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Elisa Food Allergy Testing... Then What?


mistyfog

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mistyfog Newbie

Hi,

I am confused about my son's allergy testing results - and won't meet with the allergist until next week.

We had the IgE food allergy testing done (corn +1) and no others through an allergist. BUT in the ELISA IgG panel which tested 96 foods, he has many "delayed allergies". The 6+ is the highest allergy rating on this test (Alletess Labs).

Here's a sample:

Food Score

Barley .402 6+

Gluten .907 6+ (highest score)

malt .362 4-5+

Oat .393 4-5+

Rye .390 4-5+

Wheat .796 6+

(he also had "reactions" on the test to 15 other foods, including milk, cheese, yogurt).

Has anyone had Elisa IgG food allergy testing that indicated Celiac? At very least he seems to be gluten-intolerant, according to the test. I asked the allergist's office to run the Celiac panel, but we dont' know results yet.

This 10-yr old has no history of stomach or digestive problems and was a very happy baby. No known family history of Celiac, but we are of Irish stock!

But lately, he is irritable and has mood swings (tantrums or very high highs). His other main problem is a bad rash on forearms and lower legs, which has come and gone over the last few years. The rash is especially bad now - insanely itchy and he can't help but scratch it. We are trying a strong cortisone cream since the family dr. didn't want to prescribe dapsone to a child.

It is SO hard not to dive into the gluten-free diet NOW, since I can see that it is hurting him!!! But I know we need to wait until getting further testing confirmation.

Oh, by the way... we saw the primary care with the allergy results... she said, looks like he needs to go gluten-free. I asked if I needed to see gastroenterologist or dermatologist...she said no !!! She said that Endoscopy was not required for diagnosis and why put him through that if you already know...

I am a bit confused, but reading on this board has helped so much! Thanks for any thoughts you might have on our situation.

Misty in Worcester, Mass.


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mistyfog Newbie

Sorry about the growling smiley... it was not intentional!

misty

plantime Contributor

I don't think the ELISA tests show celiac. If your doctor is willing to write a diagnosis of celiac based on dietary results, I don't see a problem. At the very least, your son is allergic to gluten, which means the exact same thing as being celiac: no gluten, whatsoever. I don't understand why he can't go gluten-free now? Allergists do not do celiac panels, and his doc is not going to order a biopsy, why not start the diet now?

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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