Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ulcerative Colitis, Psoriatic Arthritis, Hashimoto's- What Do I Eat?


healthseeker

Recommended Posts

healthseeker Newbie

I need some serious advice. I have been diagnosed with Ulcerative Colitis, Psoriatic Arthritis, and Hashimoto's Thyroiditis and am trying to eat in a way that will improve my quality of life. I'm a very active 24-year-old female. I've had Hashimoto's and Psoriatic Arthritis for 2 years and was recently diagnosed with Ulcerative Colitis this past December.

After doing some research on my own online, I decided to try eating gluten-free to see what would happen with my arthritis in my middle finger. It was so swollen and stiff I could not bend it AT ALL. I had been prescribed and had taken Methotrexate for about two months prior to deciding to eat gluten-free and had noticed a little improvement. However, once I began eating gluten-free, my finger slowly got better and better and now feels almost completely normal. I have full use of it once again with only a slight clicking in the joint when I bend it.

In the meantime, during the month of December (before I had decided to switch to gluten-free), I was having a lot of pain, cramping, and bloating in my stomach along with diarhea. I had cramps so bad one night I was screaming so much I almost drove myself to a hospital. I ended up getting a endoscopy, colonoscopy, and CT scan done by a GI doctor. He said the endoscopy and colonoscopy looked okay but the CT scan showed an inflamed intestine. He then diagnosed me with Ulcerative Colitis and gave me a prescription for Asacol.

I took my Asacol and was told it might help with the inflammation in my finger. My finger DID improve, but I believe it was due to the gluten-free diet. I stopped taking the horrid methotrexate and had major withdrawl symptoms as my doctor did not inform me to do it SLOWLY. It caused a major flare up in my stomach for over a week.

In the past couple of months, I've remained gluten-free and have felt better than I have in a long time. I don't know if it's all associated with being gluten sensitive, but I no longer have daily headaches, stomach cramping/pain, canker sores in my mouth, or arthritis in my finger. I've also slowly reduced my Asacol and am no longer taking it at all. So far so good!

However, I have a side issue. My thyroid seems to have stopped responding to the Synthroid medication I've been on. I'm on 225mcg and my TSH is an 8.0. Not sure if it's related but I just want to list all of the facts. I'm thinking my doctor is going to switch me to a natural thyroid medicine and see how I respond to that. Natural sounds better to me anyways.

MY QUESTION IS: In addition to gluten, is there anything else you all would reccommed avoiding? I don't want my colitis to return and am nervous I'm at risk for a flare up if gluten wasn't the main cause of it all. I'm willing to eat any kind of diet as long as it means I don't have to be on so many medications!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

One suggestion would be to avoid the nightshade family (potatoes, tomatoes, peppers, eggplant).

Of the three diseases, I have only psoriatic arthritis which did not respond to gluten-free :( In addition to gluten free, I recently eliminated nightshades as the consensus on the forum and other places is that these aggravate inflammation. I am currently on Humira for the PsA so can't tell if lack of nightshades has made a difference or not; however, since my last flare I have been pretty much pain-free on Humira and have only swelling in my left index finger now.

I am glad that gluten free is helping you. It made such a difference to my digestive system. :)

Ms Jan Rookie
MY QUESTION IS: In addition to gluten, is there anything else you all would reccommed avoiding? I don't want my colitis to return and am nervous I'm at risk for a flare up if gluten wasn't the main cause of it all. I'm willing to eat any kind of diet as long as it means I don't have to be on so many medications!!!

You might want to consider all foods that easily clogg the system and/or build up toxins, like dairy, grain products, including rice, soy, corn etc., any kind of sugar or sugarcontaining foods, alcohol, caffeine, red meats etc. Not saying that you need to avoid all of those, only that you should observe your reactions to them and see if you might benefit from eliminating some. And then of course, eat lots of vegetables and fruits - unless you react adversely to those.

You could also go all the way and do an elimination diet, starting with a few safe foods and slowly add others to see how you react. If you have specific intolerances to certain foods, as many here do, it will show up this way.

