Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sicker


ohsroac

Recommended Posts

ohsroac Apprentice

Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor
Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..

I have nothing to help explain...can only tell you I too am at 6 weeks and the past 3 weeks have had very severe arthritis -- this was only mild before going gluten-free -- am hoping this will improve in the coming months...Celiac Doc is going to run more tests on me to look for reasons other than Celiac for my symptoms... yippee...can't wait more tests (joking).

Take care, I hope you are feeling better soon. :unsure:

ohsroac Apprentice
I have nothing to help explain...can only tell you I too am at 6 weeks and the past 3 weeks have had very severe arthritis -- this was only mild before going gluten-free -- am hoping this will improve in the coming months...Celiac Doc is going to run more tests on me to look for reasons other than Celiac for my symptoms... yippee...can't wait more tests (joking).

Take care, I hope you are feeling better soon. :unsure:

Thanks, hope you feel better as well! Do you, or anyone, think that our bodies have been fighting something that was bad for us and now that we are not eating bad foods, the body gets confused? I don't know, just thinking what in the world, I am a person who hardly ever gets sick.. I get tired and run down and aching body, hardly ever sick.. YIKES... Lately I just can't get well!

cat3883 Explorer

I am 7 months gluten free and feel good but I can tell you the first 2 months were really tough. It was as if I was going through withdrawals. I ached where I had never ached before. I was so exhausted yet I couldn't sleep. Remember we have compromised digestive systems and you are healing. I promise it gets easier. Please Please Please stay on the diet . Another thing I did was cut way back on my dairy. And I do so much better with cooked vegetables vs raw due to the compromised digestive system. Keep a journal of what you are eating and how you feel right after you eat and 2 hours later. It helps to figure out what foods make you feel yucky. Good Luck.

GlutenGalAZ Enthusiast

I remember when I first went Gluten Free I felt sick for about the first 2 months (achey, swore, sick feeling, tired...).

Have you been checked for any vitamin deficiencies?

Before I went gluten free all my life I got sick/colds very easily. After being gluten free and taking vitamins I haven't been sick. Well I shouldn't say haven't... I have gotten the beginning part of colds but nothing compared to how I was in the past.

This past year though I have been taking extra Vitamin C which has really helped.

Hope you stick with the diet. Things should get better.

GOOD LUCK!

Amber M Explorer
Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..

I have been gluten free for about 8 or 9 months now, and it has been an up and down battle of getting well. I have discovered many other food intolerances as well. I already had some other food allergies for years prior too. I have been keeping a food journal as well, (pain) but worth it because I can pinpoint pretty easily now what is giving me problems. Some of it is still a mystery, but I am learning as I go. I had to give up corn about 3 months ago because every time I ate it, I got canker sores and full blown lip cold sores within 12 to 24 hours. (usually right after eating it) Then, last Saturday night I decided to try one ear of fresh corn on the cob. Well, by the next evening, not only did I have all the sores, but the roof of my mouth hurt so bad it was hard to eat all week. All of my neurological problems with gluten came back and I have been a mess all week.

It's still hard for me to believe that one ear of corn could set off all of it again, but I have read that ANY foods with "Similar" proteins as wheat will fool the body into a gluten reaction.

I seem to do okay with some cheese, but I notice when I overload I seem to do worse too. (I came out okay on that test, but who knows) All I know is I appreciate the good days and the others just plain "suck".

I've had a week long neck ache as I usually do too. I just want to get well again and I will not eat the dang corn!

Good luck, I know how hard it is!

mushroom Proficient

I know you have been feeling bad, but know you are not alone. I gave up eating gluten, and within two weeks caught flu which hung around for three weeks over Christmas and New Year. I had one good week and then came down with acute bronchitis and was sick for another three weeks. It didn't seem fair--ruined my whole summer and no reward for my lifestyle change. However, once our bodies have been running on empty for so long it takes a while to refill the tank, so to speak, and regain our immunity. So don't be discouraged; this too shall pass and you will feel better. Make sure you check all your vitamin and mineral levels and replenish anything you are deficient in; e.g., Vitamins D, B12, folate; magnesium, calcium, zinc, potassium. Most of us have one or more of these deficiencies that need to be corrected.

Good luck on feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.