Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Coincidence? Or Another Piece To The Puzzle?

Maggs05

Recommended Posts

Maggs05 Rookie
Maggs05
Posted

It looks like we may have another piece of the puzzle that points to celiacs.

Ds has been gluten free for almost 5 weeks now, he has gained 2 lbs in that time. He has never gained weight the way average kids do. He's lucky if he gains a lb in a year, let alone 2 in 5 weeks.

So far his indicators are:

a) Initially slow weight gain & loss at times.

B) Small stature.

c) Iron deficient (even though he eats plenty of iron rich foods and takes a multi-vitamin with iron).

d) Before gluten free - Severe cramping and diarrhea.

e) After gluten free - No symptoms and vast weight gain.

I'm still holding out hope that he isn't Celiacs, but it is becoming more and more apparent that indeed it probably is.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amyleigh0007 Enthusiast
Amyleigh0007
Posted

That is awesome!!! It sounds like his body is healing and he is absorbing his nutrients. One of the first improvements we saw with my son was the weight gain too.

ang1e0251 Contributor
ang1e0251
Posted

I would say you just found the biggest, most humongous piece of the puzzle! Growth and development are the keystones of health. Congratulations, Mom!

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Sorry if you posted this before...

Have you had him tested for Celiac?

Darn210 Enthusiast
Darn210
Posted

I think you're on the right track!! Glad he's gaining weight.

I'm still holding out hope that he isn't Celiacs, but it is becoming more and more apparent that indeed it probably is.

I just want to say that this feeling is normal and you'll get past it. I was really hoping my daughter didn't have Celiac. Then I started asking myself . . . "Well, what is it that I want her to have instead?" At the time she was on an antacid and had been for a while. She was only six at the time. Did I really want her on a prescription antacid for the rest of her life? Plus, the increase awareness, changes in food labeling, mainstream food manufacturers getting on board . . . it's getting a lot easier to manage this diet. A friend of mine had to do a gluten-free trial diet with her son about 7 years ago (didn't have to stay on it though). She can't believe the number of products that are available now.

Maggs05 Rookie
Maggs05
Posted
  • Author
Sorry if you posted this before...

Have you had him tested for Celiac?

No not yet. We are just in the initial phases of it. I live in Canada and unfortunately it can take a very long time to get through the system.

We just seen the ped (after waiting on the referral from our family dr.) this morning. Ds is currently back on gluten for 6 weeks and then will have the blood test. Unfortunately the blood test is not covered by OHIP (our universal health coverage). It just changed as of Aug. 1st. That's my luck. The test is $150.00.

Once the results are back and depending on what it indicates, ds will be referred to a ped-gastro, which is two hours away from us to have the biopsy.

I am currently waiting on baited breath, for any signs and symptoms. Ds had lunch and within two hours he said his tummy hurt. My heart sank. He did have a bm, but it was normal. So I sit here continuing to hope that his symptoms do not return.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I'm so sorry for what you're having to go through. I figured he'd be back on gluten once you saw the doctor. If he has Celiac the next few weeks might be really rough on both of you (because of the gluten in his diet). Hang in there and don't be afraid to come here to rant and even cry on a virtual shoulder or two. Stay focused on the goal - figuring out what made your son so sick.

If you find out he does indeed have it, don't fret. It can be a challenge, but the diet is doable. Our whole family is gluten free at home (only my son has Celiac though), and none of us minds. It just takes time to learn how to do it.

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Maggs05 Rookie
Maggs05
Posted
  • Author

Thanks for the reply. It's always nice to know that you can come here and get support.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.