Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here...do Test Results Mean I Have Celiac?

Mom2Boys

Recommended Posts

Mom2Boys Newbie
Mom2Boys
Posted

I am working with a new doctor to try and figure out why I am tired and sleepy so much and he ordered a lot of tests. When I spoke to him last night, he went over my labs with me. Based on the Gliadin AB IGG being 38 (a positive result is >17), he said he's almost certain I have Celiac. He said the only way to confirm for sure is to have a biopsy done, but he doesn't think it's necessary. My Gliadin AB IGA was 7 and <11 is considered negative. He also ordered HLA typing for Celiac, but those results aren't back yet. He told me I needed to eliminate gluten from my diet and get tested for additional food allergies. I am hypothyroid and he said that is likely from the gluten sensitivity.

All of the testing is confusing. Is the Gliadin AB IGG a strong indicator for celiac or should there be further testing to confirm?

Thanks for any help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I personally would just go ahead and start the diet as your doctor advised. If you do choose to go for a biopsy keep eating gluten until that is done and since there is a chance of a false negative with the endo do start the diet as soon as the endo is done.

JillianLindsay Enthusiast
JillianLindsay
Posted

It's a personal choice too. Some people absolutely need to know 100% for sure that they have celiac disease before embarking on the high-maintenance gluten-free diet. Others only need a positive response on the diet to motivate them to stay gluten-free :) Also you may want to see if your DR is willing to give you a complete Dx (diagnosis) for insurance purposes. Depending on where you live, some people get a tax break on the more expensive gluten-free foods, or a subsidy for groceries, etc. I am also waiting for my HLA typing results. Good luck and welcome to the forum!

Mom2Boys Newbie
Mom2Boys
Posted
  • Author

Thanks for the replies! I just got back from the bookstore with the "Gluten-Free Bible" that my doc recommended, so hopefully it will be helpful and not too technical. My doc was explaining that he likes to rely on the IGG results more so than the IGA results; is this typical? My doc is conventionally trained but takes a more alternative approach to his practice. He was saying that he wants to do more IGG food testing, but most insurance companies won't cover it...anyone know why not? Also, what will the HLA results show?

Thanks so much!! (Sorry so many questions.)

Lisa Mentor
Lisa
Posted

Here is some information for you:

Open Original Shared Link

This is a great place to learn about the diet. Welcome

happygirl Collaborator
happygirl
Posted

You may be interested in running the total IgA, the tTG IgA, and/or EMA IgA tests - discuss with your doctor.

GFPamela Newbie
GFPamela
Posted

what will the HLA results show?

I think the article at celiac.com, "Ten facts you need to know about celiac genetic testing" by Scot Lewey was really helpful to me. And there are others too. I'm waiting for preauthorization by my insurance company, but I'm still going to have a biopsy after a five-week 'gluten challenge' (after being gluten free for 2 yrs). It would have been easier 2 years ago, but I was not well informed. However, many people are satisfied by the positive effects of the diet, so it's a very personal decision. Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted

The anti-gliadin IgG is considered more sensitive than some of the other tests (it will detect a disease state more often than some of the other tests) but, some consider it to be less specific (it may be positive in disease states other than celiac).

But I wonder if some of the "false positives" are true positives, because if you read long enough on this board, you will encounter more than one person who may have had a positive antibody but a negative biopsy.

I think its really good that your Dr. order the HLA test, and I would read all the info offered by the posters in this thread!

BettyinMD Newbie
BettyinMD
Posted

I don't think companies like to cover a bunch of testing, because there isnt anything in it for them!

If you are allergic/intolerant to a food(gluten) then the cure is to not eat it! <_<

BettyinMD Newbie
BettyinMD
Posted
I am working with a new doctor to try and figure out why I am tired and sleepy so much and he ordered a lot of tests. When I spoke to him last night, he went over my labs with me. Based on the Gliadin AB IGG being 38 (a positive result is >17), he said he's almost certain I have Celiac. He said the only way to confirm for sure is to have a biopsy done, but he doesn't think it's necessary. My Gliadin AB IGA was 7 and <11 is considered negative. He also ordered HLA typing for Celiac, but those results aren't back yet. He told me I needed to eliminate gluten from my diet and get tested for additional food allergies. I am hypothyroid and he said that is likely from the gluten sensitivity.

