Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tried Oats For The First Time...ouch!


leadmeastray88

Recommended Posts

leadmeastray88 Contributor

So I was grocery shopping at Sobey's a few days ago and passed through their gluten free section...

I was so excited to see oatmeal there - Glutenfreeda's Maple Raisin with Flax oatmeal. This was the first time I've tried oats since going gluten-free a year ago.

I've had it every morning for the past couple days for breakfast...and I've been noticing that I get an intense headache about an hour later every time. Not sure if its coincidence..

It says its made in a dedicated facility and with pure uncontaminated oats. Is it possible for this to be a reaction then??

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I'm afraid so. Some of us don't tolerate oats either, no matter how pure they are.

Bea

JillianLindsay Enthusiast

Hi Kim :)

Which Sobey's was it?? I go to Unicity (close to home) and they have a lot of gluten-free options but not a dedicated section! I haven't been brave enough to try oats since going gluten-free sorry you didn't take to them well.

Speaking of local gluten-free options, have you tried the EnviroKidz organic cereals? I love the peanut butter panda puffs as a treat once in a while and bought some from Lorenzo's. Every time I eat them I get a bit of an upset stomach and feel tired.

Has anyone who has eaten these had a similar reaction? I just got results that I'm not lactose intolerant and I have milk on my creamy rice breakfast cereal with no problems, so I know it's not the dairy.

Thanks,

Jillian

So I was grocery shopping at Sobey's a few days ago and passed through their gluten free section...

I was so excited to see oatmeal there - Glutenfreeda's Maple Raisin with Flax oatmeal. This was the first time I've tried oats since going gluten-free a year ago.

I've had it every morning for the past couple days for breakfast...and I've been noticing that I get an intense headache about an hour later every time. Not sure if its coincidence..

It says its made in a dedicated facility and with pure uncontaminated oats. Is it possible for this to be a reaction then??

Thanks in advance!

leadmeastray88 Contributor
Hi Kim :)

Which Sobey's was it?? I go to Unicity (close to home) and they have a lot of gluten-free options but not a dedicated section! I haven't been brave enough to try oats since going gluten-free sorry you didn't take to them well.

Speaking of local gluten-free options, have you tried the EnviroKidz organic cereals? I love the peanut butter panda puffs as a treat once in a while and bought some from Lorenzo's. Every time I eat them I get a bit of an upset stomach and feel tired.

Has anyone who has eaten these had a similar reaction? I just got results that I'm not lactose intolerant and I have milk on my creamy rice breakfast cereal with no problems, so I know it's not the dairy.

Thanks,

Jillian

Hey Jillian!

This particular Sobeys was the one on Taylor Ave., though the one on Dakota also has a gluten-free section. That's too bad that yours doesn't! It's very convenient, may be worth the trip.

I absolutely love the Gorilla Munch by Envirokidz :) People at work make fun of me all the time for eating "5-year olds cereal" lol!

I've had the Panda Puffs before as well and have never had a reaction, hmm... I looked at the ingredients online and there's corn in it..have you noticed a similar reaction when you eat anything else with corn in it?

leadmeastray88 Contributor
I'm afraid so. Some of us don't tolerate oats either, no matter how pure they are.

Bea

Thanks Bea, I think I'll stop eating it from now on!

tarnalberry Community Regular

approximately 10% of celiacs have an immune response to avenin, the oat protein, because it is structurally very similar (but not identical) to gliadin.

sixtytwo Apprentice

I am gluten intolerant and tried regular oats a few weeks ago, twice, and became pretty sick. I think I may be one of those that just cannot do oats, period. I get neurological problems when I get glutened. Barbara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahp57 Contributor

have you tried any other brand of oats? i get bob's red mill whole grain rolled oats (gluten free labeled of course).

also how long have you been gluten free? i was pretty sick before i got diagnosed and the first time i tried oats i got sick. i waited a couple years until i was feeling 100% and tried them again. now i can eat them whenever i want :) so you could be intolerant, or if you were sick before you went gluten free, you may not be healed enough to tolerate them just yet...

nasalady Contributor

I just tried certified gluten-free oats for the first time since I went gluten free (Nov 2008). The following day I had severe D all day....clearly I can't eat oats, at least not yet.

I may try again after I've been gluten free for a year or so.

JoAnn

Darn210 Enthusiast

My daughter's GI recommended waiting until all of her symptoms resolved (OK, she only had one but it took a while to go away completely) before trying oats. Then try a safe (gluten-free) brand and only a small amount and wait awhile before trying it again. You may have done too much in a too short of a period of time. Have all your previous symptoms resolved? Did you get the headache on the first day you tried the oats??? I'd put them away for awhile and then try a small amount one more time . . . and probably make sure that you had other food with it, but that's me . . . and that also depends on if you are willing to put up with that type of reaction one more time if it doesn't work out.

WideAwake Rookie

This is interesting. I am self diagnosed and have felt a lot better off gluten for the past month and a bit. Normally I never have headaches, but I have been having oatmeal every morning the last 3 days to see how it goes, and each day I have had lingering dull headaches most of the day, which only started when I ate the bowl of oatmeal...

Can you have brand new symptoms even after a short time off gluten?

LuvMoosic4life Collaborator

I had bob's redmill gluten-free oats. 2 times. same reaction both times- cramping- watery yellow D ALL DAY!(sorry for the graphic)

LuvMoosic4life Collaborator
This is interesting. I am self diagnosed and have felt a lot better off gluten for the past month and a bit. Normally I never have headaches, but I have been having oatmeal every morning the last 3 days to see how it goes, and each day I have had lingering dull headaches most of the day, which only started when I ate the bowl of oatmeal...

Can you have brand new symptoms even after a short time off gluten?

this happened to me after going gluten-free...it went away after a few months though

YoloGx Rookie

Interestingly before I originally suspected I might have celiac I had made a practice of eating a bowl of oatmeal before going to bed at night to help me sleep better. Which it did--however after 6 months of this my migraines got worse and more frequent, plus eventually I started shaking. My nerves were out of whack! A naturopath/chiropractor suggested it might be leaky gut syndrome; however I looked it up in the Merck manual and recognized my symptoms as being more like celiac. I then went off gluten even more than I had before when I just thought I had an allergy to the wheat family; so I stopped eating oatmeal and improved greatly--though it wasn't til years later that I found I needed to go off all trace gluten too (or even considered what trace gluten was...).

WideAwake Rookie
Interestingly before I originally suspected I might have celiac I had made a practice of eating a bowl of oatmeal before going to bed at night to help me sleep better. Which it did.

Oh wow! That is just what I would do! It kept me full overnight and helped me sleep for sure. It was also cheap in calories LOL

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748

    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.