Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Has A Rash At Base Of Spine


mimommy

Recommended Posts

mimommy Contributor

Hi everyone. I think we have yet another new symptom going on. My 9 year old daughter started complaining of an itchy rash yesterday at the triangular area of the base of the spine, above the 'crack' of the cheeks. Looks like a big patch of hives--red, raised, warm.

She's been diagnosed celiac for 5 months, gluten free since August '08. She's never had a rash before.

Could this be DH? Geez, I sure hope not!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

Hi Mini-Mom! I'm hoping it's not DH, too. Does it burn and itch terribly without relief? Has she had a glutening, or eaten iodized anything? Ibuprofen used to set mine off, too. If you don't want the expense of biopsy, just wait it out and be very careful of what she eats. Cut out iodized salt (there are kosher salts and sea salts to replace it), and avoid anti-inflammatories like Ibuprofen.

Once you have the skin reaction like DH, it takes time for it to get out of your skin system. Eventually it won't be a problem anymore.

In spite of the descriptions available, not all of us have it that way. Mine never "mirrored", nor did it come back in the same places. I literally had it everywhere before I got it out of my system. At first I thought it was poison ivy....except it didn't act quite like it. When it spread, and spread, even to the bottoms of my feet, I knew it was something else. My gastro knew what it was immediately.....and tipped her off as to what to look for when I had my endo. I wonder if I would have gotten my diagnosis (finally) if not for that.

My neice just developed a rash, and she's been gluten free for at least a year now. We are sure it is DH and that she's been eating something, somewhere.

Good luck with the rash, whatever it is. Hope it doesn't get any worse.

Jestgar Rising Star

I never had DH, but I have amazingly reactive skin. I get a dry scaly itchy patch anywhere ive had some small abrasive injury, like, my jeans rubbing against my skin. Is it possible she just had a simple itch and scratching it has made it worse?

mimommy Contributor

Thanks guys.

She just told me about it last night. I thought it could possibly be heat rash, but it was quite cold here last night and it's still just as dark red as it was. It does look like poison ivy, but her spine base is the only spot it appears to be. It is about 3 X 5 inches, oblong. She says it itches, but hasn't complained of burning. I googled this morning and, of course the third link down led me here!

https://www.celiac.com/gluten-free/index.php?showtopic=22903

There is a photo there that is exactly what hers looks like.

She hasn't had any anti-inflammatory drugs at all. Probably did get iodized salt, as I haven't cooked much home-made this week.

She has her next check-up with the GI in June, but if it is still there Monday I am calling him.

Jess, I get that too. If my metal buttons rub or touch my skin I get a raised red mark.

jerseyangel Proficient

R--Whatever it is, I hope you get it figured out soon. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    2. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    3. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

    4. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    5. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,654
    • Most Online (within 30 mins)
      7,748

    Mrs JC
    Newest Member
    Mrs JC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.