Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here And Going Through Changes...

TammyJean

By TammyJean
in Coping with Celiac Disease

Recommended Posts

TammyJean Newbie
TammyJean
Posted

Hi All,

I just found out that I have Celiacs and have now been gluten free for 1 week. The first few days were really hard but I think I am getting good at determining where hidden gluten is. I personally had bad bloating/gas and an upset stomach after having eating gluten...but now that I have been off of it I have started having HORRIBLE heartburn (so bad it feels like a tight belt around my chest and sometimes I feel the indigestion under my ribs) it has been constant for 3 days. I have NEVER had heartburn before. Did any of you go through withdrawal symptoms or weird changes like this when you changed your diet. I am taking probiotic, prilosec and digestive enzymes, and am leaving now to pick up a few more gut repair vitamins and herbs. Thank god I have a friend (who is a nurse) who has had this for 8 years so the transition is easier. Just wondering if this is all normal to go through these changes and what you all went through. *My gas/bloating is better, but this heartburn is all new! Any advice is greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Hi All,

I just found out that I have Celiacs and have now been gluten free for 1 week. The first few days were really hard but I think I am getting good at determining where hidden gluten is. I personally had bad bloating/gas and an upset stomach after having eating gluten...but now that I have been off of it I have started having HORRIBLE heartburn (so bad it feels like a tight belt around my chest and sometimes I feel the indigestion under my ribs) it has been constant for 3 days. I have NEVER had heartburn before. Did any of you go through withdrawal symptoms or weird changes like this when you changed your diet. I am taking probiotic, prilosec and digestive enzymes, and am leaving now to pick up a few more gut repair vitamins and herbs. Thank god I have a friend (who is a nurse) who has had this for 8 years so the transition is easier. Just wondering if this is all normal to go through these changes and what you all went through. *My gas/bloating is better, but this heartburn is all new! Any advice is greatly appreciated.

No doubt folks with similar experiences giving up gluten will show up any minute, but I had an odd experience more recently giving up other things. Giving up gluten was no problem for me at all, but last month I gave up dairy and fruits and more recently gave up soy. Suddenly, tomato sauce, which never gave me any trouble at all, started causing very significant acid reflux. So I'd say any change in your diet, however seemingly minor (I wasn't using much soy, and when I gave it up was when the tomato problem started) can cause surprising effects in your digestive system.

Hope it clears up soon, and welcome to the board.

Gfresh404 Enthusiast
Gfresh404
Posted
Hi All,

I just found out that I have Celiacs and have now been gluten free for 1 week. The first few days were really hard but I think I am getting good at determining where hidden gluten is. I personally had bad bloating/gas and an upset stomach after having eating gluten...but now that I have been off of it I have started having HORRIBLE heartburn (so bad it feels like a tight belt around my chest and sometimes I feel the indigestion under my ribs) it has been constant for 3 days. I have NEVER had heartburn before. Did any of you go through withdrawal symptoms or weird changes like this when you changed your diet. I am taking probiotic, prilosec and digestive enzymes, and am leaving now to pick up a few more gut repair vitamins and herbs. Thank god I have a friend (who is a nurse) who has had this for 8 years so the transition is easier. Just wondering if this is all normal to go through these changes and what you all went through. *My gas/bloating is better, but this heartburn is all new! Any advice is greatly appreciated.

Any kind of sudden change in anyone's diet is going to cause some kind of upset. So yes, what you are experiencing is very common and should pass rather quickly.

I have been gluten free for nearly 9 months and still get the occasional heartburn if I eat a lot of grains.

You also might want to consider the fact that too many digestive enzymes and probiotics could create too much stomach acid, which could be the cause of your heartburn. It is unlikely though, as heartburn is usually due to not enough stomach acid. But it is still something to look into.

