Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice! Lower Right Abdominal Pain.


MichelleBell

Recommended Posts

MichelleBell Newbie

Hey All!

Just a background - I'm 26 and a runner, and eat very clean. Three years ago I started experiencing sharp cramp like, stabbing pains when I ate certain foods. My family doctor thought it was my gallbladder not processing fatty foods, but the thing was, I really didn't eat that much fatty food. If I did eat a pizza or something, it would for sure happen, but other times it would just be because of a sauce (no BBQ sauce, no alfredo, no Chinese food, etc.). He did some tests and told me I should get my gallbladder out, despite my young age (I was the 10th one he recommended that week, after all). Well (thankfully) I took the advice of a co-worker and went to a specialist who said I absolutely should not get my gallbladder taken out. She gave me Sucralfate, which is actually a med for ulcers, and it seemed to help. I also tried to limit things in my diet that were giving me acid reflux like symptoms (not sure if they were both related or not). I went a little while and life was back to normal, but a short while later I started having pains again. This time, it didn't seem to be linked to fatty/greasy foods, but to milk products. I switched to soy, and for awhile, life was good again. About 1/2 a year ago, I started having very severe pains again. This time, I thought it was the dairy again, but it started happening when no dairy was consumed. It wasn't my gallbladder, because the pain was on my left, not my right. I usually have pain every day, and upon researching, I thought maybe all of the whole grain foods I was eating was doing it to me. The pain is always, always accompanied by bloating, gas, and immediate and frequent trips to the rest room (so not fun, especially in training for my 1/2 marathon... please please let me get better before my race in June!!). I have also tracked problem foods to things such as Jimmy Johns subs, because of the bread, but upon even more research, I learned that there are two components to milk: the lactose part and the casein part. Even though I had switched to a lactose free diet, I had unknowingly still been consuming foods with milk derivatives. Processed meat has a high amount of a casein type protein in it. So now I feel like I am back to square one. Is it the wheat, or the milk? Sometimes I'll have a piece of wheat/pb toast, and no problems at all (so maybe wheat is OK). Other times, I'll try to sneak in some ice cream, and I'll actually be fine (so sometimes dairy is OK). I'm just so confused. Maybe my key is a food journal. Does anyone have any idea or suggestions? I am desperate for anything at this point!! I'm scared to go back to my doctor for fear he'll want to yank out some other organ, or just jump to conclusions. Thanks a ton!! Michelle

*Correction - Can't edit topic title now, but the pain is in my lower left abdominal, not right. Typically gall bladder pain is in the lower right.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

I have had gallbladder issues and had to have mine removed. But this information on link is

interesting :

Open Original Shared Link

This doctor (gastro) concluded in JAMA that the gallbladder doesn't work properly in

some people and it doesn't mean that the gallbladder has to be removed at once. This doctor is in NJ and is published. If the link doesn't work then google habbasyndrome.com.

I have post gallbladder removal gas and diarrhea and I still have mild discomfort on my

right side near ribcage. I had gallbladder removed 8/07. I am severely lactose intolerant and have IBS. In my case, my gallbladder was "calcified" and was no longer working and bile was

entering into my bowel at irregular intervals - bile digests fats and is acidic and irritating to the stomach and bowels. Bile triggered worsening of my IBS symtoms so I was having diarrea

almost 24/7 BEFORE I had my gallbladder removed and lost 20 lbs. in a month. As my

gallbladder disease progressed, I had pain, tenderness in upper abdomen and in right back near "wing", and I was losing my appetite to the point of not eating and finding the smell of

food disgusting (a first for me in my life). I knew I had to get the gallbladder out asap.

After surgery the gallbladder was biopsied and it did not have cancer.

Generic Apprentice

I had to have my gall bladder taken out a year ago. I never had pain on the right side. My pain was always in the center of my chest just below my ribs, on the right side and on my back between my shoulder blades.

I also had a kidney stone on the left side, so that is a possibility for you too.

Ahorsesoul Enthusiast

About a year ago I was scheduled to have my gall bladder removed. Before doing the surgery I asked for a second opinion at the Mayo Clinic. I saw a specialist in gall bladder surgery for less than 15 minutes. He kept looking at me and said you sure don't look sick. lol

He looked at my x-rays which showed two stones. Both of which were small enough to pass and not to be a problem He told to if I had pain after eating a very fatty meal that lasted about 6 hours, it could be gall bladder pain. Then I should come in again. But he said he didn't think my pain had anything to do with my gall bladder. (Turns out the pain is from a hiatal hernia.)

It's easy to test if it's gall bladder pain. Eat a very fatty meal that does not contain gluten or dairy. Try lots of bacon. If it's gall badder you should be in pain within 30 minutes that will last for up to 6 hours.

Remember to if you ask a surgeon what should be done about a problem he's most likely going to suggest surgery. Always get a second opinion from someone who isn't going to be making money from your surgery.

Co-Pay at my local clinic: $30

Total Cost for 15 minutes with a specialist who wanted to do surgery: $235

Insurance covered: $48

I had to pay the rest out of my pocket for bad advice.

Co-Pay at Mayo: $30

Total Cost for 15 minutes with a specialist: $36

Insurance covered the $6

Saved from surgery: Priceless

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.