Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kids With Differing Symptoms...


kiwi-mum

Recommended Posts

kiwi-mum Newbie

I have a 3 yr old DD with multiple food allergies (incl wheat) and an 18 mth DS with no food allergies. Both eat extremely well with lots of fruit, veges, grains and meat and only drink milk (or soy for DD) and water and limited diluted juice on occasion.

I had only thought of this for DD - she suffers from loose b/ms constantly and sometimes it contains a tremedous amount of mucus. She complains of tummy ache from time to time. And as you can imagine it doesn't help with potty training

DS on the other hand seems to be constantly constipated, was on a bowel softener which works but of course that doesn't solve the problem.

So I am waiting for the blood results to come back for DD but am wondering if after reading other people's symptoms whether or not DS could also have Celiac. I am at a loss as to how two kids who eat virtually the same can be polar opposite for b/ms.

Of course if DD's blood results come back as neg I will be totally stumped and at a loss for the cause of this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chiroptera Apprentice

Hello. Both Celiac disease and gluten intolerance can present with so many symptoms it would not be uncommon for your children to have different issues. I have twin daughters who the doctors are very sure have Celiac (awaiting final test results) and one of them had constipation for years then in the last two had constant loose stools with lots of mucous. Her twin sister never had either bathroom problem but had stomach pain, reflux, headaches. Some of their symptoms were the same such as muscles aches, dental hypoplasia but some were very different, and they are identical twins who eat and drink exactly the same. Good luck to you and your little ones! It is so very hard to know something isn't right with your children but not know what it is.

Genna'smom Apprentice

Hi

Please also rememebr that blood tests are not always accurate especially at this young age. My daughter who was 22 months was tested for it and the only symptoms that she might have had were constipation and acid reflux..... nothing else till she jsut stopped eating and drinking anything.... Long story short ened up with feeding tube and ended up with a biopcie to check her acid reflux and found early warnign stages of celiac's disease......

SO my advice to you is if a glutten free diet works then go with it...

julie13 Newbie

Hi! I have two boys 3 and 16 mths. My older boy had the same symptoms as your child. I had him tested and it was negative. I found out that children under 5 have high false negatives. So I put both of my kids on the Gluten free diet. They have been on it for 4 months now. And all of my sons symptoms are gone. No more stomachaches, mucus bowels etc etc. It was wonderful. My younger child has also benefit from the diet. He grew 2 1/2 inches the first 2 months. If you get a negative still try the diet you will see a world of difference. The first 2 months are the hardest. YOu will get used to it. Don't be surprised if your 3yr old is REALLY hipper or has melt downs. It will calm down once they are used to the diet. GOod luck!!

kiwi-mum Newbie

thanks for the replies, I am trying to be patient and wait for the doctor to call us back today.

anita

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,699
    • Most Online (within 30 mins)
      7,748

    RelievedP
    Newest Member
    RelievedP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
    • cristiana
      @Gigi2025  Thank you for your interesting post.  Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you  - they will eat normal wheat baguette there without issue, for example.  His theory was he thought it might be to do with the locally sourced wheat being different to our own in the UK? But I have to say my own experience has been quite different. I have been to France twice since my diagnosis, and have been quite ill due to what was then (pre-2019)  poor labelling and cross-contamination issues.  My TTG test following my last visit was elevated - 'proof of the pudding', as we say in the UK!  It was not just a case of eating something like, say, shellfish, that disagreed with me - gluten was clearly an issue. I've also been to Italy to visit family a couple of times since my diagnosis.  I did not want to take any chances so kept to my gluten free diet, but whilst there what I did notice is that coeliacs are very well catered for in Italy, and many brands with the same ingredients in the UK are clearly marked on the front of their packaging that they are 'senza glutine'.  In the UK, you would have to find that information in the small print - or it puts people off buying it, so I am told!  So it seems to me the Italians are very coeliac aware - in fact, all children are, I believe, screened for coeliac disease at the age of 6.  That must mean, I guess, that many Italian coeliacs are actively avoiding gluten because, presumably, if they don't, they will fall ill?        
    • deanna1ynne
      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
    • knitty kitty
      Have you tried a genetic test to look for Celiac genes?  No gluten challenge required.  
    • knitty kitty
      Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet?  A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies.  Are you Celiac as well?   Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine Vitamin B 1, can help the body calm down it's release of histamine.  Benfotiamine improves Sailors' asthma.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.