Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Discrimination

KSUmarlow04

By KSUmarlow04
in Publications & Publicity

Recommended Posts

MissyJoy Rookie
MissyJoy
Posted

I for one am very proud of you! This is your own personal battle, but we are all rooting for you! And you are setting a good example for the rest of us. Thank you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

THANK YOU everyone for your support. I checked this website everyday because it gave me the courage to keep arguing.

Although I got my exemption, I have not gotten my refund yet. I will keep an eye on that and call in a few days if it doesnt show up. My mom and I are going to whole foods for a gluten free food shopping spree when I get my money back!

I also wanted to let everyone know that the University newspaper contacted me about doing an article on the difficulties I had with getting the exemption. They are calling me tomorrow morning (8/13) for a phone interview and my article is going to be in the first issue of the school year which I will post on here for everyone to see! I do not want this article to be bashing the school for what they put me through but rather an opportunity to raise awareness to the community at KSU. Although my school paper only reaches the 20,000 people who attend KSU, I still feel a sense of accomplishment and will have pride in the article.

Thanks again and I cant wait for everyone to read my article next week!

jerseyangel Proficient
jerseyangel
Posted

Wow--good going and congratulations!! :D I'm so glad they finally did the right thing.

Mskedi Newbie
Mskedi
Posted
FINAL UPDATE: I DID IT!!

Awesome! Hopefully you've set a precedent so that other people with Celiacs or allergies will not have to go through all the trouble you did.

I look forward to reading that article. :)

Takala Enthusiast
Takala
Posted

I also look forward to reading it. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad this has turned out well for you. I was appalled at what they were trying to do to you. When my DD entered college in Mass in 2004 not only did they excempt her from the meal plan they even put her in senior housing so she would have her own kitchenette. Silly me thought all colleges would be as accomodating. You showed a lot of strength in fighting so hard for your rights, you should be proud of yourself for that. I hope your last semester goes well and I look forward to reading the article.

RESO Apprentice
RESO
Posted

I keep seeing these abbreviations, dd, ds, dh... I guess the second letter is daughter, son, husband? But what is this first d? darling? doofus? dear? deer? dainty? deliberate? disconcerting? :D Thanks if someone can explain.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

I am so proud of you for standing up for yourself. I think you will find that this will be a building block that will help you all your life! I hope the paper will let you share your story with this board.

RESO, the "d" can stand for all of those (or others) depending on how well you like the person that day. lol

usually stands for "darling" in my circle.

This site has a good listing for reference:

Open Original Shared Link

KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

HERE IT IS!!

My article came out last night (8/18) and I have already gotten a phone call from another student who was denied an exemption and she is allergic to several things such as seafood and nuts.

Enjoy the article! I know I did!

Open Original Shared Link

Thank you again everyone!

JillianLindsay Enthusiast
JillianLindsay
Posted

Way to go! I enjoyed it :) I'm a senior psych student also.

Enjoy your gluten-free food this semester,

Jillian

HERE IT IS!!

My article came out last night (8/18) and I have already gotten a phone call from another student who was denied an exemption and she is allergic to several things such as seafood and nuts.

Enjoy the article! I know I did!

Open Original Shared Link

Thank you again everyone!

jerseyangel Proficient
jerseyangel
Posted

Very nice!!! :D

NicoleAJ Enthusiast
NicoleAJ
Posted

Well done! More must be done to make universities aware of the need for accommodating celiacs--even if that accommodation consists of an exemption from dining services. I'm really skeptical about their supposed understanding of cross contamination. Just because you can see them cook the food doesn't mean that there's nothing in it, the pans, the utensils, the cutting boards, etc that isn't gluten free. In the early days of my diagnosis, I would watch my mother-in-law cook something for me and then would get violently ill--seeing is not believing that it's completely free of gluten.

  • 5 months later...
KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

As for the meal plan, I dont think I made too big of an impression because the school is still not allowing exemptions. I had a lot of people call/email me and say they were having the same problem. One girl got an exemption last semester after a great deal of effort only to find out that she would have to put up the same fight this semester. They didnt exempt her again!

I was proud of myself until I found out that they were only giving me the exemption to shut me up. They really dont understand the disease, nor do that have any sympathy for the students.

Takala Enthusiast
Takala
Posted

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

As for the meal plan, I dont think I made too big of an impression because the school is still not allowing exemptions. I had a lot of people call/email me and say they were having the same problem. One girl got an exemption last semester after a great deal of effort only to find out that she would have to put up the same fight this semester. They didnt exempt her again!

I was proud of myself until I found out that they were only giving me the exemption to shut me up. They really dont understand the disease, nor do that have any sympathy for the students.

___________

Congratulations on your graduation, and for at least setting a precedent so that other students know that they can beat down the doors of ignorance.

jerseyangel Proficient
jerseyangel
Posted

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

Congratulations! :)

Thanks for the update--frustrating, though, that they still don't get it.

AKcollegestudent Apprentice
AKcollegestudent
Posted

I'm in the middle of something similar at my school--thanks for at least giving me an example to follow.

DownWithGluten Explorer
DownWithGluten
Posted

:blink: I sat here reading this thread and am just appalled/shocked at the ridiculousness of it. Forcing you to pay for something that can harm you when they are not willing to accommodate or pay for the medical bills. That's just terrible.

Good job for getting them to revoke your mandate, even if you don't feel it started a revolution or anything. You still made somewhat of a point, and stood up for yourself and didn't just allow them to get away with it for you. So, good job. I'll read your article later!

This thread makes me angry, though, for what they were trying to force. Jerks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.