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Child Not Tested Yet

whymychildjo

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whymychildjo Newbie
whymychildjo
Posted

Hello, I have a 9 year old boy who has been having abdominal pain for about 5 months now. His pain level was about a 8 on a scale of 1-10. About 3 months in I started a Gluten free diet. I have a friend who suggested it. I have not had my son test becuase we do not have insurance and after several thousand dollars in ER and other doctor bills I just did not have the money. His pain level has gone as low as a 3-4 on the gluten-free deit.

I guess my question is... has anyone had a child who expressed pain 2 months after going gluten free. Could we be missing something in the deit? Should we go ahead and test him? We are in the dallas area. Any good doctors who will work with us on payments?

Worried and I do not know what to do.

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jmjsmomma Apprentice
jmjsmomma
Posted

Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.

mommida Enthusiast
mommida
Posted

Yes, you can be missing something.

Another food sensitivity.

H. Ployri infection

parasite/ worms

Eosinophilic Esophagitis

Celiac Sprue

mistakes on the gluten free diet from cross contamination (hygeine products, pet foods, craft supplies, possibly drywall dust)

Keep a food journal, it can help track down delayed food sensitivities/allergies or intolerances

Pattymom Newbie
Pattymom
Posted

That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol Fenster's recipe-Special diet solutions, good book) but when I finally took it out, it made a big difference. Now I only have one chld who is still off gluten and dairy, ( the dairy gives her eczema, not GI symptoms) and two off gluten. So my boys improved enough for dairy eventually.

Hang in there.

Patty

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      New at gluten sensitivity

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    • trents
      New at gluten sensitivity

      By trents · Posted

      But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
    • trents
      New at gluten sensitivity

      By trents · Posted

      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
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      New at gluten sensitivity

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      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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