Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency?


Seamuskitty

Recommended Posts

darlindeb25 Collaborator
The difference between taking Vitamin D once a day and once a week is insignificant

So Ted, do I understand this to mean I am wasting my Vit D by taking it daily? Would I be better off by taking say 6000 IU's once a week?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MarathonGirl Newbie
Very interesting about putting it ON the skin. I didn't know you could do that...

I will be eating gluten for another week or so...not sure when the endoscopy is yet. Hopefully after I quit eating gluten and start to heal I will be able to take a supplement and it will be absorbed.

Full on tanning isn't possible out in the break area at work... B) But I have been sitting out there during my lunch break. I won't let myself burn because I can't stand it out there for very long. Its extremely hot and sunny where I am.

Thanks very much for the info. :)

The other thing you should try doing is weight-bearing exercise. I started walking and then running years before I got my celiac diagnosis. I started exercising because I was so frustrated with being sick all the time, and thought the exercise couldn't hurt. When I finally got the Celiac Disease diagnosis about 9 years later, I was happy to find out that at least I did NOT have either osteopenia or osteoporosis. The vitamin D I got by running outside combined with the weight-bearing exercise kept my bones strong, even though my gut was a disaster. Plus exercising makes me feel that I am more in control. The 9 years I was sick and misdiagnosed, and told that since I was still complaining I wasn't better it must be because I needed psychiatric help, the running kept me sane. I ran the Chicago Marathon before the diagnosis, and the Boston Marathon this spring. In December I plan to run the San Antonio and the Honolulu marathons. (See my posting about American Airlines "no-gluten-free business decision for overseas flights". ) Good luck with your biopsy. Drink some good beer while you still can pre-biopsy! I really miss good beer now that I am gluten-free. Redbridge is better than nothing, but I miss good beer.

mindyandy420 Apprentice

I am low on D25 hydrox???? I this the same thing??

Ivy Rookie

Went through the standard mega dose of 50,000 units once a week for many months. Then the Dr. moved me to 1000 a day. My pharmacy amazingly enough carries Gluten Freeda's which is D3. Dr. retested after two months of 1000 a day and levels were good.

Undiagnosed too long, I have permanent damage. With malabsorption, I think it's a good idea to have nutrient levels checked every so often.

D deficiency isn't unusual in the non celiac disease population.

Ivy

neesee Apprentice

I found this online. I think it's interesting. It may pertain to this subject.

Open Original Shared Link

fig girl Rookie
Thanks Tiff--

Wow you must have felt terrible with that deficiency! I'm glad you felt better eventually. I hope it doesn't drop down again though.

Its good to know that there are folks who care!! Being deficient in Vitamin D really makes you feel rotten!

I am seeing the "regular" doctor tomorrow and hopefully she will prescribe something for me. Meanwhile I sat on our screened in porch for most of the weekend and got as much sun as I could stand. I have been taking an over the counter supplement too. I do feel a bit better already-- :D

Hi,

My Dr. is currently testing my D3 levels to try and figure out my maintenance level. I started out with my level at 23 taking 2,000 iu's per day and i was feeling pretty bad (depressed feeling...just not my normal self and more joint pain and tingling in hands and feet) and my Dr. increased it to 5,000 iu's per day and within a day of the increased dosage i felt so much better. After a month on the 5,000 iu's my level increased to 43. She dropped it down to 2,000 iu's again and will test it next week to see what my maintenence level is. I have a feeling it will be higher than 2,000 iu's because i could tell a difference when i dropped it back down - symptoms previously mentioned came back a little but i'm sticking it out w/the 2,000 iu's to see what my blood test is. Also, i seemed to absorb it better taking the 1,000 iu's 5 times a day vs taking 1 5,000 iu capsule once a day. My symptoms came back a little just taking the 5,000 capsule once a day.

Good luck with it and hope you feel better soon! :)

TotalKnowledge Apprentice
Very interesting about putting it ON the skin. I didn't know you could do that...

I will be eating gluten for another week or so...not sure when the endoscopy is yet. Hopefully after I quit eating gluten and start to heal I will be able to take a supplement and it will be absorbed.

Full on tanning isn't possible out in the break area at work... B) But I have been sitting out there during my lunch break. I won't let myself burn because I can't stand it out there for very long. Its extremely hot and sunny where I am.

Thanks very much for the info. :)

You must be close to me. Very hot, and the sun can be brutal. I thought living near the beach would be fun, nope just really hot, and now I never make it out to the beach anymore. I went more when I lived further away.

Thanks for the thread. I had not put much though into what vitamin deficiencies I might have. I have been taking a multi vitamin and have just started to take a multi mineral supplement, I will see what my vitamin D adds up to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer

I couldn't tolerate the D2. It upset my stomach and I was exhausted for a couple of days. I take D3 the gel form 3000 units a day. It has made a huge difference! I no longer have leg cramps, muscle aches and joint pain. I read that D3 helps heal a leaky gut. Lack of D actually causes gluten intolerance and leaky gut and all sorts of autoimmune diseases.

I was diagnosed with osteopenia.

manyallergies Newbie
Very interesting about putting it ON the skin. I didn't know you could do that...

I will be eating gluten for another week or so...not sure when the endoscopy is yet. Hopefully after I quit eating gluten and start to heal I will be able to take a supplement and it will be absorbed.

Full on tanning isn't possible out in the break area at work... B) But I have been sitting out there during my lunch break. I won't let myself burn because I can't stand it out there for very long. Its extremely hot and sunny where I am.

Thanks very much for the info. :)

Hi, I take Vitamin D3 in a cream (transdermal) rubbed on the skin. (I also take a B complex through the skin). Outside you only need 15 minutes a day without sunscreen to absorb a full daily allowance of Vitamin D. If you go outside and put sunscreen on it will take 15 minutes for the sunscreen to absorb into the skin and protect you. Meanwhile you get your daily allowance. Normal to high vitamin D levels are protective against cancer so definately work on it.

manyallergies Newbie
Hi, I take Vitamin D3 in a cream (transdermal) rubbed on the skin. (I also take a B complex through the skin). Outside you only need 15 minutes a day without sunscreen to absorb a full daily allowance of Vitamin D. If you go outside and put sunscreen on it will take 15 minutes for the sunscreen to absorb into the skin and protect you. Meanwhile you get your daily allowance. Normal to high vitamin D levels are protective against cancer so definately work on it. I get my transdermal creams through a "compounding pharmacy". Here is a link to the one I use but there might be one near you. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.