lost so much in my life due to this illness that I do not mind the expense of an apartment for her. Write me if you need ideas or want to talk.

mikehall117 Rookie
mikehall117
Posted

I also suffer from chronic rhinitus and have done since I was a teenager. I have a constant post-nasal drip and have seen several specialists about it. I have been told that it is most likely an allergy and is probably made worse by pollution (I live in the middle of London). I am allergic to dust and have mild hay-fever so I have just accepted this diagnosis and learned to live with it.

I haven't been gluten-free for very long so I don't know if it is related. At present I haven't noticed any change to my symptoms however having read this I shall watch with interest to see if there is a change over the coming weeks.

jerseyangel Proficient
jerseyangel
Posted

I was also diagnosed with chronic rhinitus for years before finding out I had Celiac. The ENT used to tell me how "angry and red" my nasal passages were. I honestly don't know if it's connected or not, but I have had much less sinus problems since being gluten-free. I still have seasonal allergies, but I no longer use antihistimines or steroid nasal sprays regularly. I have not had a sinus infection either. I used to get several a year.

Salax Contributor
Salax
Posted

I was diagnosed with that as well. I noticed the post nasal drip has been better since going gluten-free and casein free. I also get ear infections yearly. I have severe allergies as well. I get sinus infections every couple of months. :(

Best of luck!

ang1e0251 Contributor
ang1e0251
Posted

My post nasal drip of years improved so much gluten-free, that I no longer had to use antihistamines round the clock. Now I take a low dose one only occasionally, as needed.

dolphin Newbie
dolphin
Posted
  • Author
I just checked the definition"It is caused by chronic or acute inflammation of the mucous membrane of the nose due to viruses, bacteria or irritants."Six weeks after being gluten free I woke up with the oddest sensation. The inside of my nose actually felt bigger, it felt like a cavern had opened up in my face. I think my nose was swollen for so long I did not know it was.
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dolphin Newbie
dolphin
Posted
  • Author
I also suffer from chronic rhinitus and have done since I was a teenager. I have a constant post-nasal drip and have seen several specialists about it. I have been told that it is most likely an allergy and is probably made worse by pollution (I live in the middle of London). I am allergic to dust and have mild hay-fever so I have just accepted this diagnosis and learned to live with it.

I haven't been gluten-free for very long so I don't know if it is related. At present I haven't noticed any change to my symptoms however having read this I shall watch with interest to see if there is a change over the coming weeks.

Thank you for writing. I don't know if you saw the other post but she wrote that she noticed a drastic difference at 6 weeks. I hope that happens for you.

Good Luck

beanpot Apprentice
beanpot
Posted

I have had chronic allergic rhinitus since I was a child. Terrible year round allergies to dust, molds, and pollens, and cats. I take 24 hr Rx allergy medicine. However, I noticed a long time ago that if I avoid milk, my allergice symptoms are much milder. Since I've gone gluten free, my breathing is better altogether and allergies calmer. Itchy skin is better too.

Allergy is very different but I think if you cut out something that is causing inflammation, like gluten, your overall inflammation like from allergies goes down. I'm not an expert however.

Good luck, allergies have always been a curse for me.

leadmeastray88 Contributor
leadmeastray88
Posted

Interestingly enough, I noticed this past week that I have tonsil stones and related this to my post-nasal drip that I've been suffering from for a few months now. I ignored it because I thought I had a cold but it's obviously something more. I've been gluten free for almost a year so I don't think there's a connection there..

Does anyone know of any other food intolerances associated with post-nasal drip? I have no other symptoms.

Rebecca's mom Rookie
Rebecca's mom
Posted
This is amazing.
  • 2 weeks later...
one more mile Contributor
one more mile
Posted
This is amazing.

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    • knitty kitty
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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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