Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tried Regular Oatmeal Twice


sixtytwo

Recommended Posts

sixtytwo Apprentice

Last Thursday and this Tuesday, I tried regular oatmeal and it tasted so good with a little brown sugar and milk. However, I was so sick on Saturday night and last night which for me is extreme nausea, light headedness, and exaustion so bad that I could not stand up, I had to go to bed. I used to have these incidents before going gluten-free five years ago and have not had one since going gluten-free. Do you think eating oatmeal could have caused this? On Saturday I thought it was just overdoing it last week, but now that it happened again yesterday, I suspect the oatmeal. FOR SURE, I won't be eating it again and if it never happens again, I will know oatmeal and I do not get along. Do you think it could have been from Thursday to Saturday for the first batch to have caught up with me?

Barbara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I would say it is definitely the oatmeal. Technically oats are gluten free, however oats are generally grown in the same fields as wheat and processed, shipping, etc. in the same facilities. The potential for cross contamination is much higher than most other products. Personally I will only eat oats that come from a dedicated field and facility.

Also, there are many people with celiac, who aren't able to tolerate oats. I'm not sure how common that is, but I have heard people say they aren't able to tolerate them.

If you are looking for an instant gluten-free Oatmeal, I recently found Glutenfreeda's Instant Oatmeal. It's delicious. It comes in 3 varities. Apple Cinnamon with Flax, Maple Raisin with Flax and Banana Maple with Flax.

For baking, I use the Cream Hill Estates oats.

Juliebove Rising Star

Regular oatmeal is not considered gluten free. Because of the way it is grown, transported, etc. it is prone to cross contamination. Get some gluten free oatmeal. Costs more but it's worth it.

happygirl Collaborator

I definitely think its the oatmeal since regular oatmeal, due to processing, is not gluten free. I hope you feel better.

There are gluten free oatmeal options, including a new instant gluten-free oatmeal.

tarnalberry Community Regular

it's worth adding that since avenin, the oat protein, and gliadin, the wheat protein, are structurally so similar, approximately 10% of celiacs DO react to pure, truly wheat free,oats exactly the same as they do to wheat.

dilettantesteph Collaborator

I believe that I am one of those that react to oatmeal. I had gluten free oatmeal once and got so sick that I am not going to try it again to be sure.

loco-ladi Contributor

Bobs red mill makes something called "wicked good hot cereal" or something like that anywaqys, lol its kinda a cross between oatmeal and cream of wheat which I like when I have an oatmeal craving.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice

im surprised if it takes 48 hours for a reaction, personally i get reactions in 2-3 hours tops, given mine are lower GI but i still would expect your reactions a bit quicker

i dont eat oat meal ever but my mom makes sun flower seed cookies with quaker oatmeal cookies and while i dont know honestly if they hit me or not i dont think they gave me much of an issue if any

-matt

LuvMoosic4life Collaborator

I have had a horrible reaction to gluten-free oats. Not to be too descriptive, but basically the whole day after was cramping and yellow D non stop.... :ph34r:

mysecretcurse Contributor
it's worth adding that since avenin, the oat protein, and gliadin, the wheat protein, are structurally so similar, approximately 10% of celiacs DO react to pure, truly wheat free,oats exactly the same as they do to wheat.

I agree. I consider oats the same as wheat and wouldn't trust gluten free oats any more than the regular.

I ate oats once and got really sick and after that I would never do it again. Exact same reaction as to wheat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.