Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ravenwoodglass

Amyleigh0007

Recommended Posts

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I noticed you have your gluten sensitivity gene test results from Enterolab in your signature. I just got my results for the same test back yesterday. This might be a nosy question but.... What did they tell you about your results? My results were as follows:

HLA-DQB1 Molecular analysis, Allele 1: 0302

HLA-DQB1Molecular analysis, Allele 2: 0301

Serologic Equivalent: HLA-DQ 3,3 (Subtype 8,7)

The interpretation says since I have a Celiac gene and a gluten sensitivity gene that I have a stronger predisposition to develop problems with gluten. I have no idea what all the numbers mean. You are so knowledgeable about all things Celiac. Can you shed some light on what the numbers mean? Thank you!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I noticed you have your gluten sensitivity gene test results from Enterolab in your signature. I just got my results for the same test back yesterday. This might be a nosy question but.... What did they tell you about your results? My results were as follows:

HLA-DQB1 Molecular analysis, Allele 1: 0302

HLA-DQB1Molecular analysis, Allele 2: 0301

Serologic Equivalent: HLA-DQ 3,3 (Subtype 8,7)

The interpretation says since I have a Celiac gene and a gluten sensitivity gene that I have a stronger predisposition to develop problems with gluten. I have no idea what all the numbers mean. You are so knowledgeable about all things Celiac. Can you shed some light on what the numbers mean? Thank you!!

Hi Amy, Basically they told me the same thing that they told you except in my case I have 2 gluten senstive genes. I didn't learn my gene was considered a celiac related gene rather than a GI gene in other countries until I entered my genes, DQ9 (You are a DQ8 and DQ7) into a search engine and then looked at results. Note I do not even bother looking at Wikipedia results that come up as they IMHO are less than a reliable source for research. I personally would say that with one of the US recognized celiac related genes that doctors here would have no issues with calling you celiac. If I had been gene tested before I was diagnosed instead of 5 years later they would have given me an RA diagnosis. But by the time I was gene tested all my RA symptoms had thankfully gone into remission.

Nora is much more knowledgeable about the gene stuff than I am so hopefully she will read this and also give you some input.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Amy,

We're HLA-DQ twins... I'm a DQ8/DQ7 too.

Like ravenwoodglass said, Wikipedia is a good place to start:

Open Original Shared Link

It seems like everything I read these days (about lupus, vasculitis, mast cell disorders, etc...) keeps pointing back to one of these genes. You can find a LOT of interesting tidbits through google.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author

I would LOVE to show my gene results to the doctor that did my blood test for Celiac. He pretty much said I couldn't have Celiac because I am not elderly and he brushed me off. My 9 year old son is not elderly either but he has biopsy proven Celiac. Go figure! Thank you so much for the information!

ravenwoodglass Mentor
ravenwoodglass
Posted
I would LOVE to show my gene results to the doctor that did my blood test for Celiac. He pretty much said I couldn't have Celiac because I am not elderly and he brushed me off. My 9 year old son is not elderly either but he has biopsy proven Celiac. Go figure! Thank you so much for the information!

I would copy those gene results and send them to him marked personal and confidential or make an appointment and let him know. They can't learn if we don't teach them.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author
I would copy those gene results and send them to him marked personal and confidential or make an appointment and let him know. They can't learn if we don't teach them.

I made an appointment for Monday! I wonder if he will give me a diagnosis or send me on my way with nothing again? We shall see.....

ksymonds84 Enthusiast
ksymonds84
Posted

I got my gene results last week too.

HLA-DQB1 Molecular analysis, Allele 1: 0201

HLA-DQB1 Molecular analysis, Allele 2: 0302

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,8)

I didn't know you had to be eating gluten to be tested properly so my tests were negative. My family doctor was very impressed that my symptoms 80% cleared up with a gluten free diet so diagnosed me on positive dietary response in March of 08. I still questioned and wondered if it was something else since I couldn't get over 80% better.

I feel better now with having both main celiac genes that I am on the right track and won't do gluten challenges EVER again.

Amy if your doctor doesn't diagnose you with celiac, I wouldn't worry about it. Your son is diagnosed and you have a main gene and you respond to the gluten free diet, if he doesn't see it than that is his ignorance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author

Thanks Kathy. This is the same doctor that dx me with IBS 20 years ago. He has blown off my gastro issues my entire life. I am done with him. If he says anything I am not happy with I am going to request my entire health file and start seeing a different doctor. I know MUCH more about Celiac then I did one year ago when I got my blood test so I am prepared this time!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.