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Dh Can It Go Away Eventually?

hippo33

By hippo33
in Dermatitis Herpetiformis

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hippo33 Apprentice
hippo33
Posted

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.

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tarnalberry Community Regular
tarnalberry
Posted
ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.

If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

hippo33 Apprentice
hippo33
Posted
  • Author
If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

lovegrov Collaborator
lovegrov
Posted
can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

hippo33 Apprentice
hippo33
Posted
  • Author
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

maybe u are right i just started back up a couple days ago on my glucosamine and it has sulphate from shell fish mayby i should stop taking it for a while

JillianLindsay Enthusiast
JillianLindsay
Posted

Also, if you've only been completely gluten-free for a week then it will take time for your body to start repairing itself. I've also only been on the diet for 6 days. I am feeling a bit better but am told it takes 2weeks to 2months for your body to be back to "normal". Good luck :)

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.
tarnalberry Community Regular
tarnalberry
Posted
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

Yup, you can't eliminate iodine (and as richard said, you don't want to), but you can - until the DH heals, not consume extra iodine - so eliminated iodized sald, shellfish, regular fish, seaweed, dairy, and eggs.

Once you no longer are having DH outbreaks (and are gluten free, consistently, the whole time), then you would allow more of those foods back in. But it isn't an intolerance thing - it's not a "avoid wholesale". It's just a reduction, so you're not getting *a lot* of it. (Most of us, in the US, get more than enough iodine, if you're eating dairy, meats, and sea-originated items.)

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ang1e0251 Contributor
ang1e0251
Posted

My DH took about 6-8 weeks to completely heal. I didn't know anything about iodine at the time so didn't reduce it. Maybe mine would have cleared up sooner if I had.

mysecretcurse Contributor
mysecretcurse
Posted

I have been gluten free for going on 2 years (only occasional accidents) and my DH still is really bothering me. I haven't yet eliminated dairy and other grains such as corn. Should I? I don't understand it, because within 6 months of first going gluten free my skin got crystal clear, but then the DH began returning. I have no idea what is triggering me and I'm really confused and sad. :( I can't get testing to see what is bothering me, no job and no health insurance. :(

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