Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Florida

Candice4

By Candice4
in Introduce Yourself / Share Stuff

Recommended Posts

Candice4 Newbie
Candice4
Posted

Hi! My name is Candice and I'm 40yrs old. I live in Florida. Even though I had a basic idea of what Celiac Disease is, I never once considered it might be my problem and sadly neither did any of my doctors. Last Feb. I had a complete physical and was found to be in excellent health. When I talked with my doctor about my worsening stomach problems (again), she told me with my history of IBS and colitis to just go ahead and take TWO prilosecs, if one wasn't enough. I did this and by August was conviced I was dying. I actually became afraid to seek further help. I wasted from 130 lbs to 100 lbs. I honestly thought I had some form of cancer and was dying. Everything I ate went straight thru within minutes and I had bouts of such severe pain that I became afraid to eat.

When I found this website and scanned thru the list of symptoms it explained my whole life. It was a terrifying sense of relief.

I learned that people (even friends) can be cruel, whether out of concern or whatever reason, I don't need to be bombarded with how BAD I look. I finally broke down and saw a gastroenterologist and had a colonoscopy and an endocsope which revealed nothing. I honestly thought I was going crazy. It was the day after the scopes that my Mom called and mentioned that a friend of my nieces had the same symptoms and was diagnosed with celiacs. When I asked the doctor about this he said it was a possiblity but that he already had the biopsy's back and were normal, but that he had not taken a biopsy from the right area to test for celiacs. (not sure how that works).

In the meantime I put myself on a gluten and lactose free diet. (lactose has always been an issue). I did manage a small weight gain, but I cannot manage to keep it on. I have not been officially tested. When I asked the gastro about testing he simply said "what good is it going to do, if its positive what are you going to do different, and if its negative, what are you going to do different?". I'll be seeing my regular doctor on the 25th and I'll see what she says.

Last week I found a new heatlh food store and an abundance of new products and got so excited, in my haste I forgot to look for "lactose free" as well as gluten free and OOPS. Have had a rough couple of days as a result.

I'm just trying to find and meet others with this condition for tips and options. Anything that will help me avoid making mistakes and that can help me regain my strength and health. I do feel better, but am still tired and very weak. I have lost a lot of muscle mass and am very wasted. I'm 5'3" and a size 0 or a little girls size 14.

I have a wonderful and supportive husband, however he gets very frustrated trying to shop for me. I'm Mom to 4 wonderful children and I raise and show miniature horses.

Thats my story and a little about me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Becci Enthusiast
Becci
Posted

Hey there, I am Becci... I am also from FL (Green Cove Springs to be exact)...

I also lost thirty pounds out of the blue. I was kind of freaking out. I was sick everyday and couldn't make it any better. My doctor finally said that I just have to live with it, because she couldn't find anything...

And now, here I am!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,161
    • Most Online (within 30 mins)
      7,748
    DAR girl
    Newest Member
    DAR girl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...