Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need As Many Ideas As Possible Please!

JRS

By JRS
in Coping with Celiac Disease

Recommended Posts

JRS Rookie
JRS
Posted

I would really love to gather any "tricks" or "tips" from everyone on how to recover after being glutened. I've heard theories on benadryl and extra water intake and sleeping, etc. What else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted
I would really love to gather any "tricks" or "tips" from everyone on how to recover after being glutened. I've heard theories on benadryl and extra water intake and sleeping, etc. What else?

Mint tea - either peppermint or lemon balm (from the mint family of plants)

I drink Trader Joe's Mint Melange - which has peppermint, spearmint and lemon grass or I drink The Republic of Tea's "Mint Fields Herb Tea" which has spearmint, peppermint and lemon balm. Both were gluten-free when I purchased them, but I check every time. I don't trust Tazo teas that they have at Starbucks.

The tea is soothing (I drink it anytime my stomach hurts), and just drinking tea relaxes me. Helps keep the fluids up if you're having D.

Hope you feel better soon.

~Laura

Gfresh404 Enthusiast
Gfresh404
Posted

Definitely drink a lot of water. I also load up on probiotics, enzymes, and glutamine. And probably the most important thing I do is to make sure and eat some amount of insoluble fiber. This will force the undigested gluten out of your body a lot faster. Plenty of rest is also good too.

GFinDC Veteran
GFinDC
Posted

Hi Jocelyn,

There are several threads of tips around the board. If I could remember the titles I'd post them for you. But anyway, Pepto Bismol can help with gut pain, DPP-IV can help a little, lots of water and rest, too.

YoloGx Rookie
YoloGx
Posted

Remedies that work for me are to take extra enterically coated acidophilus, papain/bromelain capsules (or eat lots of fresh pineapple and papaya) and/or other enzymes, slippery elm capsules or make a porridge out of the bulk herb (soothes and takes down inflammation in the gut plus is a food those who can't eat anything else can tolerate), marshmallow root capsules or just use the powder in a glass of hot or cold water (soothes and heals the gut), dandelion root capsules or tea with yellow dock root or Oregon grape root tea (after no longer having D!)--gets rid of toxins that build up due to leaky gut after the villi get traumatized0, echinacea or cleavers tea (cleans out the lymphatic system that often gets swollen). And of course lot of cooked leafy greens, water, rest, and something to distract one from the headaches, weariness, abdominal distress, itchies and cranky demons!

amoliphant Newbie
amoliphant
Posted

In addition to all the other suggestions, I think working up a good sweat is tremendously helpful; even though I may not feel like starting out on a run, I feel better mentally and physically if I force myself. You may want to stay close to home because in my experience, especially after being glutened, emergency bathroom needs arise...I look at this as helping to get even more toxins out and more quickly than if I hadn't run. Another plan of action is a sauna and sweating toxins out that way...most gyms have saunas now so it's a pretty viable option. I also shower immediately after to get any toxins off my skin using a body brush to scrub. The thing to remember is, you definitely won't feel like working out but once you get going and especially afterward, you'll feel much better.

YoloGx Rookie
YoloGx
Posted
In addition to all the other suggestions, I think working up a good sweat is tremendously helpful; even though I may not feel like starting out on a run, I feel better mentally and physically if I force myself. You may want to stay close to home because in my experience, especially after being glutened, emergency bathroom needs arise...I look at this as helping to get even more toxins out and more quickly than if I hadn't run. Another plan of action is a sauna and sweating toxins out that way...most gyms have saunas now so it's a pretty viable option. I also shower immediately after to get any toxins off my skin using a body brush to scrub. The thing to remember is, you definitely won't feel like working out but once you get going and especially afterward, you'll feel much better.

Ditto to that!!

Bea

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TiffLuvsBread Rookie
TiffLuvsBread
Posted
Ditto to that!!

Bea

Double ditto. I was glutened yesterday - ohhh the trauma :( - and I forced myself to the gym (I would normally go, but all I wanted to do was go home and cuddle with my puppy) and I felt better at the end. I was totally spaced out, my fiance is a trainer there and he was having trouble getting me to focus for more than a second, he had to lighten all of my weight, but I still did it and the lighter weight was plenty for my ravaged body. Towards the end I started to perk up, felt significantly (!!) more alert, and the pain and discomfort was beginning to subside. I went home and had plain yogurt and rested. So I discovered yesterday this is definitely a way to go!

Good luck.

ang1e0251 Contributor
ang1e0251
Posted

I don't go for the exercise, so I'm probably missing something! I usually have Constant Comment tea, my favorite, rest as much as I need to and eat all the safe food my body asks for. One of my symptoms is usually ravenous hunger. I like a big pot of homemade chicken noodle soup. I also take extra B12.

jerseyangel Proficient
jerseyangel
Posted

Some things that help me are hot mint tea (I like Stash), bananas/mashed potato/something bland in my stomach, rest, lots of water, and Immodium if I need to be somewhere.

lcarter Contributor
lcarter
Posted

For years my GP, and then a Gastro, both gave me a prescription for Lomotil with Phenobarbitol to keep on hand, saying that it was IBS. Eventually, I discovered that I needed to quit eating and just live on liquids for 2-3 days. then 1-2 days of white rice and applesauce, followed by gently starting back on a regular diet. It was the only thing that kept me out of the ER when I was having excessive diarrhea and projectile vomiting episodes. Now we know it's Celiac, and the very infrequent glutening episodes are usually far milder because I am sooooo careful what goes into my mouth. So, I also recommend lots of rest, green or mint tea, chicken broth, and ginger ale. Also, eat papaya fruit. It really helps as it has natural digestive enzymes and it usually takes away the dull achy pain for a while. Really, the bottom line besides a bland diet, is that you have to just wait it out. Unfortunately, there is no magic cure. It takes time for the gut to heal and for the swelling to go down.

cyberprof Enthusiast
cyberprof
Posted
Some things that help me are hot mint tea (I like Stash), bananas/mashed potato/something bland in my stomach, rest, lots of water, and Immodium if I need to be somewhere.

I too have to have something in my stomach. I like mashed or baked potatoes, rice or rice noodles.

Pepto Bismal is my drug of choice. It quiets the rumblies in my tummies and makes me more confident in public.

~Laura

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    2. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    3. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    4. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    5. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748
    Heather8280
    Newest Member
    Heather8280
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.