Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Two Phrases I Don't Want To Say Anymore...


Tabasco

Recommended Posts

Tabasco Apprentice

It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator
It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.

I'll second that!.. I just learned to live with all the dis-conforts, but it was the many years of the DH itch that finally got diagnosed 2 months ago.. Life is getting a little better each day..

runningcrazy Contributor
It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.

Have you just been diagnosed or are you giving it a go yourself? Either way good luck and I wish you good health and hope your stommach issues VANISH!

Were working on figuring out mine, after 2 negative blood tests and doctors who treated us like I'm stupid and making it up, I hope enterolab will give me some info, although i know it wont diagnose me I'd like to have some insight on genes, etc..

ravenwoodglass Mentor

Sure do know. I hope the diet helps you. The diagnosis process can be a long and hard one for some of us. It sure was for me. LOL If the diet helps it can seem almost miraculous the difference in the way we feel. It is hard at first and there is a lot to learn but it is so worth it if gluten is causing the issues.

Tabasco Apprentice

No diagnosis yet and I don't want to talk myself into having celiac disease or GS. I know how I am. A little bit of knowledge can be dangerous! It's just eery how I have so many of the "symtoms" that I am reading about.

My latest "thing" is completely forgetting to finish a word or a thought. I'll start a sentence and just stop. My husband will look at me like "well?" and I just can't remember the word.

I do have ADD that i am not treating because the meds cause headaches.

Ya know...now that I think about it...at my last visit with my rheumatologist, I was told that I had very low vitamin D deficiency (22 ng/ml) and I think she also told me that my B12 was low too.

I was given a prescription for 50,000 units of Vit D and she told me to buy OTC calcium and B12.

Putting all of the pieces together brings the big picture together, doesn't it?

I'll get there.

Hurry up 8/31!!!!!

ang1e0251 Contributor

Good luck on your testing! I hope you'll give the gluten-free diet a test run even if your tests are negative. That's the only way you'll know.

The phrase I never want to say again is "I'm so tired of being tired."

SunnyJB Newbie

Completely understand your frustration!!

Here's to finding a way to live without pain!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

Don't let the test results stop you from trying the diet. I had negative bloodwork ( had been gluten free for a month - duh, doc), and negative endo ( quick look - 1 biopsy), but went on the diet anyway. I knew my body. Am feeling better every day. Try the diet for a few months and see if thats what it is. Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,820
    • Most Online (within 30 mins)
      7,748

    Maretta
    Newest Member
    Maretta
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.