All of the testing is confusing. Is the Gliadin AB IGG a strong indicator for celiac or should there be further testing to confirm?

Thanks for any help!

Were you already gluten free when you had those tests done? Or does it matter?

I understand that one can be gluten intolerant but NOT have celiacs...are the tests the same I wonder?

I only ask, cause lately there seems to be a few of us with hypothyroid that suspect gluten intolerances, and so Im just trying to learn..I had my follow up appt yesterday, but didnt even get in to see the doc..(logn story)

Keep us posted!! :)

Chuck8268 Rookie
Chuck8268
Posted
I am working with a new doctor to try and figure out why I am tired and sleepy so much and he ordered a lot of tests. When I spoke to him last night, he went over my labs with me. Based on the Gliadin AB IGG being 38 (a positive result is >17), he said he's almost certain I have Celiac. He said the only way to confirm for sure is to have a biopsy done, but he doesn't think it's necessary. My Gliadin AB IGA was 7 and <11 is considered negative. He also ordered HLA typing for Celiac, but those results aren't back yet. He told me I needed to eliminate gluten from my diet and get tested for additional food allergies. I am hypothyroid and he said that is likely from the gluten sensitivity.

All of the testing is confusing. Is the Gliadin AB IGG a strong indicator for celiac or should there be further testing to confirm?

Thanks for any help!

I was always under the impression a biopsy was the gold standard.But maybe that has changed since my Diagnosis over 6 yrs ago.

Chuck

Mom2Boys Newbie
Mom2Boys
Posted
  • Author
Were you already gluten free when you had those tests done? Or does it matter?

I understand that one can be gluten intolerant but NOT have celiacs...are the tests the same I wonder?

I only ask, cause lately there seems to be a few of us with hypothyroid that suspect gluten intolerances, and so Im just trying to learn..I had my follow up appt yesterday, but didnt even get in to see the doc..(logn story)

Keep us posted!! :)

Hi BettyinMD. No, I wasn't gluten free when the tests were done. My doc wants me to go off gluten and then will retest the gliadin antibody levels in 4 months. I've been reading more and I need to give my doc a call. It sounds like other tests are normally used to help diagnose celiacs, but not the gliadin tests I had done. Apparently, the gliadin tests are good for follow-up to see if the antibodies to gliadin (a component of gluten) are going down. I'm still awaiting results of the HLA typing for celiacs, but I think that just shows the genetics that could make one more susceptible to having celiacs. I want to ask my doc why he ordered the gliadin antibody tests and not the other ones mentioned in this post; I'm sure he has his reasons.

I am hypothyroid, too. The doc said that my hypothyroid could be a result of the celiacs or gluten intolerance. I went to this doc because my family MD wasn't really helping much. I've been feeling very tired and my family doc just blames everything on my extra weight. I'm in PA, but my new doc is in MD. I really like him, but just wish he was closer.

Mom2Boys Newbie
Mom2Boys
Posted
  • Author
I was always under the impression a biopsy was the gold standard.But maybe that has changed since my Diagnosis over 6 yrs ago.

Chuck

Hi Chuck. Yes, you are right. My doc is more alternative in his approach and just feels there's no need to put me through the biopsy if he's fairly sure it's celiacs. As I learn more, I may decide to have one done. I know he would prescribe it if I wanted to have it done.

Mom2Boys Newbie
Mom2Boys
Posted
  • Author

Thank you for all the help...I've been reading everything recommended and trying to absorb it all. If I turn out to be gluten intolerant and not have celiacs, what is the difference? Both would require eliminating gluten from my diet, right?

Can gluten be found in things other than foods, like cosmetics, lotions, pills, supplements, etc.? How do you know what is safe to use and what isn't?

Thanks!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.