Many of us who do not heal properly on the gluten free diet have benefitted from the Specific Carbohydrate Diet (SCD) - check out the official website of the book 'Breaking the Vicious Cycle' by Elaine Gottschall. There is a long thread on the SCD in this forum. It seems tough initially, since you have to cut out so many foods, but really it's quite simple once you get into it - it's all about gong back to basics of healthy non-processed foods and eliminating additives and anything else that might be toxic for the body.

Good luck.

Mother of Jibril Enthusiast
However, I have a side issue. My thyroid seems to have stopped responding to the Synthroid medication I've been on. I'm on 225mcg and my TSH is an 8.0. Not sure if it's related but I just want to list all of the facts. I'm thinking my doctor is going to switch me to a natural thyroid medicine and see how I respond to that. Natural sounds better to me anyways.

Just wanted to chime in about this part...

Synthroid doesn't do anything to your thyroid, it just replaces the T4 your body is supposed to be making on its own (like a type 1 diabetic using insulin). How long have you been diagnosed with hypothyroidism? Is it Hashimoto's? Sometimes it takes a while to find the right dose and/or medication. Most importantly, how do you feel? If you still have symptoms then you definitely need to change something.

I'm taking 150mcg of Synthroid and several doctors have told me that's a "moderate" dose. Some people apparently do respond better to Armour... have you seen the website www.stopthethyroidmadness.com? I'm reluctant to take it because it comes from pigs, but the good thing is that it replaces all the thyroid hormones (T4, T3, T2, T1) not just T4, so your body doesn't have to work so hard converting to T3.

Aroostook Newbie

I have a too have a medly of ailments, all auto-immune. First found, Hashimotos thyroiditis, next discoid lupus, Raynaud Phenonmenon, mixed connective tissue disease, sjogrens, and in January found out I have Celiacs. For over 30 years my tsh use to bounce from .03 to 96 (Yes 96, almost coma stage!) 5 different specialists told me I was not taking my medicine or was not taking it correctly. I knew I was, and planned on it since my father passed away due to complications of thyroid. When I found out I had Celiacs it was the answer to all my ailments. Days after starting the gluten-free diet I started to feel better. With the diagnosis my allergist suggested we check all my meds for hidden allergens. We found out that the synthroid I had been complaining was not helping me for the past 30 years was indeed a problem. It contains a tree gum acacia which in people with tree and grass allergies will agrivate them. I was changed to Levoxyl (same as synthroid but different inactive ingredients.) Now am holding steady numbers. Lost my chronic sinus issues too! And best of all am feeling so much better. It has been a long journey for me but I think I may spend the second half century able to live a somewhat normal life! Good luck to you, and hope you find the answers to your mystery. Never give up, keep pushing until you find the right docs that will help you. I did and it only took me 54 years! :)

healthseeker Newbie
I need some serious advice. I have been diagnosed with Ulcerative Colitis, Psoriatic Arthritis, and Hashimoto's Thyroiditis and am trying to eat in a way that will improve my quality of life. I'm a very active 24-year-old female. I've had Hashimoto's and Psoriatic Arthritis for 2 years and was recently diagnosed with Ulcerative Colitis this past December.

After doing some research on my own online, I decided to try eating gluten-free to see what would happen with my arthritis in my middle finger. It was so swollen and stiff I could not bend it AT ALL. I had been prescribed and had taken Methotrexate for about two months prior to deciding to eat gluten-free and had noticed a little improvement. However, once I began eating gluten-free, my finger slowly got better and better and now feels almost completely normal. I have full use of it once again with only a slight clicking in the joint when I bend it.

In the meantime, during the month of December (before I had decided to switch to gluten-free), I was having a lot of pain, cramping, and bloating in my stomach along with diarhea. I had cramps so bad one night I was screaming so much I almost drove myself to a hospital. I ended up getting a endoscopy, colonoscopy, and CT scan done by a GI doctor. He said the endoscopy and colonoscopy looked okay but the CT scan showed an inflamed intestine. He then diagnosed me with Ulcerative Colitis and gave me a prescription for Asacol.

