Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still So Sick...

Ms27

By Ms27
in Coping with Celiac Disease

Recommended Posts

Ms27 Newbie
Ms27
Posted

I have been gluten free from about 3 months now. Amazed at how great I feel! All of my symptoms had subsided. This week though, I feel terrible. The only way I think I will ever feel better is if I just don't eat for a few days.

Does anyone have any suggestions of what is "safe" easy on your stomach to eat when not feeling well? I don't think I was glutened. I have prepared all my meals at home. Any suggestions would be helpful. What do you eat when your not feeling well?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I like cream of buckwheat cereal made with some cinnamon and a bit of sugar or Thai Kitchen Rice Noodles in a chicken broth and fresh fruit or applesauce for a snack.

I hope you feel better soon.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
I have been gluten free from about 3 months now. Amazed at how great I feel! All of my symptoms had subsided. This week though, I feel terrible. The only way I think I will ever feel better is if I just don't eat for a few days.

Does anyone have any suggestions of what is "safe" easy on your stomach to eat when not feeling well? I don't think I was glutened. I have prepared all my meals at home. Any suggestions would be helpful. What do you eat when your not feeling well?

Well, not eating isn't an option, as that won't help but only hurt. The probability is that you have another sensitivity. Your best move is probably to try identifying what that might be. For a lot of us, it's dairy, so you might want to try eliminating dairy (assuming you haven't already) and see if that leads to further improvement. Or you can go over what you ate in the past few days and see if there might be another trigger.

I'm sorry I don't have any specific suggestions. I guess what I'm mainly saying is that you'll probably feel better fastest if you feel you're taking action towards finding a solution. I hope this is the case for you and that you find your answer soon. Best of luck.

Jana315 Apprentice
Jana315
Posted

Try going back to the basics - for me, that would be organic chicken or beef broth with Glutino rice crackers. Maybe add a couple of eggs into the broth - if you tolerate eggs. I can have cheese too, so I'll have some cheese on those days & just try to keep it simple, like that and then add back other foods one at a time that you deem safe & see how you feel.

GL- Jana

ranger Enthusiast
ranger
Posted

I like really bland foods - mashed potatoes, bananas,ect. But, I am desparate to gain weight, so even sick as a dog, you will see me shoveling it in!

Ms27 Newbie
Ms27
Posted
  • Author

Thank you very much for the helpful suggestions I really appreciate it. I guess I just associate all food with making me sick and not eating just feels better. I will start back with the basics and keep better track of what I am eating. I not have attempted to try dairy. I think I will wait a few more months.

Thanks so much!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748
    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.