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Finally Got Diagnosis For My Bladder Issues

daphniela

By daphniela
in Related Issues & Disorders

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daphniela Explorer
daphniela
Posted

I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

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Lisa Mentor
Lisa
Posted
I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

missy'smom Collaborator
missy'smom
Posted

So glad that you've found out what the problem is. Hope these changes will relieve you of your discomfort.

daphniela Explorer
daphniela
Posted
  • Author
This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

That is a good list, but I was looking for more in the area of brands for bottled water that are pH neutral, cereals that are both preservative free and free of any artifical ingredients that are also gluten free, deli meat brands with same requirements, and candy with same requirements. I cannot have chocolate or coffee either.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

daphniela Explorer
daphniela
Posted
  • Author
Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

ravenwoodglass Mentor
ravenwoodglass
Posted
No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

Are you being really careful about cross contamination both in processed foods and in the home? I know when I feel really stressed or tired I have a tendency to eat more processed and thus more risky foods. I used to grab Amy's stuff a lot but my store now carries the Glutino frozen entrees and they don't seem to have the CC issues Amy's does. I don't know what your other restrictions are but I really like the chicken alfredo and the mac and cheese. I try hard to keep them on hand for days when cooking is physically or mentally out of the question. You would be surprised how little gluten can keep some issues going. It seems sometimes the antibodies don't care whether we have a crumb or a gobs of the stuff the reaction is the same.

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