I myself am sort of a pill junky, but I have learned that it is never good to take too many supplements at one time. It is always better to start off gradually and build yourself up. Also, remember that none of these holistic "medicines" are regulated by the FDA. So it is important to buy from a trusted company and to do a little research on anything that you are taking.

ravenwoodglass Mentor
ravenwoodglass
Posted

I have experienced the horrible pain that you are going through. The most helpful thing for me was name brand Pepto Bismal Liquid. It would stop the pain within a few minutes. Hopefully your freind has told you of the dangers of crosscontamination and has told you what kitchen items you can still use and what you need to toss or donate. Just in case she hasn't.... You need a new cutting board, if you use wooden spoons they need to be changed out to new ones, scratched teflon or old pans for gluten foods that can not be cleaned to sparkling new state need to be replaced. Don't share a toaster, get a new one for your own use if there are gluten eaters in your household make sure they use the old one not yours. You also need your own condiments, pnut butters and jelly etc. If you have spices or sugar that you might have dipped a gluteny spoon in toss them and replace. Also something may don't think about is any significant other who is eating or drinking gluten needs to throughly brush their teeth and rinse their mouth before any 'deep' kissing. Some of us also benefit from making sure all toiletries and makeup are gluten free. There is a lot to being gluten free that involves much more than just food but it gets easier in time. I hope you are feeling better soon, it is not unusual to have some ups and downs for a bit.

amandabear20 Rookie
amandabear20
Posted
Hi All,

I just found out that I have Celiacs and have now been gluten free for 1 week. The first few days were really hard but I think I am getting good at determining where hidden gluten is. I personally had bad bloating/gas and an upset stomach after having eating gluten...but now that I have been off of it I have started having HORRIBLE heartburn (so bad it feels like a tight belt around my chest and sometimes I feel the indigestion under my ribs) it has been constant for 3 days. I have NEVER had heartburn before. Did any of you go through withdrawal symptoms or weird changes like this when you changed your diet. I am taking probiotic, prilosec and digestive enzymes, and am leaving now to pick up a few more gut repair vitamins and herbs. Thank god I have a friend (who is a nurse) who has had this for 8 years so the transition is easier. Just wondering if this is all normal to go through these changes and what you all went through. *My gas/bloating is better, but this heartburn is all new! Any advice is greatly appreciated.

I am in the same situation you are. I have been gluten free for almost two weeks, and im experiencing weird heartburn and gas/diarrea only when I drink milk...but im stubborn and I won't give up milk because cereal=my best friend. I know theres soy milk but I don't feel like changing. When I was on gluten I had the same symptoms as you plus a few more (irritable, depression, migraines, fatigue). I know how you feel starting out, and I also have a couple friends that have been doing this for a lot longer so it does help. hang in there! it will get easier. I've been told the withdrawal symptoms will go away with time, because it is a healing process.

:)

ravenwoodglass Mentor
ravenwoodglass
Posted
I am in the same situation you are. I have been gluten free for almost two weeks, and im experiencing weird heartburn and gas/diarrea only when I drink milk...but im stubborn and I won't give up milk because cereal=my best friend. I know theres soy milk but I don't feel like changing. When I was on gluten I had the same symptoms as you plus a few more (irritable, depression, migraines, fatigue). I know how you feel starting out, and I also have a couple friends that have been doing this for a lot longer so it does help. hang in there! it will get easier. I've been told the withdrawal symptoms will go away with time, because it is a healing process.

:)

You really need to drop the milk for now. There are some good subs for it that are really going to be a lot better for you, at least until you heal. I personally would not switch to soy, go with a safe rice milk, NOT Rice Dream, Pacific brands is safe as is the Wegmans brand. Almond or hemp milk are also good choices. You could have casien intolerance in which case milk may remain off limits even after you have healed but at the very least you are likely dealing with lactose intolerance. The same area that is damaged by celiac is the area that is responsible for forming the enzymes you need to digest cow's milk. Chances are you will be able to add it back in when you are finished healing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    2. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    5. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.