Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can This Be Happening?


Lexi

Recommended Posts

Lexi Enthusiast

I FEEL so CRAZY!! I have been to SO MANY doctors and none of them can figure out what is going on with me. My health has been one big Nightmare over the past year!! I hope someone can say they relate. I was diagnosed with Celiac Disease about 2 years ago now. I was also just recently diagnosed with Fibromyalgia, and candida. I have a lot of muscle pain and back pain, and a whole long list of other problems. Anyway, I finally got serious about treating the candida because I am so sick all of the time. I started taking Flucanazole and some really good probiotics. I also tried some activated charcoal. Anyway, ever since starting the Flucanazole, I have had the worst back and muscle pain of my life. My back spasms constantly, and the pain radiates up my spine and into my shoulders and neck. My lower back is so bad that I can barely walk. I have always had pain in these areas, but NEVER so BAD!! I am going crazy from the pain - even on really strong pain medicine. Does anyone think that this could possibly be from the medicine or die off symptoms, or is this a fluke? I have been unable to care for myself or my kids from 5 days now, and can take it no longer. I am going to stop the flucanazole tonight. The problem is that I feel like I am NEVER going to get rid of this yeast problem now. My gynecologist is the one who prescribed the medicine, and my family Doctor advised me not to take it because she said that this whole yeast thing is just in people's heads. She told me to quit worrying about yeast, and focus on my other medical problems. I couldn't believe she said that because I really did like her as my Doctor. I had also tried Candex and Yeast Cleanse with no results. I am going to a rhematologist on Thursday. Anyway, has anyone else ever had such a bad reaction to flucanazole? I am just praying that by stopping the medicine that I can get some pain relief. If not, I don't know what to do next.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nasalady Contributor
I FEEL so CRAZY!! I have been to SO MANY doctors and none of them can figure out what is going on with me. My health has been one big Nightmare over the past year!! I hope someone can say they relate. I was diagnosed with Celiac Disease about 2 years ago now. I was also just recently diagnosed with Fibromyalgia, and candida. I have a lot of muscle pain and back pain, and a whole long list of other problems. Anyway, I finally got serious about treating the candida because I am so sick all of the time. I started taking Flucanazole and some really good probiotics. I also tried some activated charcoal. Anyway, ever since starting the Flucanazole, I have had the worst back and muscle pain of my life. My back spasms constantly, and the pain radiates up my spine and into my shoulders and neck. My lower back is so bad that I can barely walk. I have always had pain in these areas, but NEVER so BAD!! I am going crazy from the pain - even on really strong pain medicine. Does anyone think that this could possibly be from the medicine or die off symptoms, or is this a fluke? I have been unable to care for myself or my kids from 5 days now, and can take it no longer. I am going to stop the flucanazole tonight. The problem is that I feel like I am NEVER going to get rid of this yeast problem now. My gynecologist is the one who prescribed the medicine, and my family Doctor advised me not to take it because she said that this whole yeast thing is just in people's heads. She told me to quit worrying about yeast, and focus on my other medical problems. I couldn't believe she said that because I really did like her as my Doctor. I had also tried Candex and Yeast Cleanse with no results. I am going to a rhematologist on Thursday. Anyway, has anyone else ever had such a bad reaction to flucanazole? I am just praying that by stopping the medicine that I can get some pain relief. If not, I don't know what to do next.

Lexi, I'm so sorry that you're having these problems. I don't know if my experiences will help or not, but I too have fibromyalgia. The area in which the pain is worst is my back. I've been in a wheelchair for several months now because if I try to walk more than a few yards or stand more than a few minutes I end up with excruciating pain in my back. My son-in-law also has fibro, and his back is his worst spot too.

I keep hoping that the longer I am gluten free, the better I'll feel, and in many areas that's true, but as for my back pain, that's not getting better. Yet.

The back and neck pain you're experiencing is fairly typical for fibro, according to what I've heard. I don't know if it's related to your medication. Some meds can make it worse, I know. My fibro pain has, at times, become so incredibly bad that it actually hurts to breathe.

The side effects of flucanazole as listed on www.drugs.com are:

Common side effects: changes in taste; diarrhea; dizziness; headache; nausea; stomach pain; vomiting.

Uncommon/dangerous side effects: severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); dark urine; diarrhea; fever; hoarseness; irregular heartbeat; scaly, red skin over a large portion of the body; seizures; sore throat; swelling of your hands; unusual or severe stomach pain; unusual tiredness; yellowing of the eyes or skin.

So it doesn't sound as though the flucanazole is the problem, but you never know. Different people have different reactions.

I do understand....it took me many years and about 10 different doctors before I finally put all of the puzzle pieces together. I have seven different autoimmune diseases plus fibromyalgia. I'm dealing with it the best way I know how.

I hope you find some answers soon; you're in my thoughts and prayers....

JoAnn

YoloGx Rookie

I've had a tough time getting rid of the yeast too. Recently I went off all grains and fruit except for lemons (I sweeten them with stevia to make lemonade). It seems to be making a big difference. I have been using squash as an alternative to grains. I recently read something about the official Specific Carbohydrate Diet. It looks like it could help--they say its very good against both candida overgrowth and fibromyalgia as well as celiac and other auto immune conditions. Unfortunately I am allergic to some of its mainstays like fruit and nuts however...So I tread a middle ground between the specific carbohydrate diet and the paleo diet plus my own additions and subtractions.

As far as the flucanozole--by going off it you should be able to tell if its the drug getting you or not. It also just might be too strong for you at this time. Perhaps take half doses? I personally think natural is better but sometimes one doesn't have the patience for natural. I have had intense die off symptoms with anti yeast drugs myself. Whatever path I have taken with this, the first five days are the worst. It then seems to taper off...So maybe don't be premature in giving up your battle with this. Plus I highly suggest exercise as a way to counteract this, plus detox herbs I have suggested elsewhere on this forum. And lots of water. Saunas could help too...

Bea

Tigertail Newbie

Hi Lexi, I don't know if this will help you but it is worth a try. I have been having your exact same problems plus a long list of others, but as for your yeast you might want to go to a dermatologist. I have yeast problems really bad, so when I started taking some fungal medications for a fungal problem in my sinuses I just thought it was a worse yeast infection but it wasn't. I went to my dermatologist and found out that it was a "Fixed Drug Eruption" from the fungal medication. My body is just getting sick of all the medications and is now fighting back by causing me to break out with what resembles a horrible yeast infection but is not. It has now happened with other medications and as soon as I stop them it starts getting better. No other doctor, not even my gynecologist knew this, it was my dermatologist. Good luck and I hope you can get this taken care of because if you have this as bad as I think you do, then you are miserable. I know I was. Take care, Lacey

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.