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Need As Many Ideas As Possible Please!

JRS

By JRS
in Coping with Celiac Disease

Recommended Posts

JRS Rookie
JRS
Posted

I would really love to gather any "tricks" or "tips" from everyone on how to recover after being glutened. I've heard theories on benadryl and extra water intake and sleeping, etc. What else?

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cyberprof Enthusiast
cyberprof
Posted
I would really love to gather any "tricks" or "tips" from everyone on how to recover after being glutened. I've heard theories on benadryl and extra water intake and sleeping, etc. What else?

Mint tea - either peppermint or lemon balm (from the mint family of plants)

I drink Trader Joe's Mint Melange - which has peppermint, spearmint and lemon grass or I drink The Republic of Tea's "Mint Fields Herb Tea" which has spearmint, peppermint and lemon balm. Both were gluten-free when I purchased them, but I check every time. I don't trust Tazo teas that they have at Starbucks.

The tea is soothing (I drink it anytime my stomach hurts), and just drinking tea relaxes me. Helps keep the fluids up if you're having D.

Hope you feel better soon.

~Laura

Gfresh404 Enthusiast
Gfresh404
Posted

Definitely drink a lot of water. I also load up on probiotics, enzymes, and glutamine. And probably the most important thing I do is to make sure and eat some amount of insoluble fiber. This will force the undigested gluten out of your body a lot faster. Plenty of rest is also good too.

GFinDC Veteran
GFinDC
Posted

Hi Jocelyn,

There are several threads of tips around the board. If I could remember the titles I'd post them for you. But anyway, Pepto Bismol can help with gut pain, DPP-IV can help a little, lots of water and rest, too.

YoloGx Rookie
YoloGx
Posted

Remedies that work for me are to take extra enterically coated acidophilus, papain/bromelain capsules (or eat lots of fresh pineapple and papaya) and/or other enzymes, slippery elm capsules or make a porridge out of the bulk herb (soothes and takes down inflammation in the gut plus is a food those who can't eat anything else can tolerate), marshmallow root capsules or just use the powder in a glass of hot or cold water (soothes and heals the gut), dandelion root capsules or tea with yellow dock root or Oregon grape root tea (after no longer having D!)--gets rid of toxins that build up due to leaky gut after the villi get traumatized0, echinacea or cleavers tea (cleans out the lymphatic system that often gets swollen). And of course lot of cooked leafy greens, water, rest, and something to distract one from the headaches, weariness, abdominal distress, itchies and cranky demons!

amoliphant Newbie
amoliphant
Posted

In addition to all the other suggestions, I think working up a good sweat is tremendously helpful; even though I may not feel like starting out on a run, I feel better mentally and physically if I force myself. You may want to stay close to home because in my experience, especially after being glutened, emergency bathroom needs arise...I look at this as helping to get even more toxins out and more quickly than if I hadn't run. Another plan of action is a sauna and sweating toxins out that way...most gyms have saunas now so it's a pretty viable option. I also shower immediately after to get any toxins off my skin using a body brush to scrub. The thing to remember is, you definitely won't feel like working out but once you get going and especially afterward, you'll feel much better.

YoloGx Rookie
YoloGx
Posted
In addition to all the other suggestions, I think working up a good sweat is tremendously helpful; even though I may not feel like starting out on a run, I feel better mentally and physically if I force myself. You may want to stay close to home because in my experience, especially after being glutened, emergency bathroom needs arise...I look at this as helping to get even more toxins out and more quickly than if I hadn't run. Another plan of action is a sauna and sweating toxins out that way...most gyms have saunas now so it's a pretty viable option. I also shower immediately after to get any toxins off my skin using a body brush to scrub. The thing to remember is, you definitely won't feel like working out but once you get going and especially afterward, you'll feel much better.

Ditto to that!!

Bea

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TiffLuvsBread Rookie
TiffLuvsBread
Posted
Ditto to that!!

Bea

Double ditto. I was glutened yesterday - ohhh the trauma :( - and I forced myself to the gym (I would normally go, but all I wanted to do was go home and cuddle with my puppy) and I felt better at the end. I was totally spaced out, my fiance is a trainer there and he was having trouble getting me to focus for more than a second, he had to lighten all of my weight, but I still did it and the lighter weight was plenty for my ravaged body. Towards the end I started to perk up, felt significantly (!!) more alert, and the pain and discomfort was beginning to subside. I went home and had plain yogurt and rested. So I discovered yesterday this is definitely a way to go!

Good luck.

ang1e0251 Contributor
ang1e0251
Posted

I don't go for the exercise, so I'm probably missing something! I usually have Constant Comment tea, my favorite, rest as much as I need to and eat all the safe food my body asks for. One of my symptoms is usually ravenous hunger. I like a big pot of homemade chicken noodle soup. I also take extra B12.

jerseyangel Proficient
jerseyangel
Posted

Some things that help me are hot mint tea (I like Stash), bananas/mashed potato/something bland in my stomach, rest, lots of water, and Immodium if I need to be somewhere.

lcarter Contributor
lcarter
Posted

For years my GP, and then a Gastro, both gave me a prescription for Lomotil with Phenobarbitol to keep on hand, saying that it was IBS. Eventually, I discovered that I needed to quit eating and just live on liquids for 2-3 days. then 1-2 days of white rice and applesauce, followed by gently starting back on a regular diet. It was the only thing that kept me out of the ER when I was having excessive diarrhea and projectile vomiting episodes. Now we know it's Celiac, and the very infrequent glutening episodes are usually far milder because I am sooooo careful what goes into my mouth. So, I also recommend lots of rest, green or mint tea, chicken broth, and ginger ale. Also, eat papaya fruit. It really helps as it has natural digestive enzymes and it usually takes away the dull achy pain for a while. Really, the bottom line besides a bland diet, is that you have to just wait it out. Unfortunately, there is no magic cure. It takes time for the gut to heal and for the swelling to go down.

cyberprof Enthusiast
cyberprof
Posted
Some things that help me are hot mint tea (I like Stash), bananas/mashed potato/something bland in my stomach, rest, lots of water, and Immodium if I need to be somewhere.

I too have to have something in my stomach. I like mashed or baked potatoes, rice or rice noodles.

Pepto Bismal is my drug of choice. It quiets the rumblies in my tummies and makes me more confident in public.

~Laura

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    • rei.b
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      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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