Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd And Sports

Holgate

By Holgate
in Coping with Celiac Disease

Recommended Posts

Holgate Newbie
Holgate
Posted

Having just been diagnosed with celiac disease I am now in a bit of a tough position sport wise.

Before my diagnosis my diet on the day of a football match (I referee the game here in the UK) consisted mainly of Cereal, pasta and other high carb wheat based foods.

Obviously now I can't do this and while I have been eating the gluten-free versions I have found that my energy levels have dropped hugely and I am getting tried far too quickly during matches.

I was lucky today that I managed to go 70 minutes before I started to feel my legs go weak on me because I didn't have enough reserve in my body to keep going. However in the past it's been sometimes 10 minutes into the match and I've suddenly felt that drop in energy.

Does anyone have any suggestions as to what food stocks I could use in order to maintain and increase those energy levels. Also what drinks can I have for before during and after the match? Water is pretty much uselss to get me going although it does refresh the body and apparently these energy drinks have gultens in them so my main source of fluid is out at present.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

I drink Gatorade and Propel or Powerade...all of which are gluten free

Try eating something like cashews, peanuts, an apple with peanut butter...these are high in fat and calories and give alot of energy...I eat these throughout games...also sunflower seeds are good

Eggs give you protein and are good to have as well...

Hope this helps :D

Holgate Newbie
Holgate
Posted
  • Author

I will certinally give them a go.

Must admit I am not a fan of peanuts, but I will give them a shot as I always react to Sunflower seeds (and oil).

Bit of a tough balance at the moment trying to eat the right foods and alsy keep my weight down to maintain match fitness but with the end of the season just a few weeks away I can at least use the summer to adjust.

KaitiUSA Enthusiast
KaitiUSA
Posted

If you don't like peanuts and that kind of thing then try something else don't force anything down...

Yogurts are good too(make sure they are gluten-free) I eat Yoplait which will not hide anything....

Ensure has high calorie and high nutrients in their drinks....

Meats are a good source of protein....

There are gluten free breads and cereals as well if that is the kind of thing you are looking for but are not the best for energy unless you have some sort of protein with it.

If you need more info just let me know :D

Holgate Newbie
Holgate
Posted
  • Author

Meat isn't an option for me, been veggie for years and I'm not likely to revert back.

However I have been eating the gluten-free breads and cereals for months now, even before my diagnosis, and find them better than regular cereals, so I will look to replace with those. Protien wise I will have to find some alternitive source to aid the carbs.

Guest BellyTimber
Guest BellyTimber
Posted

I like your new logo. As your proteins used to be met by gluten and as you are a vegetarian, beans pulses and if you can stand them, nuts & seeds, are probably the main ways to go. Some may need soaking first (and then rinsing) before cooking. Lentils have a texture I enjoy, some Indian dishes have lentils in them (I think they are called dhansak).

I need to do more of this, myself.

Be guided by labels of drinks (or make up your own). If you get stuck with brands in the UK, the UK section of the forum is a good place to quiz us other locals about any such thing, I could ask for you at a shop or two if you're not near suitable ones.

Have you got lists of suitable foods, products and ingredients?

May the best teams win!

Holgate Newbie
Holgate
Posted
  • Author

Exeter isn't too bad for shop's there are a couple which I can get ingrediants from. Annoyingly it now involves me having to learn to cook my own food, before hand I could chuck something in the microwave and no problems.

I haven't got my suitable food list yet because I am being refered to a dietician who will be able to go into the diet in more depth, so at the moment I am having to grab around in the dark a bit in order to make do. I know I am still getting gluten shots because of some of the food I am eating, but just by taking out breads, cereal and pasta it has made a diffrence.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

https://www.celiac.com/st_main.html?p_catid=12

Here is a link to lists about forbidden foods, safe foods, and other things to be aware of.

Is this a celiac dietician you are going to see? I had many people tell me I could have Spelt(which I can't its a form of wheat) so make sure they don't tell you anything bogus.

Also does anyone in your house still eat gluten containing foods? If you have a spouse make sure if they eat gluten they mouthwash or brush their teeth before kissing you because of getting gluten ingested.

Their are high protein bars that are available some of which are gluten free. In my previous posts I mentioned some foods, hopefully some of which will help. If you eat veggies before a game make sure you add something with protein in their to give you energy....Good luck :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

    2. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    3. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    4. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    5. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,304
    • Most Online (within 30 mins)
      7,748
    Lynette Eve Lord
    Newest Member
    Lynette Eve Lord
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.