Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Expose Child That Has Not Been Exposed


marmar

Recommended Posts

marmar Newbie

My daughter has never been exposed to gluten but I want to get her tested and our labs/insurance only do the antibody test. She is 18 months old. Does anyone know how much gluten (I think it's half a slice of bread per day) and for how long she needs to be exposed before the test will work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

I believe it's the equivalent of four slices of bread per day for at least a few months.

psawyer Proficient

I've heard a smaller quantity than four slices, but I don't know if half a slice is enough. Mind you, total body weight may be a factor. A child of 18 months would likely need less in absolute terms to trigger the same magnitude of immune reaction. Three or more months would still be the duration, I would think.

ravenwoodglass Mentor

The rate of false negatives in young children is high. For that reason in countries that screen routinely they wait until age four to do so and then they test again at puberty if the child has no symptoms. Is she is gluten free because your home is gluten free or is she gluten free because she developed issues when you added gluten in previously?

Jestgar Rising Star
The rate of false negatives in young children is high. For that reason in countries that screen routinely they wait until age four to do so and then they test again at puberty if the child has no symptoms. Is she is gluten free because your home is gluten free or is she gluten free because she developed issues when you added gluten in previously?

I agree with raven. You could keep her gluten-free until she's older, or give her gluten now and see if she reacts. If you're worried about damage without symptoms, don't change her diet.

  • 1 month later...
marmar Newbie

We've started giving her some gluten every day. I'm a celiac and am worried she may have inherited it.

So far, she hasn't had any symptoms but even if she does test negative I may keep her gluten

intake low until she's older. Why does the antibody test not work in young children?

TotalKnowledge Apprentice
We've started giving her some gluten every day. I'm a celiac and am worried she may have inherited it.

So far, she hasn't had any symptoms but even if she does test negative I may keep her gluten

intake low until she's older. Why does the antibody test not work in young children?

I would think it would be safer to assume she has it. There really is no reason that I can think of that a child that young *should* eat wheat. It can be avoided much easier than adults can avoid it.

Right now she can't tell you how the introduction of gluten is effecting her. An older child can more easily express their discomfort with any of the problems that can be associated with gluten intolerance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jana315 Apprentice

I'm not a DR. but I'm gonna guess that antibody results often give false negatives in little ones because, basically, their immune system is very immature. For instance, if you speak to a seasoned allergist or Dr., they will tell you that babies less than 12 months of age, very, very rarely can have true allergies to any trigger - their bodies just don't produce mature immune system responses. So, this may apply to both Iga & Igg antibodies - just a guess on my part.

Jana

LDJofDenver Apprentice

One thing you might consider is genetic testing (now or a couple years down the road).

Mainly because it would show whether or not she carries the gene for it. If she doesn't, gluten may be something she doesn't need to worry about in her dietary future.

Here's a link to 2 articles about Genetic Testing:

Open Original Shared Link

and 10 Facts About Genetic Testing:

https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html

Here are a couple links to places where you can get the tests done:

www.kimballgenetics.com and www.enterolab.com

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.