Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's & Menstrual Issues


amh04

Recommended Posts

amh04 Newbie

I have been Gluten Free for 3 years now, I'm 24 years old. Previously I was on Birth control, but have been birth control free for about 1 year. In the past 3 or so months I have only had one period, its absolutely impossible that I'm pregnant. Prior to birth control I maintained a regular period. I have never been tested for Celiac's, but wondering if prior to going Gluten Free had I possibly done internal damage beyond repair that could being causing my menstrual issues. Maybe this is totally unrelated and it could be another health issue i.e. thyroid issues which run in my family. However curious if any others could lead me in the right direction or know of any links between celiacs and menstrual issues. Also, should be noted I maintain a normal weight, prior to gluten free I was actually a little heavier, but I'm very active, eat well and maintain a normal healthy weight, so missed menses is not because I'm underweight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaraLouise Explorer

I am also 24 years old and I have not had a real period in over 5 years. They contributed it to hypothalamic dysfunction, however I am not sold on the idea. I was really overweight and then underweight, now I am on the low side of the weight scale, but I am healthy and eat right. I was on birth control for awhile, but it made me feel awful, so I quit taking it (haven't told my doctors yet). Feel free to message me more, it is nice to know someone my own age who is experiencing this.

amh04 Newbie
I am also 24 years old and I have not had a real period in over 5 years. They contributed it to hypothalamic dysfunction, however I am not sold on the idea. I was really overweight and then underweight, now I am on the low side of the weight scale, but I am healthy and eat right. I was on birth control for awhile, but it made me feel awful, so I quit taking it (haven't told my doctors yet). Feel free to message me more, it is nice to know someone my own age who is experiencing this.

Hi, Cara

I just looked into hypothalamic dysfunction because I hadn't heard of it before, I'm wondering if you suffer from the frequent urination as well? I'm at a loss at this point, and now I'm also without insurance and not sure I can afford to get to the bottom of this. I thought I had pinpointed Gluten as the culprit but with the lack of period now along with other systems I no longer believe are "normal" I'm wondering what this could be. How long have you been Gluten Free and did you notice changes with the diet? Did you notice your weight loss after going gluten free? I was about 15 pounds heavier before gluten free on a small 5"2 frame, but all that weight loss was pure inflammation from what I believe to be the gluten. Also good to have found someone my age that is can relate, good luck and hope to hear from you.

NicoleAJ Enthusiast

The problems may not be related to celiac at all. I'm 29 and used to have regular periods, but then I went on the Nuvaring when I started to have ovarian cysts bursting frequently. I've been off of birth control for about 9 months, and in the past 110 days, I've only ovulated once. I just went to my obgyn two weeks ago, and she said everything looks normal and my pap was fine, but I have oligoovulation--it's not really something that's dangerous, and it doesn't necessarily stem from something more serious (after running all of the appropriate tests). She said it's not really a problem, except that it can be more of a challenge to conceive since you never really know when you're ovulating. My grandmother, who's not from the side of the family that the celiac came from, used to have the same problem, and she ended up having 4 children, so for now I'll just cross my fingers that I'll ovulate again soon, but I won't really worry about it too much. The doctor said if I'm really anxious to get pregnant, I can try Clomid, but that at my age, it's not necessary.

daphniela Explorer

I am 29 years old. I have always had issues with my period. I have never had regular periods. I have gone 18 months without a period. I started to have regluar periods about 45 days apart after going gluten free. Now I am not having any. The doctors don't know the cause. I was on birth control when I was 16 to reglulate my periods. I took myself off of it because I had severe PMDD with it. I would literally blackout and not remember anything I said or did. I was told on an amenorrhea forum not to use birth control for this problem. It can make you become infertile. It is better to practice Natural Family Planning.

CaraLouise Explorer

We must be about the same size. I am 5'2" as well and yes I do have frequent urination. I was on medication for awhile but it didn't help a whole lot and I like you believe my overweight (I lost 80 lbs in like 4 months - don't know how, I guess I just deflated) was from inflammation. Let me know what you find out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...