Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Not Tested Yet


whymychildjo

Recommended Posts

whymychildjo Newbie

Hello, I have a 9 year old boy who has been having abdominal pain for about 5 months now. His pain level was about a 8 on a scale of 1-10. About 3 months in I started a Gluten free diet. I have a friend who suggested it. I have not had my son test becuase we do not have insurance and after several thousand dollars in ER and other doctor bills I just did not have the money. His pain level has gone as low as a 3-4 on the gluten-free deit.

I guess my question is... has anyone had a child who expressed pain 2 months after going gluten free. Could we be missing something in the deit? Should we go ahead and test him? We are in the dallas area. Any good doctors who will work with us on payments?

Worried and I do not know what to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmjsmomma Apprentice

Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.

mommida Enthusiast

Yes, you can be missing something.

Another food sensitivity.

H. Ployri infection

parasite/ worms

Eosinophilic Esophagitis

Celiac Sprue

mistakes on the gluten free diet from cross contamination (hygeine products, pet foods, craft supplies, possibly drywall dust)

Keep a food journal, it can help track down delayed food sensitivities/allergies or intolerances

Pattymom Newbie

That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol Fenster's recipe-Special diet solutions, good book) but when I finally took it out, it made a big difference. Now I only have one chld who is still off gluten and dairy, ( the dairy gives her eczema, not GI symptoms) and two off gluten. So my boys improved enough for dairy eventually.

Hang in there.

Patty

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    2. - Heavenly Flower replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,415
    • Most Online (within 30 mins)
      7,748

    Heavenly Flower
    Newest Member
    Heavenly Flower
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Heavenly Flower!  You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because of the beta carotene. Do you have issues with eggs and dairy? How about fresh fish? What about fresh fruit? There are also non gluten alternative grains like quinoa, buckwheat (not related to wheat) groats and sorghum that are sold by companies like Bob's Red Mill that can be used for hot breakfast cereals. Gluten free oats is also an option, though some celiacs can't do oats because the protein in them (avenin) is similar enough to gluten to cause a reaction. Gluten is found only in wheat, barley and rye.
    • Heavenly Flower
      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables.  Gluten free pretzels and rice cakes to snack on. But that's about it cause I don't know what I can eat it's to overwhelming.  I don't even know what symptom to look for for possible cross contamination cause I also have microscopic Colitis which has the same symptoms as celiac disease. I'm hoping at least being on this forum I can get information that will help me figure it all out. Sorry I am not able to help you and hope you get the relief you are looking for. 
    • Known1
      I just read this article here on Celiac.com.  For anyone interested in or following this thread, they may also want to read this article for additional insight:  
    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.