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Endoscopy - Tips On Pre Op?


balmerhon

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balmerhon Rookie

My DS (3 years old) is going to have an upper and lower endoscopy on 21 July at Univ of Maryland.

Starting 2 days before, we have to put him on a clear diet. They didn't tell me anything more than that, but someone told me they thought that no red foods (jell-o, popsicles) were allowed. Anyone heard that?

What did you feed your child?

He'll also have to take Miralax. Should I expect to go through a ton of diapers? Is he more likely to get a rash?v

Anyone got any tips for how to cope? I have another son who will have to eat normal food, which will be hard to do in front of the other one! Also, DS will also whine for food all day long, I'm sure. Should I just let him eat as much jell-o as I can? I don't think he'll take broth. He might take popsicles but probably not a lot of them.

Ugh. I am DREADING this!


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psawyer Proficient

This won't be a complete answer, but I can respond based upon my own experience with this procedure as an adult.

Red food color can temporarily discolor the lining of the intestines making the appear inflamed when they are not, and by doing so mask real inflammation.

Jell-o in flavors like lemon or lime is okay, as is clear apple juice.

balmerhon Rookie

OK, just had the red food thing confirmed. Can anyone else tell me what else to expect?!

Genna'smom Apprentice

My daughter then 2 stopped eating and drinking altogether so she was on an IV when it was done.... Sorry not much help just wanted you to know the procedure was not bad and over quickly and she did have a hard time coming around and they gave her morphine and when she had to have a 2nd one done to put in a feeding tube I would not let them give her morphine.......

Clear liquids are hard for a 3 year old to understand but chicken broth can taste good, along with Jello and popsicles, freeze pops, gatorade.... when she had her second one I tired to make this fun by putting the liquids in different cups with fancy straws, make jello jigglers for fun also...

Hope this helps some and good luck to you.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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