Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease & Ambitions

Ms. Skinny Chic

Recommended Posts

Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted

Celiac Disease has been the biggest struggle of my life.

I never had to go through a really big struggle at all in my life.

I have had to delay my educational goals and other ambitions...

I was always so sick. I was deathly ill ( I really used to love pasta& it was killing me)

I couldn't walk for sometime, I had daily fainting spells, suffered seizures from gluten and so much more..

It seems like the spectrum of medical specialist that I seen were endless.

That seems something that anyone who has a mystery illness shares...at least according to mystery diagnosis on TLC

My ambitions were replaced with seeking new medical professionals and running endless test.( SPinal taps, autoimmune disease test and more)

I am probaly one of the most tested people in history... LOL

Those events make your stronger, I think.

My health really used to suck, it is improving currently.

My medical labs look better, than they have iin a really long time.

Some people think that it is only a allergy or a small thing..

Celiac really affected me on so many levels...

It has been a long road for me... I think things will be back to normal in the near future.

I wonder how many of you have had to let go of certain goals???

Your health circumstances prevented you from achieving certain things...

It seems like sometimes you want to do so many things, but realistically your body isn't ready yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mrs. Smith Explorer
Mrs. Smith
Posted

I know how you feel. I used to think celiac stole something from me, robbing me of my health. I am young and should never have been so mysteriously ill. Now I feel like it has actually given me a gift. I see that life is short and limiting at one time for everyone in some way. I thank god my kids are safe and my health will improve. I have also been tested a lot. I think the mental test was harder than the physical, lol. There are days when I hate having celiac, it is really a struggle. I am glad though that I am a better person because of it. I always thought of myself as very healthy and when I had medical problems I was so mad! The goal was to be happy and healthy and that was being taken from me so I had to take it back. We are lucky because celiac is beatable! I plan on beating it anyways! It takes lifelong commitment but I never want to feel that way again, so I will do it. It has definately been the biggest struggle of my life as well and has taught me alot. Im finally acheiving my goal which was health! :D

tarnalberry Community Regular
tarnalberry
Posted

Really, it's just helped me be more conscious that everything is a choice. From avoiding the foods we need to, to the maintaining healthy interpersonal relationships, to having jobs that don't take more from us than they give. Sure, there may be sacrifice in our choices, but there's something we gain in all of them as well, and having that to think about over something as basic as food helped clarify that for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    Lostcha
    Newest Member
    Lostcha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.