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Help Interpreting Blood Test!

MM5079

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MM5079 Rookie
MM5079
Posted

Hi, All!

I've read and read the site about the blood test, but I'm still a little confused. The nurse called me on the phone to tell me the results, but said everything so fast I couldn't process it well. He said that my anti-tissue transglutaminase (tTG-IgA) was 24 and the typical high is 19. He then said my endomysial was below the high raito of 1-10 or something to that effect! Either way, he said that my results do suggest Celiacs, and they will be doing a biopsy next week! Can anybody tell me if this test alone is indicitive of Celiacs? What's the percentage of a confirmed diagnosis of Celiacs of individuals with an anti-tissue transglutaminase (tTG-IgA) of 24?

I have an uncle with Celiacs, and finally gave in to his pressure for getting tested. I have been going though hell with GI issues. I hope this is finally an answer and my peripheral neuropathy will go away!

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ravenwoodglass Mentor
ravenwoodglass
Posted

You finally have your answer. When the tests are positive it is pretty certain that you are celiac. Even if the biopsy turns out to be a 'negative' you really should get on the diet. False negatives on both blood and biopsy are all too common.

MM5079 Rookie
MM5079
Posted
  • Author
You finally have your answer. When the tests are positive it is pretty certain that you are celiac. Even if the biopsy turns out to be a 'negative' you really should get on the diet. False negatives on both blood and biopsy are all too common.

It's almost too good to be true to finally know what's wrong with me. Should I continue eating Gluten until after the biopsy on the 23rd, or is it safe to go ahead and limit my intake as I've been doing?

psawyer Proficient
psawyer
Posted

If you are going to have a biopsy in the near future, I would recommend that you not change your diet until after the procedure. Next week is just days away. A high tTG-IgA is indicative of celiac disease, but a positive biopsy will confirm that celiac is indeed the cause.

My opinion, for what it is worth, is that once the endoscopy is done, I would adopt a gluten-free diet based on the tTG-IgA test alone.

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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