Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Mom's Not Gluten Free But Should Be...


The Kids Folks

Recommended Posts

The Kids Folks Apprentice

Hi-

I typically post on the parents of kids with celiac section, but this time I have a question about dealing with my mother. My DD, DS and DH and myself all went gluten in October. Although itwas not diagnosed through medical testing but rather diet - we have seen remarkable changes in all of us. Enough said.

Here is the issue - DH and I have noticed in both of our families symptoms of gluten intolerance... most recent is my mother. When she is "dieting" and cutting out breads and pasta - her mood is very amazing - super upbeat, laughing, pretty much just goes with the flow of things. However, this past week - she was doing a lot of baking for my niece's graduation. Thus tons of gluten filled cookies and bars and well you know when you bake - you pretty much taste every thing and then eat the extras!!

So, yesterday at the graduation party I realize that my mom seems, more than iritated at things that don't necessarily effect her. The kids at the party destroyed some yard games, her bars were running b/c of the warm weather, my SIL was throwing away plastic bowls that could eventually be reused ... you get the idea - nothing major to be upset about! Then the kicker was when she found out that my niece made a decision that my mom is totally against, but that really won't affect my niece a whole lot in the general scheme of things. My mom pretty well lost it and of course went to tell my dad and then got made at me when I told her to just let my niece have her day! She also will hold grudges that begin of course duing the major gluten feast!

So... sorry this got so long... how do I deal with my mom who I will be seeing at another gathering today (of course gluten food will be involved). Not to sound like a first year med student diagnosing her but I KNOW that the gluten is causing this irrational behavior. Talking to her about going gluten free has been an on going deal of which she feels is too expensive, too time consuming, too much work!

The kids folks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

I so wish we had a magic wand. It's hard when we know that people would feel so much better going gluten free. I've been gluten free long enough now that it is not difficult but it is a whole change in lifestyle.

Roda Rising Star

I can understand your frustration because you care. I am pretty convinced my brother needs to be on a gluten free diet also. He was dx with sarcoidosis in 1992 and since has ongoing chronic rashes. He has gi issues, lactose problems, and is obese. I was leaning toward my Mom having it but everything came out ok for her. I do, in hindsight, believe my father needs tested and he might be the one with the problem. My brother, father and I always, despite our weight issues, have had really low cholesterol and triglicerides. I have read that low triglicerides can be an indication of malabsorption. My father for as long as I can remember has also suffered from horrible acid indigestion and reflux. He also had surgery a long time ago to remove some gangranous bowel. I talked to my brother about it several times now how he would benefit from it. I might as well been talking to a brick wall. He even got angry at me so I don't preach anymore. My father had some recent blood work done that indicated some deficiencies and I mentioned to my mom he should get screened for celiac. When she mentioned it to him he, via my mother, pretty much told me to mind my own business. It's hard though to sit back as watch someone do something that is compromising their health. They are adults and I only hope someday they see how well I am doing and come to the conclusion on their own to give it a try before it's too late. My mom however is very open and supportive. I am due for a family trip to visit them in PA next week. This is my first trip back since being diagnosed. I plan on taking a few things with me and do some shopping when I get there. I am going to be in charge of all the cooking our meals together so I have less of a chance of contamination. Mom does not care and I think is looking forward to have someone cook for her. We are having a big family get together. My brother is smoking all the meat. I have checked with him about ingredients and believe it or not every thing he uses is gluten free by default so I'm good there. I am going to make all the side dishes and deserts gluten free. Except for my immediate family, noone else will know and probably won't have a clue! :)

.

The Fluffy Assassin Enthusiast
Hi-

I typically post on the parents of kids with celiac section, but this time I have a question about dealing with my mother. My DD, DS and DH and myself all went gluten in October. Although itwas not diagnosed through medical testing but rather diet - we have seen remarkable changes in all of us. Enough said.

Here is the issue - DH and I have noticed in both of our families symptoms of gluten intolerance... most recent is my mother. When she is "dieting" and cutting out breads and pasta - her mood is very amazing - super upbeat, laughing, pretty much just goes with the flow of things. However, this past week - she was doing a lot of baking for my niece's graduation. Thus tons of gluten filled cookies and bars and well you know when you bake - you pretty much taste every thing and then eat the extras!!

So, yesterday at the graduation party I realize that my mom seems, more than iritated at things that don't necessarily effect her. The kids at the party destroyed some yard games, her bars were running b/c of the warm weather, my SIL was throwing away plastic bowls that could eventually be reused ... you get the idea - nothing major to be upset about! Then the kicker was when she found out that my niece made a decision that my mom is totally against, but that really won't affect my niece a whole lot in the general scheme of things. My mom pretty well lost it and of course went to tell my dad and then got made at me when I told her to just let my niece have her day! She also will hold grudges that begin of course duing the major gluten feast!

So... sorry this got so long... how do I deal with my mom who I will be seeing at another gathering today (of course gluten food will be involved). Not to sound like a first year med student diagnosing her but I KNOW that the gluten is causing this irrational behavior. Talking to her about going gluten free has been an on going deal of which she feels is too expensive, too time consuming, too much work!

The kids folks

You expose her to your cooking to show her how tasty (and easy) gluten free cuisine can be, you point out to her how much happier and easy-going she is when she's on Atkins (or whatever largely gluten-free diet she's been on), and you try not to worry about it. I went gluten-free in late 2007. The woman I was living with was ever so much more obviously celiac than I am, from PCOS to family thyroid problems. I cooked gluten-free for her for a solid year, working on her constantly to convince her that she's celiac and needs to give up gluten. She shot the messenger. Sooo I can tell you from experience that convincing anybody to go gluten free is significantly harder than getting them to change, say, their religion. Do your best and try not to worry about it.

ang1e0251 Contributor

In my experience, stating your case, then letting it go, is one of the hardest and yet probably easiest ways to get along. You can only love them, offer them your great gluten-free cooking and be open to them when they ask you questions. They only need to know they can come to when they are ready to face it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.