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Help! Ds Won't Take Miralax!


balmerhon

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balmerhon Rookie

And his endoscopy is Tuesday! We started him on it today, along with the clear diet and he's pretty much refused it. He was supposed to have 3 doses at 4, 6 and 8 and I've barely got one in him. I'm going to call the doc tomorrow but thought I'd see if anyone else has any ideas.

DS only drinks milk and water usually. I tried the Miralax with juice and he refused it. Then I tried it with water but he's only had a small amount.

The clear diet is ok. He's eating lots of jello jigglers and popsicles. But he's starving. But the Miralax is just not happening...


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Genna'smom Apprentice

what about mixing it in with a small amount of jello jiglers to eat and make sure you know which ones....... just a thought. I know my daughter did not do well with it either except later in milk...

seezee Explorer
And his endoscopy is Tuesday! We started him on it today, along with the clear diet and he's pretty much refused it. He was supposed to have 3 doses at 4, 6 and 8 and I've barely got one in him. I'm going to call the doc tomorrow but thought I'd see if anyone else has any ideas.

DS only drinks milk and water usually. I tried the Miralax with juice and he refused it. Then I tried it with water but he's only had a small amount.

The clear diet is ok. He's eating lots of jello jigglers and popsicles. But he's starving. But the Miralax is just not happening...

Why a clear diet and miralax. My daughter was scoped and she just had to not eat anything after midnight?

balmerhon Rookie

Sorry I'm late to replying here.

The clear diet/miralax is standard here as far as I know. They were also checking for more than celiac, so that might have something to do with it.

Just in case anyone else ever has this problem...

When I talked to the doc, they had us try magnesium citrate, which also was refused (my kid is nothing if not consistent!). So then we had to try the ExLax chocolate squares. Needless to say, chocolate did the trick. The doc was worried it wouldn't clean him out enough, but she seemed happy enough after the procedure. Unfortunately he is still showing the effects of it - I shudder to think how the stronger stuff would have affected him.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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