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Self-testing


JBaby

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JBaby Enthusiast

Any thoughts or suggestions on how to test for casein and lactose intolerance individualy by consuming foods that have either casein or lactose but not both simultaneously. Also for wheat. Is there a way to test for wheat without the gluten or is that one in the same. I am trying to determine if this is just an intolerance or maybe celiac with out the biopsy/doctor involvement. I been back in forth with doc for almost 2 years and i have now found the "cause" of my misery on my own but now trying to pinpoint myself exactly what I have. At one point i was accused of being preganant and in denial about it. I have not been back since.

I did eat wheat crisp wheat thins(100 calorie pack) with heathly choice soup, I got sick. The soup or the crisps the culprit, is it the wheat or the gluten?

I had a few spoonfulls of Wendys chocolate frosty and got some tummy pain.

I can eat deviled eggs and prepackaged omelets(walmart) with no problem. Minimal cheese in omelet.

After eating natural cheeddar cheese(sargento) had some issuses and bloating.

I dont drink milk, gets on my tongue, i want to barf, same with yogurt.

I know there is a diff in casein and lactose, one is a protein and the other a sugar. I want to find out which I am reacting to. How can I do with no blood tests?

Thanks

JBaby


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MySuicidalTurtle Enthusiast

Hello! First off, wheat will always have gluten but gluten won't always have wheat. As for casein and lactose. . .you can't really separate those since they are both in milk.

Try keeping a food journal and doing an elimination diet.

JBaby Enthusiast
Hello! First off, wheat will always have gluten but gluten won't always have wheat. As for casein and lactose. . .you can't really separate those since they are both in milk.

Try keeping a food journal and doing an elimination diet.

Thank you. I suspected that. So, I guess Whey protein would be out of the question for supplemental protein. Whey has lactose, I think.

MsModelSara Rookie
Thank you. I suspected that. So, I guess Whey protein would be out of the question for supplemental protein. Whey has lactose, I think.

Most Whey protein containers will have an "Allergen Information" space below the ingredients that will tell you if it contains milk/soy ingredients etc.. ANd I would guess most Whey Protein products contain milk products, but you should deffinately read the ingredients list and check for the allergen info on the container or call the manufacturers to ask.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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