Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Get Dh At Base Of "crack"

capecodda

By capecodda
in Dermatitis Herpetiformis

Recommended Posts

capecodda Rookie
capecodda
Posted

I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

  • 4 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Mattray88
Guest Mattray88
Posted

Yep....pretty much just there, or the ocasional scalp and elbow....

mtdawber Apprentice
mtdawber
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

YES! I get them on my stomach, back (all the way down to the base of my spine), hips, back of thighs, feet, arms, elbows, neck and head.... You should get them biopsied by a dermatologist or try a gluten free diet and see if things improve. Something I am noticing and others with more time in will tell you (I'm still new at this) it takes time to clear the DH.

Eliza13 Contributor
Eliza13
Posted

Yeah...get the DH at the base of bum. LOL.

  • 1 month later...
Granny Garbonzo Apprentice
Granny Garbonzo
Posted

yes

I am nearly 50yrs old and only started getting the rash at all in the last couple of years...and wouldn't you know, it is on my bumb at the crack. I don't have any kind of herpes or anything at all, and at first I thought I had touched some poison oak or ivy while peeing in the woods....but then it returned a couple more times, and I realized maybe it was DH, and I asked here on this site, and got lots of responses saying it was the DH. I don't have insurance so rarely go to doctors, but went a couple of times for the rash as I was afraid I had some horrible disease, and no doctor ever said anything about my celiac disease causing the rash.........they KNOW I have celiac disease and STILL didn't make the connection....and since I hadn't had the rash all my life, I didn't think it was DH.....butt (pun intended) here we are with this blasted rash on the behind. More incentive to stay away from any trace of gluten I guess.

casnco Enthusiast
casnco
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

Oh yes! I don't have GH so I was rather concerned when this started! Found an unusual topical cream. Calmoseptic. Your pharmasist must order it. Very weird, it has menthol in it. I was skeptical at first. This isnt an area I want menthol! But it helps stop the itch. Give it a try.

By the way, do have a good remedy for the itch. I know to stay away from gluten. But this is my first sign when I have been CC'd. Bummer! (pun intended)

ItchyAmber Newbie
ItchyAmber
Posted

Got it!!! the bum itch, that is. My husband of two years has picked on me constantly since we got married about my "crabs". :o .. come to find out after 5 years of this weird, horrid, itch from Hell, it's DH! (I also have it on the base of my neck in my hair line, and on my belly)

I am sorry others feel like I do. It makes me crazy sometimes. Still waiting on Celiac panel results... it's been 12 days now since the tests. ARGH.

I'm going to try that cream! I'll try anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

ravenwoodglass Mentor
ravenwoodglass
Posted
I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

I have to say yes to this. I get that type of rash not just when I eat gluten but also when I use most panty liners. Especially the scented kind. I have had DH since childhood and interestingly enough I also have had consistently negative panels. But I was very serious ill before I knew those panels were wrong. I haven't found anything that helps with the rash unfortunately, other than time.

Granny Garbonzo Apprentice
Granny Garbonzo
Posted

Amber

Don't bother with the tests for celiac disease....I think the medical community is making a killing off testing and retesting...

I and my family don't have health insurance, so we "test" ourselves....we just stopped eating gluten for about 3 months, strictly. We know it is celiac disease because, first other members of the family had it and it is genetic, second we stopped having most our symptoms when we stopped eating gluten. Just makes too much sense for most people to grasp that they just don't need to spend a lot of time and money on doctors. Just educate yourself and get control of your own health...the doctors are in it for the money and their by the book following of accepted practices....they are not caring for your health, they are managing symptoms with pharmacuticals or surgery. There are no drugs or chemicals that we need for celiac disease, we just need to stop eating gluten. See a doctor when you really need one.

Sorry, I get frustrated with this doctor business. If I would have listened to doctors they would have removed my gall bladder and said I don't have celiac disease....now 20 years later, I still have my gall bladder and it is working fine, and I just stay away from gluten and all is well....same with my kids and grand kids. So there is the possibility that you may just feel better eating a gluten free diet and you don't really have celiac disease and you may have something else....but what does it hurt to try going gluten free? Easy.

heathen Apprentice
heathen
Posted

yes, i thought it was shingles. it drives me nuts. and it's so unattractive. ironically, it didn't start until after i went gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Advice please

      Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, ther...
    2. nanny marley
      - nanny marley posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Help needed

