Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How The Hell Am I Supposed To Travel?


jasonD2

Recommended Posts

jasonD2 Experienced

My friend wants to take a trip to South America w/ me and I would love to go, however, the amount of physical grief I would be in is just not worth it. Walking around constipated, bloated and having to urinate every 5 seconds...my god my life is ruined!!! ill never be able to do anything cause of this condition...ever!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

If you figure out the things causing your symptoms then you should be fine. Before I was diagnosed I didn't let being ill stop me. I still traveled, played sports, and went to school. Since you know what is making you ill it should be easier to fix. There are simple ways to maintaining this diet overseas, as well. When I went to Europe I did just fine! When in doubt, stick to fruit, veggies, and rice. Even if you have some issues, don't let it stop you! You deserve to travel even if you aren't feeling well and you can handle yourself.

You may also want to seek a therapist's help. When I first when gluten-free and my symptoms went away so suddenly I developed even worse anxiety about them coming back. Talking to a therapist helped immensely.

Good luck and I hope you do go with your friends!

Nikki69 Newbie

Hi Jason,

I've only been diagnosed a month and still getting my head round it so can understand the grief you are going through. However, what all the others have said to you makes sense. It is something, in time, that can be controlled and you will feel better. Yes things are difficult right now and your life feels as though it will never be the same again because it has changed. It won't be the same but it will be better because you will become well again.

It doesn't have to stop you living your life whilst you are learning to adapt. Get as much advice as you can and stick to plain fresh foods whilst you are away. Yes it is boring, but only the food is a tad boring. The point is you will be away with your friend enjoying your trip so will be worth it :)

Hope you are doing ok, take care, Nikki

ang1e0251 Contributor

I don't really know where you're traveling, but my husband is Colombian and I spent a couple of stints living there. They really eat very little flour which is probably why I felt so good while I was there. They eat corn cakes called arepas which I still eat and most of their meats are fried or boiled. No breading. Their diet is rather bland. No one bakes in the home. If baked goods are wanted, they go to a bakery. We ate very little baked goods in the home I lived in, which was typical of their diet. I believe it is similar to the diet in most of South America with regional variations, of course. And the other posters are right, just stick to safe foods when in doubt. Take some food for backup in your luggage like energy bars and canned meats that are safe.

You'll be fine. Don't panic, this is a big change but life goes on. You'll get the hang of it in no time. The biggest thing to learn is to overcome the fear and anxiety. Get some help with that if you need it.

SLB5757 Enthusiast

I agree with the other posters. It is very difficult and at times debilitating. I have MULTIPLE food allergies and intolerances and like I was stuck unable to do anything social. The thing my father told me was " Stacy - you are going to feel crappy no matter what. You may as well be feel crappy and be doing the things you enjoy doing rather than feeling crappy and feeling sorry for yourself moping around at home".

I decided that I am going to have pain and bloating and distention and the big "c" no matter what I do because my many allergens. I have chosen to so everything that everyone else does even if it means I have to eat only rice or live on vitamins and ensure.

The more you stress and worry about the "cant's" - the worse it will all become. Focus on the positive things. if you can't find any positives - MAKE SOME. Start doing little things that make you happy or content and I promise you it acts almost as a magnet - you will attract more positive into your life. Like attracts like - and as soon as you change the mental - the physical is sure to follow (even if slowly).

Just do what you can to lessen your symptoms while away - be prepared - but definitely do NOT forgo the trip. You deserve to have fun. You will probably be having such a good time with your friend that your symptoms will naturally lessen.:)

missy'smom Collaborator

Many people here have traveled oversees successfully including myself. It can be done. Planning ahead, doing your homework, having some understanding of the culture/lifestyle and food is helpful. Stick with the basics, meat, veg. and rice. Enjoy the unique local seasonal fruits and veg. Appreciate the change of pace, change of scenery etc.

jjc Contributor

I need to travel for work and I'm really nervous about it too. I'm going to have to do tons of calling beforehand - to the hotel and to the restaurants around it, so that I know how much food I need to bring with me!! That will be funny, at the airport having TSA open a huge suitcase full of gluten free food ... :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Pack things you can eat in your suitcase--pack minute rice, an immersion coil and electricity converter/adaptor, foil packs of chicken, salmon, tuna, whatever you feel your body can handle.

Arroz con Pollo is a dish in most restaurants--it's chicken and rice, and usually does not contain any wheat, soy sauce, flour, etc.

Print out the Triumph dining cards in Spanish and Portuguese, and show them to the restaurants when you order, if you and your friend don't speak the language.

FMcGee Explorer

I'm going to South America this summer, too, actually - to Ecuador. My boyfriend used to live there and will have been there for two months before I arrive, and he's going to do some scouting, so I'll let you know what he finds out here (if you're not going to Ecuador, I'm assuming there will still be more broadly-applicable information). He's assured me that they mostly eat rice with chicken or vegetables, and a lot of products are made with manioc and other gluten-free flours. Also, there is a lot of fruit (just peel it before you eat it), which can tide me over if needed. The best part is there is a lot less processed food there, so it's easy to eat healthy if you don't go nuts on cheese and whatnot. I spent some time in Costa Rica before being diagnosed, and felt freaking fabulous the whole time because I ate rice, beans, chicken, and fruit the whole time (a less-extreme version of the Hasslebeck experience?).

Also, if you're going to Brazil, you're going to be in a good place. A friend of mine has spent extensive time there and her stepmother has celiac disease, so she pays attention to things like that. Apparently Brazil (and Argentina, rumor has it) are aware of the disease and are pretty good about food labeling. If you don't speak Spanish or Portuguese, it's probably worth learning some of the vocabulary before you go.

Finally, I ordered some restaurant cards from Triumph. My boyfriend is fluent in Spanish and Quichua, but I still think it makes sense to have them in case I'm ever eating on my own or to ease a chef's mind about what I can have.

In other words, go on the trip! It'll be worth it, and you WILL be able to find things to eat. Just get vaccinated a month before you go, only drink boiled water, and pack nonperishable gluten-free snacks in case of emergency. :)

mysecretcurse Contributor

I'm also planning on doing a BIG backpacking adventure to south america at some point before I turn 30. Rock on.

I thought you might like to read this thread I posted when I got back from my last big adventure in South East Asia:

https://www.celiac.com/gluten-free/index.ph...ackpacking+asia

^Hopefully that gives you some hope. It's not always easy. But is it worth it? Hell YES. Don't let celiac stop you from living. :) Where there is a will, there's a way. It's cheesy but true!

mattathayde Apprentice

ya i am worried about my first real travel since going gluten-free that i will be taking in aug. i really only care about not being sick the first 2 days then the rest of the week i dont care if i end up in the hospital but the 2nd day i am at this even is a competition that i need to be good for (and its the last time i can compete since i will be too old next time this event come around so i want to be able to give it my all)

the people putting this on only ask if you have an allergy to wheat so i am going to call and be annoying as we get closer to the even because if i get fed gluten i am going to flip out and be a rather pissy person (not as a side effect but because being that they are supposed to provide food that i am paying for they can give me food i can eat)

but for traveling abroad, a lot of food seems to be simpler and not all the random junk tossed in it. you can get a card in the local language(s) that explain your dietary restrictions so a waiter can help you. you might want to look up "GFRoadWarrior", he has a blog about traveling and eating gluten-free and you might get some tips/tricks/ideas

-matt

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.