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How Strict "gluten-free Diet"?

mellowyellowmushroom

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mellowyellowmushroom Rookie
mellowyellowmushroom
Posted

I just went gluten-free after diagnosis.

How strict to all of you or any of you have to be about what foods you ate while healing? I seem to be having mild reactions to most complex carbs, maybe some fruits...and I'm worried. Though I haven't had any gluten explosion since I ate cookies last week before the diagnosis.

Did any of you develop food allergies? Did they go away? I can't do lactose either.

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ang1e0251 Contributor
ang1e0251
Posted

I react still to some complex carbs. I did react to fruits in the beginning but after a few months was able to reintroduce those. I'm off most carbs right now as I'm dieting and I have to say I've never felt better. I think I will continue to limit carbs going forward. I guess my system is just happier without them.

mamaw Community Regular
mamaw
Posted

How strict do you need to be? Answer:100% for life. Why cause more grief by cheating now & then!

I think many find that once they come into tune with their body they start noticing other things that cause discomfort. People will say oh it is just gas or indigestion & take a tum or something & pass it out but I feel the body is reacting to something but it doesn't jump out & scream so usually it is just overlooked as common. BUt for us who now look at our intestinal system more closely are finding that many other things come into play & we need to address those issues as well to get to a healthy state....

Humans pay little attention to what their bodies are crying out . I believe that illness & disease starts in the digestion ( intestinal tract) & next the nervous system. We all need to keep our intestinal tract healthy for a healthy long life...

blessings

mamaw

mellowyellowmushroom Rookie
mellowyellowmushroom
Posted
  • Author

Thanks.

My system needs carbs as I'm an athlete--so I hope it needn't be limited much forever.

Anyone else though who ran into other bad allergies? or who felt highly sensitive on first few weeks/months sans gluten?

chasbari Apprentice
chasbari
Posted

I found, initially, that I couldn't tolerate any "safe" grains like corn and rice. Soy was a big source of my mistaking it for cross contamination. Dairy is on the forbidden list for now as well. I am now getting to the point where I can tolerate exercise although I have to watch overdoing it as I have a proverbially small "gas tank".. at least for now. Much better than I was 5 months ago! I have found that until I went Paleo I was only feeling "not worse" instead of better. Once I went radical with that and started to heal even my rheumatoid arthritis started to clear up. Five months have flown by and now my complaints are of overdoing things I couldn't even dream of five months ago. Good luck with your diet and healing!

mushroom Proficient
mushroom
Posted
BUt for us who now look at our intestinal system more closely are finding that many other things come into play & we need to address those issues as well to get to a healthy state....

Humans pay little attention to what their bodies are crying out .

I was paying attention before I stopped eating gluten; I just didn't know what it was trying to tell me. I had commented many times that I felt "toxic" but did not know the cause of the toxicity. My body is still telling me something I am not in tune with yet; I still have itchy skin, not bad but mildly. Because of my psoriasis I am used to itching so this is something I have been ignoring but at some point will have to address. I am so afraid of the thought that I might have to eliminate all dairy, because I did it for three weeks and felt absolutely horrible with GI upset, etc., without my yogurt, so didn't really think that was it. But don't know what it is yet. :(

Yes, all these additional intolerances are a pain....

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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