      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets 6 days...
    3. trents
      - trents replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Advice please

      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity).
    4. Russ H
      - Russ H replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Confused about my results

      There is a good paper here on causes of seronegative villous blunting. The most common is seronegative coeliac disease. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    5. Katiexox
      - Katiexox posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Advice please

      Desperately in need of some advice of possible 🫠 (sorry for the long post but I’m one exhausted mama) My daughter is just gone 2 years old, for as long as I can remember she’s had problems with her stomach, she was diagnosed with a Dairy and Soy allergy so has been dairy and soya free since around 7 weeks old. I’ve been begging the doctors to liste...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,633
    • Most Online (within 30 mins)
      7,748
    skunk
    Newest Member
    skunk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Advice please

      By Scott Adams · Posted

      Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, there are critical reasons not to rule it out yet. First, celiac tests are notoriously unreliable in kids under 3 – their tiny immune systems often don’t produce enough antibodies to register on standard blood work, especially if she wasn’t eating consistent gluten beforehand (which you mentioned was a struggle). Her iron deficiency alone is a glaring clue, as it’s one of the most common signs of undiagnosed celiac in little ones. The fact that she’s already dairy/soy-free yet still suffering suggests something bigger is at play. It could still be celiac (a pediatric GI should consider an endoscopy with biopsies, the gold standard for diagnosis), or possibly non-celiac gluten sensitivity (NCGS) – which doesn’t show up on tests but can cause identical agony. Her recurring mouth ulcers and infections also hint at the immune dysfunction seen in celiac. Until you see the specialist, I’d quietly start a gluten-free trial (after documenting her current symptoms carefully with photos/videos of the bloating and pain episodes). If you see improvement in 3-4 weeks, that’s powerful evidence to bring to the doctors. You’re not being dramatic – you’re being the exact advocate your daughter needs. If the pediatrician brushes you off, look them in the eye and say: “What else could explain ALL these symptoms together? If it’s not celiac, what’s our next step to stop her suffering?” Keep pushing – moms’ instincts are rarely wrong about this stuff. For now, focus on small wins: snap daily pics of her belly to show the distension, ask for a fecal calprotectin test (checks gut inflammation), and know this internet stranger is rooting for you both. She’s lucky to have you fighting for her.
    • nanny marley
      Help needed

      By nanny marley · Posted

      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the prep tomorrow I already have very loose bowels seems a lot to go threw for 6 days ? I'm new to all this do I'm just a little confused here ant help round be appriciated 🙏 also I'm so anxious wat to expect with the colonoscopy has anyone got any advise thanks in advance 🤗
    • trents
      Advice please

      By trents · Posted

      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity). 
    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a good paper here on causes of seronegative villous blunting. The most common is seronegative coeliac disease. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Katiexox
      Advice please

      By Katiexox · Posted

      Desperately in need of some advice of possible 🫠 (sorry for the long post but I’m one exhausted mama) My daughter is just gone 2 years old, for as long as I can remember she’s had problems with her stomach, she was diagnosed with a Dairy and Soy allergy so has been dairy and soya free since around 7 weeks old. I’ve been begging the doctors to listen to me and to look into it, I came across celiac disease a few months ago and pushed for her to be tested. Some of her symptoms are  - Extreme stomach pain, she’s never had a night where she isn’t rolling around in her bed screaming in pain (not just a cry, she will be fast asleep and then let out a high pitch scream and start crying) this will go on all night! - Gas, I know gas is normal but she just doesn’t stop all day and night, and it smells so so bad! You can hear her from the other rooms in the house  - Bloating  - Slow growth and weight gain she’s still in 9-12 size clothes at 28 months - Iron deficiency  - Diarrhoea or constipated, or really mushy  - Constantly tired  - Complains of leg pains and gets cramps - Mouth Ulcers  - Gets infections like ear and tonsillitis every few weeks She’s super super fussy with food and just won’t eat! So trying to get gluten into her wasn’t easy as most days she just point blanks refuses  She had her blood test done last week and they said it came back clear but was showing she was pretty anemic! We are currently waiting for a referral to see a pedantic doctor and her dietician.  Im just completely exhausted, she’s constantly poorly and miserable and I hate seeing her like this and being fobbed of by doctors who just don’t seem to understand that I know my baby and I know something isn’t right!  Can the test be unreliable?  Any advice welcome🥺  
×
×
  • Create New...