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New And Need Guidance, Please!

amoliphant

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amoliphant Newbie
amoliphant
Posted

Please help! I am just a couple of weeks into this and have, as much as I've tried not to, made

mistakes and eaten the wrong thing...lastly it was the Lundberg Rice Chips, labeled "gluten-free" which I took to mean "go at it!" My fingers and hand started to burn and swell shortly after...please, I would like to know what you all eat, specific examples of what you have for breakfast, lunch, dinner and snacks....I've read a few books, bought a cookbook, etc., but mostly there are full-on recipes that take a good bit of time...I need ideas on what to grab in the morning and fix relatively quickly for lunch, etc. Any specific, favorite things you all eat and/or fix would be greatly appreciated....

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Wenmin Enthusiast
Wenmin
Posted

This is a great list to get started.

Disclaimer: This information, generated by Fox Valley Celiacs (FVC), is intended for the benefit of its members and other interested parties. Some celiacs may have other sensitivities (e.g. corn or soy). The text has not been submitted for approval to the Celiac Sprue Association (CSA). Neither FVC, nor any of its members, assume liability for the use of this information. Reproduction of this material is allowed to facilitate the exchange of celiac information. Food manufacturers' products are subject to formula change at any time. If you cannot confirm, by the label, that a product is gluten free, call the company's toll-free number. Many company websites will list their gluten-free products. A more inclusive list of gluten-free items can be found at www.glutenfreeinsd.com , which is also associated with CSA. ALWAYS read labels.

FOODS

Bacon― Oscar Meyer, Hormel

Baked Beans― B & M, Bush

amoliphant Newbie
amoliphant
Posted
  • Author

Thank you so much for taking the time and going in to such detail. I have so many questions and am feeling overwhelmed. It's been a long road as I'm sure most of you can relate to. Is psyllium husk considered safe as a fiber supplement? I am a mother of 2 w/one husband none of whom have been tested yet but 2 I would suspect...but I am cooking and feeding everyone and wondering to what extent do you all go to as far as having your own cooking utensils, section of the pantry, etc.? Are you just "careful" or should it be like laboratory conditions?? I guess my biggest disillusionment came yesterday with the Lundberg Rice Chips, saying they were gluten-free but had an anti-caking ingredient (tricalcium phosphate, less than 2%) that got me. Then I found out they are not a dedicated facility as far as their rice chips are concerned.

So the realization that you cannot "trust" products that say gluten free as being 100% gluten free is such a let-down. I don't want to munch on carrot sticks or plain rice cakes!! I have discovered Whole Foods Bakehouse items, dedicated and thoroughly CLEAN!...and so good too.

Thank goodness for Whole Foods. How did you all ever learn the ingredients and what is considered safe? What about rice milk? I have been told Rice Dream contains 2% or less gluten....and can say they are gluten free by FDA standards....geez! Are you gluten free or not!?

sasso217 Newbie
sasso217
Posted
Please help! I am just a couple of weeks into this and have, as much as I've tried not to, made

mistakes and eaten the wrong thing...lastly it was the Lundberg Rice Chips, labeled "gluten-free" which I took to mean "go at it!" My fingers and hand started to burn and swell shortly after...please, I would like to know what you all eat, specific examples of what you have for breakfast, lunch, dinner and snacks....I've read a few books, bought a cookbook, etc., but mostly there are full-on recipes that take a good bit of time...I need ideas on what to grab in the morning and fix relatively quickly for lunch, etc. Any specific, favorite things you all eat and/or fix would be greatly appreciated....

Hi, I'm new also - about 2 months now. I was really overwhelmed with what to eat and not to eat. I also found the diet to be extremely expensive. i first decided what was most important to have to make meals easy on me and for cooking for my family. Pasta was the first issue. I tasted several different brands until I found one that I enjoyed. ShopRite in my area carries a nice brand, Schar, and whole foods carries several different brands. then I focused on breadcrumbs. I found Aleias to be the best flavored crumbs - extremely close to 4c or Progresso. Then I looked at what I normally use to my day to day cooking and called the companies. I found that most of the products I had on hand were gluten free. Breakfast is tough, trying to get something healthy and quick in the mornings, but I found two cereals at ShopRite, HoneyNut Chex and now they have a Chocolate Chex. Both are very tasty. I added some dried cranberries to the honey nut for a sweeter flavor/

For my breads, I've been going to whole foods. They carry a french baguette in two flavors, always good to have on hand for a quick sandwich. The nature's way or natures best waffles are very tasty very similar to eggo's - Vans were too thick and tasted terrible. They also carry gluten free hot dogs, another quick lunch or dinner and even to bring to a bbq.

