Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oat Contamination....


motherduck5

Recommended Posts

motherduck5 Newbie

Hello,

I'm new to the forum and have been reading some previous posts, and then wondered where in the heck have you all been the past 3 years? I'm so glad to find this forum!

I have a 3 yr. old with celiac. I had read that oats themselves were gluten free and it was the cross-contamination and the factories that "glutenized" them. My son loved oatmeal, but it took 6-9 months for him to react, but boy did he. He went back to sleeping all day, and all night, intolerance to any noise, and a new one, severe stuttering. Boy was that scary. When I pinned down oats and stopped feeding them to him, within 4 days the stuttering stopped along with everything else.

Now we're at the "purposefully feed your child a food that makes him sick to get a reaction" stage I HATE and I wondered something. If the contamination happens at the factory, what if I buy my own oat groats and flake them myself? If the oats themselves don't make him sick, than in theory, the home flaked oast won't either?! I own a flaker, and oat groats are WAY cheaper that gluten-free oats, so doing it won't be hard.

ANY comments would be welcome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

I guess the big question would really be what happened to the groats before they came into your kitchen - how were they harvested, where were they stored, how were they packaged, etc. We don't fully understand why some people can tolerate them and others can't beyond the proteins being slightly different and technically not being gluten so it won't hurt and certainly would rule out cross contamination. I'd give it a try. Let us know how it works out!

irish daveyboy Community Regular
Now we're at the "purposefully feed your child a food that makes him sick to get a reaction" stage I HATE and I wondered something. If the contamination happens at the factory, what if I buy my own oat groats and flake them myself? If the oats themselves don't make him sick, than in theory, the home flaked oast won't either?! I own a flaker, and oat groats are WAY cheaper that gluten-free oats, so doing it won't be hard.

ANY comments would be welcome!

Hi,

The majority of the contamination occurs in the Field, Oat Crops are rotated with Wheat Crops!

'Rogue' wheat generally grows along side the oats and is gathered up with them during harvesting.

.

In theory. if you bought oats unhulled and could identify whole wheat among the oats and seperate and remove any wheat dust particles from the oats then they MAY be safe.

.

There are brands of 'Safe' 100% oat meal.

What's your childs health worth ??, Don't cut corners!!

.

Best Regards,

David

FMcGee Explorer

Right, it's field contamination that's the issue, not the processing. I just saw my dietician on Wednesday, and she told me she has many celiac patients (where are these Gainesville people, and why aren't they on the board?!) who eat oats with no problem. They buy the expensive uncontaminated oats. Apparently the problem for a lot of people is that their systems just can't handle food that's that hard to digest.

irish daveyboy - I admit I'm a bit hesitant to say this, but is it our job to tell a mom not to cut corners and guilt-trip her about her son's health? I had a knee-jerk reaction to your post, and I don't mean to offend you, but if I posted about my (hypothetical) son's health and someone tried to scare/guilt me, I don't know if I'd come back.

irish daveyboy Community Regular
irish daveyboy - I admit I'm a bit hesitant to say this, but is it our job to tell a mom not to cut corners and guilt-trip her about her son's health? I had a knee-jerk reaction to your post, and I don't mean to offend you, but if I posted about my (hypothetical) son's health and someone tried to scare/guilt me, I don't know if I'd come back.

Hi,

Never be afraid to speak your mind! I believe that's what the constitution is all about 'free speech'

.

I wasn't try to guilt trip anybody, maybe I shouldn't have made my comment so short and to the point.

.

Would this way have been better (I'm not being flippant here)

Please don't take chances with your childrens health, saving money is fine if,

it doesn't cause unnecessary suffering for those consuming it?

.

An old Irish saying 'save a penny and spend a pound or

save a cent on a purchase and spend a dollar on medication.

.

I need to correct slightly my previous post,

rotation crops with Oats can be either Barley or Wheat.

.

Best Regards,

David (posting with best intentions)

.

FMcGee Explorer
Hi,

Never be afraid to speak your mind! I believe that's what the constitution is all about 'free speech'

.

I wasn't try to guilt trip anybody, maybe I shouldn't have made my comment so short and to the point.

.

Would this way have been better (I'm not being flippant here)

Please don't take chances with your childrens health, saving money is fine if,

it doesn't cause unnecessary suffering for those consuming it?

.

An old Irish saying 'save a penny and spend a pound or

save a cent on a purchase and spend a dollar on medication.

.

I need to correct slightly my previous post,

rotation crops with Oats can be either Barley or Wheat.

.

Best Regards,

David (posting with best intentions)

.

Thanks for understanding the spirit in which I made my comment! I think we're all on the same page here.

swalker Newbie

MacCann's Irish oats are grown nowhere near wheat and are one of the expensive brands they're talking about. I just bought 50 pounds of oats from Honeyville Grains that are reportedly safe but I haven't opened and tried them to give you my own opinion. I did find that we weren't digesting any of our whole grains; I grind brown rice, teff, gluten free oats myself, until I started soaking the flour with the water from the recipe (minus 1/2 cup if I have to bloom yeast) with


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



irish daveyboy Community Regular
MacCann's Irish oats are grown nowhere near wheat

And Nowhere near Ireland either !!

.

Sorry I couldn't resist that, (I know it's only a brand name)

.

I'm in a funny Ha! Ha! humour today.

.

Best Regards,

David

ChemistMama Contributor

Swalker,

McCann's are not gluten free.

Open Original Shared Link

Also, it says so right on their web site.

Open Original Shared Link

"But we cannot guarantee that McCann

swalker Newbie

I am SOOO sorry. It was on this website that I originally heard about MCCann's and now I see both this site and MCCann's themselves have indicated they are cross contaminated.

sixtytwo Apprentice

There are, I think, those of use that just can't eat oats, too. I think I am one of them. It is specially interesting as I am gluten intolerant/not celiac. I just don't do oats either and feel much better.

curiousgeorge Rookie

I used to eat McCann's occasionally and would sometimes feel something. I recently made a purchase from Open Original Shared Link The oats are really yummy and tastier than any I've had before.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.