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Building A Gluten Tolerance


Lawrence

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Lawrence Apprentice

I read this article and although it does not mention gluten I think it can be applied to it:

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Darn210 Enthusiast

Celiac disease is NOT an allergy. It is an autoimmune disease. What may work for an allergy is not going to work for Celiac disease.

I'm going to repeat myself . . .

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

Takala Enthusiast
" while it doesn't mention gluten, I think it can be applied to it..."

NO. <_<

Pac Apprentice
... it does not mention gluten I think it can be applied to it:

Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

Amyleigh0007 Enthusiast
Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

That's right. That's why a long time ago doctor's thought you could outgrown Celiac disease. When kids went gluten free they healed, their symptoms went away and the doctors told them they were cured! They could eat gluten again! Only now we know that is not true at all! Once you have Celiac disease you have it forever.

phakephur Apprentice
Only now we know that is not true at all! Once you have Celiac disease you have it forever.

I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

Switch2GF Rookie
I think it can be applied to it

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.


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Korwyn Explorer
:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

I have had similar issues. I had a very rapid improvement when I went gluten-free, then I started to deteriorate again. As I eliminated various things I found that I am sucrose (sugar), soy, and casein (I knew this from my lab work but didn't want to accept it) intolerant. I actually have an almost immediate response to soy that is even worse than my gluten response.

I'm doing much better now, and I'm losing weight for the first time in 20 years.

Nancym Enthusiast

I think when you're immune system isn't constantly bombarded with stuff it finds issue with it can mount a stronger attack when it does find badness. So lets say your immune system is working at 80% trying to deal with what it thinks is a foreign invader, gluten. It doesn't have the resources to deal so much with soy and casein, or whatever else is bugging you. So when it finally calms down from the gluten it might have additional resources to apply to other things it dislikes. That's what I think happens.

And when you finally get everything out that your body dislikes... then when you get accidentally glutened you're going from 0% immune response to 100% and it's a pretty violent shift.

Anyway that's how I think of it. :)

I think allergies operate similarly, I heard some allergy doctors talking about a patient who wasn't allergic to ferrets. His ferret died, he got a new one, and suddenly he was allergic. They suggested he probably was allergic before but his immune system getting a rest from it responded much, much stronger when he got the new ferret.

ang1e0251 Contributor
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

I don't have a scientific link to post here for you. All I know is that reading the signatures of members and hearing their stories, I am convinced it is true. I have to keep in mind there's a lot the medical community doesn't know about celiac disease and what they seem to know, they argue about like the different genes linked to it.

I'm not looking for a cure because I don't think I would believe the truth of it anyway. I have been overlooked by dr's for years from their ignorance and I have seen many "great" drugs pulled after they killed people. I have to go with my gut and my gut says I'm off gluten for life.

Pac Apprentice
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

It's just a theory. Leading and generally accepted theory based on current research. There's nothing like proving a theory right in science. You can prove it wrong or prove the opposing theory wrong to support the original theory. It like you don't get "true" and "false" theories, just "false" and "not-yet-false" ones.

Maybe someone should go through medical records and find out what happened to all those "cured" celiacs, who were diagnosed while CS was believed to be a childhood disease. It would be a good topic for some med student disertation.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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