Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grandma Help


sarahann324

Recommended Posts

sarahann324 Newbie

My grandma doesn't understand completely. She knows I'm allergic to wheat, and so far the only reaction I had when I was glutened was throwing up(it ended in a day) but I'm trying to be careful around things that contain wheat, because I've heard stories of other people who have gotten sick just by breathing/being around something containing wheat. She thinks its just "in their head." Any help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Can you bring her here? If you can get her to sit down and read some of the posts and info on the home page that may help her understand a bit better.

momxyz Contributor

could you have your parents talk to her (especially the one that is the child of your grandma?)

My husband talked to my mother in law and that has helped tremendously.

StephanieM Newbie

I'm learning that it's just that generation. DO you know that my own father (I"m 34, he's 69) STILL offers me toast in the morning, and asks why when they are eating pasta/lasagna, I have my own food. STILL.. After, oh maybe 20 explanation sessions..

No joke, my 6 year old daughter knows better.. she'll tell him that the breadcrumbs that fly everywhere when he cuts his crunchy bread at the table are not good, and now 'mommy' can't eat the other food and that he should be more careful.. SHE"S 6!!

LOL- they will never get it. I"m learning this the hard way.. My father in law has lied to me a few times and once when I probed after he seemed like he was lying, he said "I only put a few tablespoons of breadcrumbs in it"...

Steph (:

momxyz Contributor
I'm learning that it's just that generation. DO you know that my own father (I"m 34, he's 69) STILL offers me toast in the morning, and asks why when they are eating pasta/lasagna, I have my own food. STILL.. After, oh maybe 20 explanation sessions..

No joke, my 6 year old daughter knows better.. she'll tell him that the breadcrumbs that fly everywhere when he cuts his crunchy bread at the table are not good, and now 'mommy' can't eat the other food and that he should be more careful.. SHE"S 6!!

LOL- they will never get it. I"m learning this the hard way.. My father in law has lied to me a few times and once when I probed after he seemed like he was lying, he said "I only put a few tablespoons of breadcrumbs in it"...

Steph (:

oh I hear you on that one! As good as my MIL has been since hubby talked to her, she still will make something that my daughter and I can't eat. (Like gravy thickened with flour... breadcrumb stuffed green peppers - which were formerly a huge favorite of mine....) I feel fortunate because she is at least trying.

One thing I did that is helping is that I have equipped her with some gluten free ingredients to use when she cooks for us. I don't expect her to buy these things - because unfortunately they are more expensive - but if she has them she is willing to use them . Breadcrumbs are the #1 ingredient I make sure she has! (I make my own from gluten free bread)

sarahann324 Newbie

Okay thanks everyone.

I can get her to here, she actually lives with us, lol.

She is understanding in some ways, but sometimes she implies she kind of thinks we are just making a big deal out of nothing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Butch68
    Newest Member
    Butch68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.