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Anyone Not Able To Work Because Of Celiac Disease And Related Conditions?

GlutenGuy36

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GlutenGuy36 Contributor
GlutenGuy36
Posted

Just wanting to know if anyone has been feeling rough like me.

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mysecretcurse Contributor
mysecretcurse
Posted

There have definitely been times it has effected my work or made me not be able to work. This was all before I even knew I was celiac though and was still eating gluten every day and being deathly ill.

cmom Contributor
cmom
Posted

The job I have now as a teaching assistant ijs perfectly suited for me. If I have any intestinal flareups, I can excuse myself and tend to them. However, there are without a doubt, some jobs I could never hold such as assembly line worker, cashier in a busy store, highway worker, etc. I must have a job where I can hit the restoom if necessary. They did put me on a special needs bus for a short time but I started having problems and feeling ill and had to request to be taken off that duty. The ride was 1 1/2-2 hrs. long out throught the country where there were no public restrooms. Thank goodness my principal was so understanding. I was in line to check out a famous chain store one time, and the cashier was begging the supervisor to let her go toe restroom, and the supervisor refused. I thought this was absolutely horrible. (If there are alot of mistakes in this post, I apologize....I'm only wearing one contact!) :huh:

lovegrov Collaborator
lovegrov
Posted

Couldn't work for 10 weeks and after that only half time for a while. If my job had been more a physical one, it would have been even longer.

richard

JillianLindsay Enthusiast
JillianLindsay
Posted

I've been off work for 3 months after suffering seizures and extreme fatigue, dizziness, etc.

I was only diagnosed earlier this month and am hoping to go back to work in August.

I am slowly starting to feel better, but it has been a very rough journey. I've basically been sick for 7 months with no reprieve and it took them 6 months to figure out why.

Thankfully we've figured it out and I can hopefully start to get better. I hope you do as well.

Just wanting to know if anyone has been feeling rough like me.

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      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
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