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Greetings From Albuquerque New Mexico


mpadilla2

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mpadilla2 Newbie

Hi my name is Melissa and I just received a positive diagnosis yesterday.

  • 4 weeks later...

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Ellene Newbie

I am in Santa Fe. So close by

Hi my name is Melissa and I just received a positive diagnosis yesterday.
  • 8 months later...
killer-cocoa Newbie

Hi. I live in Albuquerque as well and have been living with celiac for a year and a half. It's difficult because Albuquerque has few resources for those with celiac. I am currently visiting family in Maryland and have found many places dedicated to the gluten intolerant. I wish Albuquerque could open some restaurants. I'm tired of only being able to eat meat, salad and fries. >_<

  • 3 weeks later...
shanedog Newbie

Hi, I'm in Las Cruces and was diagnosed Friday, June 25.

I can relate to the difficulty of having few resources for us. I'm just trying to get educated to the nuances of gluten-free and Las Cruces offers very little help in this arena.

The 2 stores that carry gluten-free items here are waaay expensive, and only 1 WalMart has a gluten-free shelf, and it's about 4 or 5 feet long with very little on it.

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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