I took my Asacol and was told it might help with the inflammation in my finger. My finger DID improve, but I believe it was due to the gluten-free diet. I stopped taking the horrid methotrexate and had major withdrawl symptoms as my doctor did not inform me to do it SLOWLY. It caused a major flare up in my stomach for over a week.

In the past couple of months, I've remained gluten-free and have felt better than I have in a long time. I don't know if it's all associated with being gluten sensitive, but I no longer have daily headaches, stomach cramping/pain, canker sores in my mouth, or arthritis in my finger. I've also slowly reduced my Asacol and am no longer taking it at all. So far so good!

However, I have a side issue. My thyroid seems to have stopped responding to the Synthroid medication I've been on. I'm on 225mcg and my TSH is an 8.0. Not sure if it's related but I just want to list all of the facts. I'm thinking my doctor is going to switch me to a natural thyroid medicine and see how I respond to that. Natural sounds better to me anyways.

MY QUESTION IS: In addition to gluten, is there anything else you all would reccommed avoiding? I don't want my colitis to return and am nervous I'm at risk for a flare up if gluten wasn't the main cause of it all. I'm willing to eat any kind of diet as long as it means I don't have to be on so many medications!!!

Wow you all are amazing! I can't believe what a fast response I got. This is a great support community! I'm on such a high today from all of the research I found online yesterday. So many people with Colitis are saying again and again that they basically feel normal after switching to gluten-free. I have such a huge weight lifted off of my shoulders knowing that I have hope for a more enjoyable life!

I think I will try some more elimination diet ideas to check for any more possible allergies. I'll be sure to update if I discover anything else.

I did find one more interesting thing regarding my thyroid: I found a doctor's blog that said that he always tests his Hashimoto's patients for gluten-intolerance as they seem to go hand in hand. He also said that patients with gluten issues sometimes have to take an abnormally high amount of thyroid medicine as their bodies are unable to absorb the medicine as well. MAKES SENSE! I'm going to bring this up with my endocrinologist next week.

Thank you all for the excellent feedback. I can't wait to share all of my findings with my family (my dad and grandma who have arthritis, and my aunt with Cystic Fibrosis). I've read that almost all auto-immune related diseases have a chance of improvement after going gluten free. We'll see!

lonewolf Collaborator

I would suggest eliminating soy and dairy. Soy is NOT good for your thyroid and dairy often exacerbates arthritis. Avoiding nightshades can be helpful too, if you don't get relief from gluten-free, soy free and dairy free.

I used to have psoriatic arthritis - very badly. I refused the Methotrexate and Plaquinil that the doc wanted me to take and changed my diet instead, with very good results. I also used to have colitis (not ulcerative though). Today, I don't have problems with either of those things and am healthy and active. I still avoid gluten, soy and dairy.

I am also hypothyroid and take Armour - it works very well for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



healthseeker Newbie
I would suggest eliminating soy and dairy. Soy is NOT good for your thyroid and dairy often exacerbates arthritis. Avoiding nightshades can be helpful too, if you don't get relief from gluten-free, soy free and dairy free.

I used to have psoriatic arthritis - very badly. I refused the Methotrexate and Plaquinil that the doc wanted me to take and changed my diet instead, with very good results. I also used to have colitis (not ulcerative though). Today, I don't have problems with either of those things and am healthy and active. I still avoid gluten, soy and dairy.

I am also hypothyroid and take Armour - it works very well for me.

Thank you so much for the comment. You have no idea how encouraging it is to hear how well you are doing with all of the same issues that I have been going through. All of my autoimmune issues were diagnosed just in the past 2 years and I felt like my life was falling apart. I thought I was too young and healthy for any of this to happen to me. I'm also a volunteer living on the mission field and it's been frustrating communicating with my doctors in the States.

I think I'm going to experiment with the foods you listed. Eliminating those things seems to be helping a lot of people. My only question with dairy is, I've heard that the Activia yogurt is supposed to be really good for digestion. But I guess it's not if it ends up being something you're sensitive to. I'm also hoping to switch to Armour. I keep hearing more and more positive stuff about that, too.

Thanks again for the advice and encouragement! Love the verse you quoted :).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.