Weird Cold Feelings

[Krystens mummy]

Hi I sometimes get these weird feelings like I have just put deep heat cream on my skin or it's wet and cold only in small patches usually on my upper forearm or lower neck most of the time but not always on right side what is it does anyone else get it. lasts sometimes seconds sometimes several minutes.

I also experienced something else a couple of weeks ago which scared me a little could be unrelated one off but started getting completely numb in fingers and then it spread up my arm to right side of my face lasted for about ten minutes anyone help? only had this once dont want it again thought I was having stroke lol

can this be gluten or could it be just because my bmi is 16 I eat plenty of nutrients dont know if im celiac but very underweight thanks

[darlindeb25]

Have you seen a doctor? Have you had your B12 level checked?

I have neuropathy, and sometimes have "cold spots" like you mentioned. Mine are the size of a softball, usually on the back of my leg. It feels like a breeze is blowing on the spot.

I wake up, and will have my hands, and arms sleeping, all the way to my shoulder. I sometimes have buzzing in my feet, like a cellphone on vibrate, or numbness, pins and needles.

If going gluten free has made a remarkable difference, then you probably have been vitamin and mineral deficient. These type of symptoms usually result from B12 deficiency. Your PCP (family doctor) can do the blood work, yet, I think you would be better off seeing a neurologist. PCP's really do not understand much about neuropathy.

[Lisa]

Does this sound familiar?:

Open Original Shared Link

[Evie4]

I have sensations that don't seem to necessarily occur in the same spots. I've had them for years, I can't say it's gotten worse, but since I've joined this site and read what others have described, it makes me wonder if this is related to my problems with gluten.

I had one of the noticably more severe cases about 5 weeks ago. I describe it as a burning feeling on the surface of my skin. This time I had it on the front of my right thigh and felt it during the day, by night when I went to bed, it had migrated to the inner thigh. There was nothing visible on the skin. It didn't hurt unless I touched it--but it was extremely hypersensitive and literally hurt if I brushed across it with my hand. The area was about 3" by 6". It was gone by the next morning. Two days later, I had it on my left hand. First the area under my thumb and then the outside of the palm of my hand. Again, gone the next day. I seem to recall having these sensations of burning skin on my arms and abdomen as well.

I'm going to start keeping track on my e-calendar. Since it always goes away in a day, and it is infrequent, I didn't think much about it. I started taking sublingual B-12 last month. After reading your post, I'm going to be diligent about keeping track and see if it stops.

I get stabbing pains in my lower legs and feet. They are like needle sticks. Two or three quick sticks, and it's done. Sometiimes they are so painful I pull my legs up and cry ouch! I can't say they are always in the same place. And I don't have them frequently. I'd guess a couple times a month would be a conservative guess.

Buzzing in hands and feet doesn't sound unfamiliar.

I too am really interested in what others experience.

Evie

[darlindeb25]

I get stabbing pains in my lower legs and feet. They are like needle sticks. Two or three quick sticks, and it's done. Sometiimes they are so painful I pull my legs up and cry ouch! I can't say they are always in the same place. And I don't have them frequently. I'd guess a couple times a month would be a conservative guess.

Needle sticks is a good description, I called them electric shocks. They are like little zaps, some are little and get your notice, others hurt so much...I get them in my calves. I haven't had this happen for some time..knocking on wood! I would have them every day for a week, then they would just stop, come back in a few weeks or so.

Evie, since you have been gluten free for some time, IMO you have neuropathy too. The B12 is probably the best thing you can do for it. Just realize, it takes a long time for B12 to repair the damage. I have been taking it for nearly 5 years, and finally, my neuro is seeing some results. I see a neuro every 6 months, so far, we agree I do not need to take meds for it, maybe now, I will not need to for a very long time, if ever. I have had MRI's, and EMG's with and without needles, diagnosis is: sensory and axonal neuropathy, gluten ataxia, arthritis, raynauds, and he diagnosed me with sleep apnea...which I never realized I had, now I look back and know it's been going on for a very long time. I now take 5000mcg of B12, sublingual methylcobalamin.

[ang1e0251]

I had forgotten that kind of symptom until you mentioned it. I was getting a sensation in my upper arm that felt like I'd brushed up against something or someone was touching me to get my attention. Totally creepy.

I haven't had that in a long time. If I miss my B12 for a couple of days, I get the tingling and pins and needles in my toes as well as a deep pain behind my knee that I thought was varicose veins. But it goes away with the B12. I also will get the hands and arms numb in the night if I miss my B12 but that is also tied into magnesium for me. I have to be careful and not miss those doses.