Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Not Tested Yet


whymychildjo

Recommended Posts

whymychildjo Newbie

Hello, I have a 9 year old boy who has been having abdominal pain for about 5 months now. His pain level was about a 8 on a scale of 1-10. About 3 months in I started a Gluten free diet. I have a friend who suggested it. I have not had my son test becuase we do not have insurance and after several thousand dollars in ER and other doctor bills I just did not have the money. His pain level has gone as low as a 3-4 on the gluten-free deit.

I guess my question is... has anyone had a child who expressed pain 2 months after going gluten free. Could we be missing something in the deit? Should we go ahead and test him? We are in the dallas area. Any good doctors who will work with us on payments?

Worried and I do not know what to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmjsmomma Apprentice

Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.

mommida Enthusiast

Yes, you can be missing something.

Another food sensitivity.

H. Ployri infection

parasite/ worms

Eosinophilic Esophagitis

Celiac Sprue

mistakes on the gluten free diet from cross contamination (hygeine products, pet foods, craft supplies, possibly drywall dust)

Keep a food journal, it can help track down delayed food sensitivities/allergies or intolerances

Pattymom Newbie

That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol Fenster's recipe-Special diet solutions, good book) but when I finally took it out, it made a big difference. Now I only have one chld who is still off gluten and dairy, ( the dairy gives her eczema, not GI symptoms) and two off gluten. So my boys improved enough for dairy eventually.

Hang in there.

Patty

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

    2. - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    4. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748

    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.