Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Not Tested Yet


whymychildjo

Recommended Posts

whymychildjo Newbie

Hello, I have a 9 year old boy who has been having abdominal pain for about 5 months now. His pain level was about a 8 on a scale of 1-10. About 3 months in I started a Gluten free diet. I have a friend who suggested it. I have not had my son test becuase we do not have insurance and after several thousand dollars in ER and other doctor bills I just did not have the money. His pain level has gone as low as a 3-4 on the gluten-free deit.

I guess my question is... has anyone had a child who expressed pain 2 months after going gluten free. Could we be missing something in the deit? Should we go ahead and test him? We are in the dallas area. Any good doctors who will work with us on payments?

Worried and I do not know what to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmjsmomma Apprentice

Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.

mommida Enthusiast

Yes, you can be missing something.

Another food sensitivity.

H. Ployri infection

parasite/ worms

Eosinophilic Esophagitis

Celiac Sprue

mistakes on the gluten free diet from cross contamination (hygeine products, pet foods, craft supplies, possibly drywall dust)

Keep a food journal, it can help track down delayed food sensitivities/allergies or intolerances

Pattymom Newbie

That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol Fenster's recipe-Special diet solutions, good book) but when I finally took it out, it made a big difference. Now I only have one chld who is still off gluten and dairy, ( the dairy gives her eczema, not GI symptoms) and two off gluten. So my boys improved enough for dairy eventually.

Hang in there.

Patty

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,814
    • Most Online (within 30 mins)
      7,748

    JaneD
    Newest Member
    JaneD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.