Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Has A Rash At Base Of Spine


mimommy

Recommended Posts

mimommy Contributor

Hi everyone. I think we have yet another new symptom going on. My 9 year old daughter started complaining of an itchy rash yesterday at the triangular area of the base of the spine, above the 'crack' of the cheeks. Looks like a big patch of hives--red, raised, warm.

She's been diagnosed celiac for 5 months, gluten free since August '08. She's never had a rash before.

Could this be DH? Geez, I sure hope not!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

Hi Mini-Mom! I'm hoping it's not DH, too. Does it burn and itch terribly without relief? Has she had a glutening, or eaten iodized anything? Ibuprofen used to set mine off, too. If you don't want the expense of biopsy, just wait it out and be very careful of what she eats. Cut out iodized salt (there are kosher salts and sea salts to replace it), and avoid anti-inflammatories like Ibuprofen.

Once you have the skin reaction like DH, it takes time for it to get out of your skin system. Eventually it won't be a problem anymore.

In spite of the descriptions available, not all of us have it that way. Mine never "mirrored", nor did it come back in the same places. I literally had it everywhere before I got it out of my system. At first I thought it was poison ivy....except it didn't act quite like it. When it spread, and spread, even to the bottoms of my feet, I knew it was something else. My gastro knew what it was immediately.....and tipped her off as to what to look for when I had my endo. I wonder if I would have gotten my diagnosis (finally) if not for that.

My neice just developed a rash, and she's been gluten free for at least a year now. We are sure it is DH and that she's been eating something, somewhere.

Good luck with the rash, whatever it is. Hope it doesn't get any worse.

Jestgar Rising Star

I never had DH, but I have amazingly reactive skin. I get a dry scaly itchy patch anywhere ive had some small abrasive injury, like, my jeans rubbing against my skin. Is it possible she just had a simple itch and scratching it has made it worse?

mimommy Contributor

Thanks guys.

She just told me about it last night. I thought it could possibly be heat rash, but it was quite cold here last night and it's still just as dark red as it was. It does look like poison ivy, but her spine base is the only spot it appears to be. It is about 3 X 5 inches, oblong. She says it itches, but hasn't complained of burning. I googled this morning and, of course the third link down led me here!

https://www.celiac.com/gluten-free/index.php?showtopic=22903

There is a photo there that is exactly what hers looks like.

She hasn't had any anti-inflammatory drugs at all. Probably did get iodized salt, as I haven't cooked much home-made this week.

She has her next check-up with the GI in June, but if it is still there Monday I am calling him.

Jess, I get that too. If my metal buttons rub or touch my skin I get a raised red mark.

jerseyangel Proficient

R--Whatever it is, I hope you get it figured out soon. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    4. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,717
    • Most Online (within 30 mins)
      7,748

    Lellymay
    Newest Member
    Lellymay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.