Cookies and snacks you can get at the supermarket. Pamela's are good but expensive. Shoprite carries in the sugar free section by their baked goods, Aunt Gussies vanilla and chocolate cookies - they are delicious and sugar free!

One more thing - Axelrod yogurt all flavors are gluten free.

Good luck and start in your own refrigerator - you may be surprised.

ang1e0251 Contributor
ang1e0251
Posted

About 1 1/2 yrs in, I no longer eat very many grain based foods. Sounds like the two of you are eating a lot of those products. They are expensive and since I couldn't afford them in the beginning, I just am used to not eating them. I also cut back even more because I just feel better that way. Here's what I'm eating today.

Breakfast: 3 scrambled eggs friend in butter with a little onion and a little tomato, salted and with 2 sliced of Hormel Natural Deli Ham. Constant Comment tea with stevia.

Lunch: leftover spaghetti and meatballs topped with cheese. Water.

Dinner: chicken breast fried in butter and olive oil with seasoned salt, green beans. Koolaid with stevia.

Snacks: Mocha Frappe with stevia using coconut milk and soy milk with a little chocolate syrup. Grapes and cheddar cheese. Banana. Pineapple.

amoliphant Newbie
amoliphant
Posted
  • Author

Thank you all for your input...I've come to the realization that I cannot depend so much on packaged "gluten free" foods and must take charge and learn to prepare my own whole foods....guess I was looking for the easier way out (?!)....thank you all for allowing me to see that. Today I am fixing a pot roast in a slow cooker with potatoes, carrots and onions...not bad, right? Something everyone can eat! As far as snacks, cookies, etc., I will try and limit those and stick to the "dedicated" facilities, like Mary's Gone Crackers products...I am also going to try and make some type of homemade cookie from scratch...this after realizing how much money I have been spending for just 9 cookies in one box!

LDJofDenver Apprentice
LDJofDenver
Posted

Things like this will also simplify your life.

There are grocery shopping guides out there to make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.) There are lots of mainstream groceries that are gluten free, more than you think.

Gluten-Free Grocery Shopping Guides:

Open Original Shared Link

Open Original Shared Link

There

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amoliphant Newbie
amoliphant
Posted
  • Author
Things like this will also simplify your life.

There are grocery shopping guides out there to make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.) There are lots of mainstream groceries that are gluten free, more than you think.

Gluten-Free Grocery Shopping Guides:

Open Original Shared Link

Open Original Shared Link

There’s another out that can also be downloaded to your PDA device, etc., by Clan Thompson.

I bought the Cecilia’s guide, it was about $25 and worth every dollar. Put an end to standing in the aisle and reading packages for 20 minutes at a time!

It will get easier!

amoliphant Newbie
amoliphant
Posted
  • Author

I apologize for "replying" twice here; I'm still learning how to post correctly, sorry!

Thank you all so much for your help and advice. I am relaxing a bit more, I was extremely uptight when I first posted regarding the "what to eat?!" SOS...I then went through a phase where I would eat things just because they were gluten free and thinking "oh! I can have that, I'm going to eat it, and a lot of it!"....it was as if I thought calories didn't matter anymore...so that is kind of where I am now, back to reality and how I used to eat, keeping tabs on quantity as well as quality (and now quality AND gluten free)....I just read the book "Gluten Girl" and she mentions she went through that period too, lasting about a month before calorie reality set in...I actually made cabbage rolls for last night's dinner with organic ground bison and quinoa! See, I am getting it!

Thank you all.

Ann

JayinUT Newbie
JayinUT
Posted

There are two cookbooks that I recommend very highly.

The first is by Carol Fenester and can be found at this link Gluten Free Quick and Easy

The other is a new book that is just incredible. We have tried about 6 entrees and his cookies, and his muffins and lets just say my 16 year old daughter who hates that we are gluten free said "These taste normal" which is the greatest compliment I can give. Robert Landolphi's wife was really sick and I believe in 1999 was diagnose. He is a trained professional chef and he has 100 receipes. Many non-gluten free people are amazed at his receipes. Here is the link Gluten Free Everyday Cookbook. His book alone is worth it for his flour mixes.

One of the things my wife and I dislike is that often gluten free food seems to come across as being what we call "Tree Nut Food." Were from California and sometimes it just reminds of fanatics who are health crazy. We know we can have great tasting gluten free food that is not only healthy but great tasting. One of the benefits for our family is that it use to be before I got diagnosed that we did quick cassroles and had left overs and did not help my wife with the cooking or eat together at the table. We now all pitch in on the cooking and we are sitting down to eat. That has been a huge blessing. Yes, you'll cook more as a celiac but your food should not only be healthier, but you'll be able to have awesome tasting food. Knowing you have to cook more, we just plan that into our day.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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